Re: [SPAM] question for all &Ron, marla from

[Guest guest]

I have the Ns and have had it since 1995 and was not dx until 2001. I was on steroids for many years and got very toxic , so the Neuro had to find something else and quick. He put me on Imuran and plaquinel and the brain fog went bye bye, for the most part and the pain level went from a 10+ everyday to a liveable 7 daily. I still have problems with weakness in my arms and legs almost a few times a week, but in the long run im doing much better. I still have trouble with tremors in my hands sort af bad, I feel funny in public when it happens, but hey what can i do. I just learned early on to Rest, Rest and Rest some more when it happens. I talked to my Neuro and rheumy about trying another chemo to see if it completely rids me of the symtoms and he said he is not going to switch meds unless my mri changes, and so far no new growths, I still have the one tumor in my left lobe. but has not grown or changed in anyway.

I hope the dr finds a drug that can work better for you.

many blessings and many hugs and a pain free day

In Pa. It's Tax Time! Get tips, forms and advice on AOL Money Finance.

[Guest guest]

I have the Ns and have had it since 1995 and was not dx until 2001. I was on steroids for many years and got very toxic , so the Neuro had to find something else and quick. He put me on Imuran and plaquinel and the brain fog went bye bye, for the most part and the pain level went from a 10+ everyday to a liveable 7 daily. I still have problems with weakness in my arms and legs almost a few times a week, but in the long run im doing much better. I still have trouble with tremors in my hands sort af bad, I feel funny in public when it happens, but hey what can i do. I just learned early on to Rest, Rest and Rest some more when it happens. I talked to my Neuro and rheumy about trying another chemo to see if it completely rids me of the symtoms and he said he is not going to switch meds unless my mri changes, and so far no new growths, I still have the one tumor in my left lobe. but has not grown or changed in anyway.

I hope the dr finds a drug that can work better for you.

many blessings and many hugs and a pain free day

In Pa. It's Tax Time! Get tips, forms and advice on AOL Money Finance.

[Guest guest]

Thank you , I am on Plaquanil and Methotrexate, I am told by my doctor that Meth and Imuran are pretty much the same thing, I asked him about that? I have some hand tremors too in my Left hand only when ever I try to do something with fine motor movement not matter how tired or rested I am, I know what you mean about the Pred. like I said in another post, is a love/hate relationship. You all are so very wonderful, thank you so much, Marla

I have the Ns and have had it since 1995 and was not dx until 2001. I was on steroids for many years and got very toxic , so the Neuro had to find something else and quick. He put me on Imuran and plaquinel and the brain fog went bye bye, for the most part and the pain level went from a 10+ everyday to a liveable 7 daily. I still have problems with weakness in my arms and legs almost a few times a week, but in the long run im doing much better. I still have trouble with tremors in my hands sort af bad, I feel funny in public when it happens, but hey what can i do. I just learned early on to Rest, Rest and Rest some more when it happens. I talked to my Neuro and rheumy about trying another chemo to see if it completely rids me of the symtoms and he said he is not going to switch meds unless my mri changes, and so far no new growths, I still have the one tumor in my left lobe. but has not grown or changed in anyway.

I hope the dr finds a drug that can work better for you.

many blessings and many hugs and a pain free day

In Pa.

It's Tax Time! Get tips, forms and advice on AOL Money Finance.

-- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer

[Guest guest]

Thank you , I am on Plaquanil and Methotrexate, I am told by my doctor that Meth and Imuran are pretty much the same thing, I asked him about that? I have some hand tremors too in my Left hand only when ever I try to do something with fine motor movement not matter how tired or rested I am, I know what you mean about the Pred. like I said in another post, is a love/hate relationship. You all are so very wonderful, thank you so much, Marla

I have the Ns and have had it since 1995 and was not dx until 2001. I was on steroids for many years and got very toxic , so the Neuro had to find something else and quick. He put me on Imuran and plaquinel and the brain fog went bye bye, for the most part and the pain level went from a 10+ everyday to a liveable 7 daily. I still have problems with weakness in my arms and legs almost a few times a week, but in the long run im doing much better. I still have trouble with tremors in my hands sort af bad, I feel funny in public when it happens, but hey what can i do. I just learned early on to Rest, Rest and Rest some more when it happens. I talked to my Neuro and rheumy about trying another chemo to see if it completely rids me of the symtoms and he said he is not going to switch meds unless my mri changes, and so far no new growths, I still have the one tumor in my left lobe. but has not grown or changed in anyway.

I hope the dr finds a drug that can work better for you.

many blessings and many hugs and a pain free day

In Pa.

It's Tax Time! Get tips, forms and advice on AOL Money Finance.

-- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer