Thank you all

[Guest guest]

It is so wonderful to have people who can understand my fears and

questions. I have let this disease run me into madness. I never

show it on the outside. But on the inside I have fallen apart.

Just not knowing or being able to understand why this has happened

has consumed me. I am of strong faith, but now I even have a hard

time praying. I watched Kierra cry through her cardio. appt. today,

knowing that we had to go upstairs for yet another NG change. Just

watching her is breaking my heart. Now they upped her bolus feeds

to 65 ml x 5 a day and she hasn't eatten at all today. They are

increasing her lipids in her tpn again because of weight loss, but

that sends her into metabolic crisis. Just seems like we are

running on a wheel. But having a place to go and talk helps so

much. Bless you all.

[Guest guest]

It is so wonderful to have people who can understand my fears and

questions. I have let this disease run me into madness. I never

show it on the outside. But on the inside I have fallen apart.

Just not knowing or being able to understand why this has happened

has consumed me. I am of strong faith, but now I even have a hard

time praying. I watched Kierra cry through her cardio. appt. today,

knowing that we had to go upstairs for yet another NG change. Just

watching her is breaking my heart. Now they upped her bolus feeds

to 65 ml x 5 a day and she hasn't eatten at all today. They are

increasing her lipids in her tpn again because of weight loss, but

that sends her into metabolic crisis. Just seems like we are

running on a wheel. But having a place to go and talk helps so

much. Bless you all.