My brother has been living with this for years

[Guest guest]

Hi.. My name is Dahleen and I live in northern Nevada, near Reno. My

brother Wayne has neurosarcoidosis and by what I have researched so

far, seems to have a rare extreme case. He lives in California and

our older brother Bob , former director of Marin County for

Independent Living was his care taker. Bob was instrumental in

getting the care my brother needed. My brother died last

October due to an accident. So far my brother Wayne has been doing

ok, due mainly to his attendent there, but we all know with his

health, he will not be able to live alone in California alone for

long and I am looking to move him to Nevada. He is in a wheelchair

his legs are strapped together due to the uncontrollable movements,

He drifts off to sleep in the middle of conversations or eating, his

motor skills are weakening and speech slowing and Along with this, he

also has: sleep apnia,Osteoparosis side affects... a seizure

disorder....water retention..bladder...condom catherder. He had a

seizure just this past weekend. This is all I know about his

condiditon, as my older brother was his care taker. I am looking at

bringing Wayne here to Nevada, but I am still uncertain about what I

need to know and find out about his care. I am hoping this support

group will give me a little more insight to this. Thank you for your

support...

Dahleen

[Guest guest]

Hi.. My name is Dahleen and I live in northern Nevada, near Reno. My

brother Wayne has neurosarcoidosis and by what I have researched so

far, seems to have a rare extreme case. He lives in California and

our older brother Bob , former director of Marin County for

Independent Living was his care taker. Bob was instrumental in

getting the care my brother needed. My brother died last

October due to an accident. So far my brother Wayne has been doing

ok, due mainly to his attendent there, but we all know with his

health, he will not be able to live alone in California alone for

long and I am looking to move him to Nevada. He is in a wheelchair

his legs are strapped together due to the uncontrollable movements,

He drifts off to sleep in the middle of conversations or eating, his

motor skills are weakening and speech slowing and Along with this, he

also has: sleep apnia,Osteoparosis side affects... a seizure

disorder....water retention..bladder...condom catherder. He had a

seizure just this past weekend. This is all I know about his

condiditon, as my older brother was his care taker. I am looking at

bringing Wayne here to Nevada, but I am still uncertain about what I

need to know and find out about his care. I am hoping this support

group will give me a little more insight to this. Thank you for your

support...

Dahleen