Re: [SPAM] Making a decision

April 17, 2008

Thank you Tracie.

I printed this out so my family could read it. They keep coming up with all kinds of things for me to do, things I have already tried. I do believe sometimes they think I am just excepting my self this way and not trying anymore. Because I am not going to the Dr. every other day, or going to a therapist, or praising the lord on the streets of Mauston that I am apathetic to what has happened to me. So far from the truth are they. I try every day to understand what this is. I try every day to do a little bit more, and not wear myself out. I try everyday to make them understand. I pray every day for them to have some faith in me that I am not sitting idle. I can't go the rest of my life feeling sorry for myself, I want to live my life with love to and from my family. I want to be accepted for what I am now and not what I used to be. Heck I don't know if I am making any sense but if they would just say, " Jackie we love you even if you can't walk and we aren't staying away because of that." It would be so great. My children and grandchildren have let me know that they are so glad I am still around to laugh with them. I have a sister who won't come around because she is afraid she will catch what I have and she doesn't want to be an invalid. I haven't seen her in a year and a half and she lives only 15 miles from me. I tried to go to her house but she won't answer the door and I know she is there.

Enough of this. Thank you for your knowledge and sharing it with us. I am glad I have this site to come to, just sorry we all have to be here.

God bless and keep you.

Jackie

[sPAM] Making a decision

Here is another blast from the past. The topic was "making a decision."I hear ya loud and clear. I love how you shared that with your diabetes, arthritis, high blood pressure, you have answers and ways you can control these conditions. That's what all of us are asking for, some control in our lives.I also understand it when you say that today you don't have the strength to deal with all this. I am in th esame place. It all just seems so overwhelming. and i were talking earlier today, about how maybe the thought of healing on a physical level may never happen for me-- and how I may have to accept that the healing will be on a spirit(ual) level. I shared wiht him that I agonize over whether to allow my western medicine MD's to treat me with their prescriptions, or to allow my alternative praticioners to treat me with their approaches. I read in a book that said something to the effect of - People with serious chronic, life threatening illness do agonize over what to do --is it a change of diet, do we need supplements, do we do acupuncture, see the Osteopath or the psychic or the . . .; or do we not treat and see what happens. Then finally, we make our decision as to how to take care of ourself, and as soon as we do-- we tell our loved ones and they say- have you considered this or this or that. Hell yes, we have considered them all. We don't want to make ourselves sicker to get better. But if that choice will ultimately give us some degree of health back, we will do whatever it takes. Whatever it takes.That's the hard part for our loved ones to get-- we have done nothing else but concentrate, educate, seek, pay for, pray for-- answers. Instead of being asked- have you considered XXXX wouldn't it be wonderful if the first reaction would be-- "ok love, I know that you've spent alot of time pondering what to do, I will support you in this decision." Man how I would love to hear that. Know that it is okay to be weak, tired, scared, sad, angry and worn out. For today, that is okay.Tomorrow we start a new day.Love to all,Tracie

April 17, 2008

Thank you Tracie.

I printed this out so my family could read it. They keep coming up with all kinds of things for me to do, things I have already tried. I do believe sometimes they think I am just excepting my self this way and not trying anymore. Because I am not going to the Dr. every other day, or going to a therapist, or praising the lord on the streets of Mauston that I am apathetic to what has happened to me. So far from the truth are they. I try every day to understand what this is. I try every day to do a little bit more, and not wear myself out. I try everyday to make them understand. I pray every day for them to have some faith in me that I am not sitting idle. I can't go the rest of my life feeling sorry for myself, I want to live my life with love to and from my family. I want to be accepted for what I am now and not what I used to be. Heck I don't know if I am making any sense but if they would just say, " Jackie we love you even if you can't walk and we aren't staying away because of that." It would be so great. My children and grandchildren have let me know that they are so glad I am still around to laugh with them. I have a sister who won't come around because she is afraid she will catch what I have and she doesn't want to be an invalid. I haven't seen her in a year and a half and she lives only 15 miles from me. I tried to go to her house but she won't answer the door and I know she is there.

