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Hey Guys,

I thought I would tell you what has been happening since my s

Hopkins visit. My neuro here does not have any experience with any of

the drugs that we discuss on this site, so it was decided that my rheumy

would be the go to guy since he is experienced with immunosuppression

meds.

When I spoke with him this am, he spoke with neuro at s Hopkins and

was waiting to speak to the neuro here so it could be decided which

tests I might need prior to starting any kind of treatment. They are

supposed to talk today. My excited news si that I am actually going to

have a treatment plan. Up until this point, my symptoms were treated

but we were just flying by the seat of our pants. My rheumy is going to

use CNS lupus as the diagnosis so all drugs he wants to try will be

covered - that is unless MRI/MRA testing actually shows a lesion.

This is the best news I have had in a long time. I know that it might

take a trial of different meds before finding one that works for me, but

10 years after the fact, that someone is finally going to do something

about what is going on.

Thanks to all of my wonderful neurosarc family members - I love all of

you.

Take care and as soon as the drug of choice is decided, I will let you

know.

Love,

Terri G.

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Guest guest

,

Thanks for the kind words and good thoughts as always. I have to make

an appointment with the rheumy so I can see him and we can pin down that

actual treatment plan.

How is Seth? How is your Sherrif? How is school going? Just hoping

you are all doing well.

Love

Terri

>

> congrats terri on a dx, i'm sure your glad they finally want to put a

name

> to your illness. I hope they get decided what meds they want to use

soon.

>

> many hugs and blessings and a pain free day

>

>

>

>

> **************Need a new ride? Check out the largest site for U.S.

used car

> listings at AOL Autos.

> (http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

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Guest guest

,

Thanks for the kind words and good thoughts as always. I have to make

an appointment with the rheumy so I can see him and we can pin down that

actual treatment plan.

How is Seth? How is your Sherrif? How is school going? Just hoping

you are all doing well.

Love

Terri

>

> congrats terri on a dx, i'm sure your glad they finally want to put a

name

> to your illness. I hope they get decided what meds they want to use

soon.

>

> many hugs and blessings and a pain free day

>

>

>

>

> **************Need a new ride? Check out the largest site for U.S.

used car

> listings at AOL Autos.

> (http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

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