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Hi Everyone

This is rather scary. Reading what some of you are going through. I wish you all the best.

My name is Kathy....I havent been formally diagnosed with this disorder but have been told as I was getting tests " How long have you had sarcoidosis. I knew a woman that had it a couple years ago. I started researching....and since i had to wait 2 mos for an appt with a specialist I had plenty of time to research. My neurologist tells me to wait and see the specialist. When I call for an update on my tests I was told the Dr already gave you the results that he was going to give you. They just expect me to wait until i see the specialist. Well, the wait is almost over. I go thurs. i was told i had a lesion in my spinal cord and was tested for MS. My dr called me and said it's possible i could develope ms in next 5 yrs but he'll just call it an inflamation of the spinal cord he sd just go on with your life and maybe it will go away. I callled him when my right hand started tingling and my toes started going numb and he set me up with intervenous solu medrol treatments for 3 days. My left hand and arm are numb and getting stiff. some of my fingers arent wrkg very well, my legs are numb and sensations are off in my feet so i lose my balance at times. i could go on but won't.

So if anyone has any words of encouragement.... or can anyone tell me if this specialist will be doing any tests or am i going just to hear the gourry details. I am getting nervous the closer it gets.

My prayers will be with the group! Thanks for listening

Kathy

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Guest guest

Hi Everyone

This is rather scary. Reading what some of you are going through. I wish you all the best.

My name is Kathy....I havent been formally diagnosed with this disorder but have been told as I was getting tests " How long have you had sarcoidosis. I knew a woman that had it a couple years ago. I started researching....and since i had to wait 2 mos for an appt with a specialist I had plenty of time to research. My neurologist tells me to wait and see the specialist. When I call for an update on my tests I was told the Dr already gave you the results that he was going to give you. They just expect me to wait until i see the specialist. Well, the wait is almost over. I go thurs. i was told i had a lesion in my spinal cord and was tested for MS. My dr called me and said it's possible i could develope ms in next 5 yrs but he'll just call it an inflamation of the spinal cord he sd just go on with your life and maybe it will go away. I callled him when my right hand started tingling and my toes started going numb and he set me up with intervenous solu medrol treatments for 3 days. My left hand and arm are numb and getting stiff. some of my fingers arent wrkg very well, my legs are numb and sensations are off in my feet so i lose my balance at times. i could go on but won't.

So if anyone has any words of encouragement.... or can anyone tell me if this specialist will be doing any tests or am i going just to hear the gourry details. I am getting nervous the closer it gets.

My prayers will be with the group! Thanks for listening

Kathy

Get the MapQuest Toolbar, Maps, Traffic, Directions More!

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