Enough of this. Thank you for your knowledge and sharing it with us. I am glad I have this site to come to, just sorry we all have to be here.

God bless and keep you.

Jackie

[sPAM] Making a decision

Here is another blast from the past. The topic was "making a decision."I hear ya loud and clear. I love how you shared that with your diabetes, arthritis, high blood pressure, you have answers and ways you can control these conditions. That's what all of us are asking for, some control in our lives.I also understand it when you say that today you don't have the strength to deal with all this. I am in th esame place. It all just seems so overwhelming. and i were talking earlier today, about how maybe the thought of healing on a physical level may never happen for me-- and how I may have to accept that the healing will be on a spirit(ual) level. I shared wiht him that I agonize over whether to allow my western medicine MD's to treat me with their prescriptions, or to allow my alternative praticioners to treat me with their approaches. I read in a book that said something to the effect of - People with serious chronic, life threatening illness do agonize over what to do --is it a change of diet, do we need supplements, do we do acupuncture, see the Osteopath or the psychic or the . . .; or do we not treat and see what happens. Then finally, we make our decision as to how to take care of ourself, and as soon as we do-- we tell our loved ones and they say- have you considered this or this or that. Hell yes, we have considered them all. We don't want to make ourselves sicker to get better. But if that choice will ultimately give us some degree of health back, we will do whatever it takes. Whatever it takes.That's the hard part for our loved ones to get-- we have done nothing else but concentrate, educate, seek, pay for, pray for-- answers. Instead of being asked- have you considered XXXX wouldn't it be wonderful if the first reaction would be-- "ok love, I know that you've spent alot of time pondering what to do, I will support you in this decision." Man how I would love to hear that. Know that it is okay to be weak, tired, scared, sad, angry and worn out. For today, that is okay.Tomorrow we start a new day.Love to all,Tracie

April 17, 2008

Jackie,

I can totally relate to your situation with your sister except it is my daughter. I am fortunate where I can still work however she does not want to hear anything nor understand. So I have not even been allowed visits from my grandchildren or even phone calls. I have to really do everything my coach tells me to do and rest and pace myself in order to be functional at work. So she has a therapist that says I should be doing all the phone calls and driving there etc when the woman does not even know what prednisone or this illness does to you. So now I have an outside force telling her what to do and she does not even know me. I am trying to get her to understand I cannot be who I was going 24/7 as that got me into this predicament but sometimes you just give up.

So I do empathize with your situation. My daughter thought I was making all this up for attention. So one has to battle the disease. I always have had compassion for people with illnesses and it does not seem fair when they won't acknowledge it with you.

We have to all hang in there together and glad we have this support group.

Hugs,

KatNeed a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

April 17, 2008

Jackie,

I can totally relate to your situation with your sister except it is my daughter. I am fortunate where I can still work however she does not want to hear anything nor understand. So I have not even been allowed visits from my grandchildren or even phone calls. I have to really do everything my coach tells me to do and rest and pace myself in order to be functional at work. So she has a therapist that says I should be doing all the phone calls and driving there etc when the woman does not even know what prednisone or this illness does to you. So now I have an outside force telling her what to do and she does not even know me. I am trying to get her to understand I cannot be who I was going 24/7 as that got me into this predicament but sometimes you just give up.

So I do empathize with your situation. My daughter thought I was making all this up for attention. So one has to battle the disease. I always have had compassion for people with illnesses and it does not seem fair when they won't acknowledge it with you.

We have to all hang in there together and glad we have this support group.

Hugs,

KatNeed a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

April 17, 2008

Jackie...my brother has neurosarcoidosis...our older brother was his

caretaker and passed away last october. Family is so important. I am

here visiting my brother for 2 days and while here, I went to the

independent center where our older brother use to be the director to

find out what I need to find out in my state to bring my brother over

to live with me. My kids have agreed to help where needed, meaning..

giving up the new familyroom (pool room) to make way for their

uncle). It's not a for sure thing, but it was nice to know my young

adults understand.

