Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 Hi all, We took Matt to his GI and his cardio appts this week, and all went well there, we are adding fiber (pedisure with fiber), to his feedings, mirolax for constipation and finally they are upping his dose of Zantac and keeping our fingers crossed that this will help with his reflux. Cardiac Dr was very nice, saw a small glitch, on the ekg, so they did a echo and it did not show what they thought they saw on the ekg, what a relief!!! dont have to go back for another year, hurray for Matt, on the other note (matts older brother) and I ended up in ER for stomach flu, and i thank God i had the flu shot, or I think i would have been much more ill. we both dehydrated perty quick, sat in the ER, for 12 hours before getting helped, and we were on the extreme list. Of course our local ER doesnt understand Mito, no matter how many times our family practice explains about us and the disease. But once they gave us compezine and IV fluids we felt much better, a nurse comes in with a sugar tester, ask me if im diabetic, i tell him no, he pokes my finger, announcing my sugar was low on my blood test, and its low on the tester, well more IV fluid with glucose for me. We are doing well now. Poor Bob now has the flu and still working every day i just dont know how this man does it. He really is our Superman!! Now just praying Matt doesnt get this, that would be a disaster, doing all we can not to infect him, including not sending him to school, although he thought that would meant no school work or homework, he is finding out he was very wrong, and not very happy about that!!! Hope everyone here has been able to avoid this bug, Been keeping you all in our thoughts and prayers!! Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 Hi all, We took Matt to his GI and his cardio appts this week, and all went well there, we are adding fiber (pedisure with fiber), to his feedings, mirolax for constipation and finally they are upping his dose of Zantac and keeping our fingers crossed that this will help with his reflux. Cardiac Dr was very nice, saw a small glitch, on the ekg, so they did a echo and it did not show what they thought they saw on the ekg, what a relief!!! dont have to go back for another year, hurray for Matt, on the other note (matts older brother) and I ended up in ER for stomach flu, and i thank God i had the flu shot, or I think i would have been much more ill. we both dehydrated perty quick, sat in the ER, for 12 hours before getting helped, and we were on the extreme list. Of course our local ER doesnt understand Mito, no matter how many times our family practice explains about us and the disease. But once they gave us compezine and IV fluids we felt much better, a nurse comes in with a sugar tester, ask me if im diabetic, i tell him no, he pokes my finger, announcing my sugar was low on my blood test, and its low on the tester, well more IV fluid with glucose for me. We are doing well now. Poor Bob now has the flu and still working every day i just dont know how this man does it. He really is our Superman!! Now just praying Matt doesnt get this, that would be a disaster, doing all we can not to infect him, including not sending him to school, although he thought that would meant no school work or homework, he is finding out he was very wrong, and not very happy about that!!! Hope everyone here has been able to avoid this bug, Been keeping you all in our thoughts and prayers!! Barb Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.