Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 Doug, I am afraid I am not in the area your father is, but don't be afraid to ask for as many opinions as you can get. Don't let them put you off if that is what your Dad needs. Have any of the test's shown anything definitive? If not, don't worry, a lot of folks here have a presumptive diagnosis of neurosarcoidosis. I actually am one of them. There are a number of good papers and websites that have a lot of information to use. The NIH I know has info, as I believe Mayo Clinic does too. Also, since sarcoid might be a diagnosis, does your Dad have a rheumatologist? That might be another way to go. Well, I wish I had more to help but I will be praying for you guys. Terri G. (in VA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2008 Report Share Posted April 27, 2008 Doug, I am afraid I am not in the area your father is, but don't be afraid to ask for as many opinions as you can get. Don't let them put you off if that is what your Dad needs. Have any of the test's shown anything definitive? If not, don't worry, a lot of folks here have a presumptive diagnosis of neurosarcoidosis. I actually am one of them. There are a number of good papers and websites that have a lot of information to use. The NIH I know has info, as I believe Mayo Clinic does too. Also, since sarcoid might be a diagnosis, does your Dad have a rheumatologist? That might be another way to go. Well, I wish I had more to help but I will be praying for you guys. Terri G. (in VA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2008 Report Share Posted April 28, 2008 Thanks you Terri--blessings to you for your heartfelt and informative response....blessings, dougmosaicgirl1 wrote: Doug, I am afraid I am not in the area your father is, but don't be afraid to ask for as many opinions as you can get. Don't let them put you off if that is what your Dad needs. Have any of the test's shown anything definitive? If not, don't worry, a lot of folks here have a presumptive diagnosis of neurosarcoidosis. I actually am one of them. There are a number of good papers and websites that have a lot of information to use. The NIH I know has info, as I believe Mayo Clinic does too. Also, since sarcoid might be a diagnosis, does your Dad have a rheumatologist? That might be another way to go. Well, I wish I had more to help but I will be praying for you guys. Terri G. (in VA) Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2008 Report Share Posted April 28, 2008 Thanks you Terri--blessings to you for your heartfelt and informative response....blessings, dougmosaicgirl1 wrote: Doug, I am afraid I am not in the area your father is, but don't be afraid to ask for as many opinions as you can get. Don't let them put you off if that is what your Dad needs. Have any of the test's shown anything definitive? If not, don't worry, a lot of folks here have a presumptive diagnosis of neurosarcoidosis. I actually am one of them. There are a number of good papers and websites that have a lot of information to use. The NIH I know has info, as I believe Mayo Clinic does too. Also, since sarcoid might be a diagnosis, does your Dad have a rheumatologist? That might be another way to go. Well, I wish I had more to help but I will be praying for you guys. Terri G. (in VA) Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2008 Report Share Posted April 28, 2008 Doug, You are more than welcome. If you need something pop on. Some of us can just be there for you emotionally, but a lot of folks here have a medical background and may be able to answer some of your questions. Terri G. > Doug, > > I am afraid I am not in the area your father is, but don't be afraid to > ask for as many opinions as you can get. Don't let them put you off if > that is what your Dad needs. Have any of the test's shown anything > definitive? If not, don't worry, a lot of folks here have a presumptive > diagnosis of neurosarcoidosis. I actually am one of them. > > There are a number of good papers and websites that have a lot of > information to use. The NIH I know has info, as I believe Mayo Clinic > does too. Also, since sarcoid might be a diagnosis, does your Dad have > a rheumatologist? That might be another way to go. > > Well, I wish I had more to help but I will be praying for you guys. > > Terri G. (in VA) > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2008 Report Share Posted April 28, 2008 Doug, You are more than welcome. If you need something pop on. Some of us can just be there for you emotionally, but a lot of folks here have a medical background and may be able to answer some of your questions. Terri G. > Doug, > > I am afraid I am not in the area your father is, but don't be afraid to > ask for as many opinions as you can get. Don't let them put you off if > that is what your Dad needs. Have any of the test's shown anything > definitive? If not, don't worry, a lot of folks here have a presumptive > diagnosis of neurosarcoidosis. I actually am one of them. > > There are a number of good papers and websites that have a lot of > information to use. The NIH I know has info, as I believe Mayo Clinic > does too. Also, since sarcoid might be a diagnosis, does your Dad have > a rheumatologist? That might be another way to go. > > Well, I wish I had more to help but I will be praying for you guys. > > Terri G. (in VA) > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > Quote Link to comment Share on other sites More sharing options...
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