Perhaps one of your kids can go talk to your sister...let them tell

her how important family is needed in these times.. that no matter

what, you are still her sister. It is hard...I know...remembering

back when that my brother and i would go out swimming together,

racing eachother, his swimming daily for his swimteam... and all the

running around playing tag. And over the past few years seeing him

in his wheelchair, moving so slow...but admiring his strength and his

faith. He never married...never had kids. I am the closest one to

him, and asking him to once again up and move to another state so he

can be cared for. I just don't know if my state will have the

services he needs...

Hang in there...I hope your sister comes around soon.

Dahleen

>

> Thank you Tracie.

> I printed this out so my family could read it. They keep coming up

with all kinds of things for me to do, things I have already tried.

I do believe sometimes they think I am just excepting my self this

way and not trying anymore. Because I am not going to the Dr. every

other day, or going to a therapist, or praising the lord on the

streets of Mauston that I am apathetic to what has happened to me.

So far from the truth are they. I try every day to understand what

this is. I try every day to do a little bit more, and not wear

myself out. I try everyday to make them understand. I pray every

day for them to have some faith in me that I am not sitting idle. I

can't go the rest of my life feeling sorry for myself, I want to live

my life with love to and from my family. I want to be accepted for

what I am now and not what I used to be. Heck I don't know if I am

making any sense but if they would just say, " Jackie we love you

even if you can't walk and we aren't staying away because of that. "

It would be so great. My children and grandchildren have let me know

that they are so glad I am still around to laugh with them. I have a

sister who won't come around because she is afraid she will catch

what I have and she doesn't want to be an invalid. I haven't seen

her in a year and a half and she lives only 15 miles from me. I

tried to go to her house but she won't answer the door and I know she

is there.

> Enough of this. Thank you for your knowledge and sharing it with

us. I am glad I have this site to come to, just sorry we all have to

be here.

> God bless and keep you.

> Jackie

> [sPAM] Making a decision

>

> Here is another blast from the past. The topic was " making a

> decision. "

>

> I hear ya loud and clear. I love how you shared that with your

> diabetes, arthritis, high blood pressure, you have answers and

ways

> you can control these conditions. That's what all of us are

asking

> for, some control in our lives.

>

> I also understand it when you say that today you don't have the

> strength to deal with all this. I am in th esame place. It all

just

> seems so overwhelming.

>

> and i were talking earlier today, about how maybe the

thought

> of healing on a physical level may never happen for me-- and how

I

> may have to accept that the healing will be on a spirit(ual)

level.

>

> I shared wiht him that I agonize over whether to allow my western

> medicine MD's to treat me with their prescriptions, or to allow

my

> alternative praticioners to treat me with their approaches.

>

> I read in a book that said something to the effect of - People

with

> serious chronic, life threatening illness do agonize over what to

do -

> -is it a change of diet, do we need supplements, do we do

> acupuncture, see the Osteopath or the psychic or the . . .; or do

we

> not treat and see what happens. Then finally, we make our

decision

> as to how to take care of ourself, and as soon as we do-- we tell

our

> loved ones and they say- have you considered this or this or

that.

> Hell yes, we have considered them all. We don't want to make

> ourselves sicker to get better. But if that choice will

ultimately

> give us some degree of health back, we will do whatever it takes.

> Whatever it takes.

>

> That's the hard part for our loved ones to get-- we have done

nothing

> else but concentrate, educate, seek, pay for, pray for-- answers.

> Instead of being asked- have you considered XXXX wouldn't it be

> wonderful if the first reaction would be-- " ok love, I know that

> you've spent alot of time pondering what to do, I will support

you in

> this decision. " Man how I would love to hear that.

>

> Know that it is okay to be weak, tired, scared, sad, angry and

worn

> out. For today, that is okay.

>

> Tomorrow we start a new day.

>

> Love to all,

> Tracie

>

April 17, 2008