Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Hi Everyone This is rather scary. Reading what some of you are going through. I wish you all the best. My name is Kathy....I havent been formally diagnosed with this disorder but have been told as I was getting tests " How long have you had sarcoidosis. I knew a woman that had it a couple years ago. I started researching....and since i had to wait 2 mos for an appt with a specialist I had plenty of time to research. My neurologist tells me to wait and see the specialist. When I call for an update on my tests I was told the Dr already gave you the results that he was going to give you. They just expect me to wait until i see the specialist. Well, the wait is almost over. I go thurs. i was told i had a lesion in my spinal cord and was tested for MS. My dr called me and said it's possible i could develope ms in next 5 yrs but he'll just call it an inflamation of the spinal cord he sd just go on with your life and maybe it will go away. I callled him when my right hand started tingling and my toes started going numb and he set me up with intervenous solu medrol treatments for 3 days. My left hand and arm are numb and getting stiff. some of my fingers arent wrkg very well, my legs are numb and sensations are off in my feet so i lose my balance at times. i could go on but won't. So if anyone has any words of encouragement.... or can anyone tell me if this specialist will be doing any tests or am i going just to hear the gourry details. I am getting nervous the closer it gets. My prayers will be with the group! Thanks for listening Kathy Get the MapQuest Toolbar, Maps, Traffic, Directions More! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Hi Everyone This is rather scary. Reading what some of you are going through. I wish you all the best. My name is Kathy....I havent been formally diagnosed with this disorder but have been told as I was getting tests " How long have you had sarcoidosis. I knew a woman that had it a couple years ago. I started researching....and since i had to wait 2 mos for an appt with a specialist I had plenty of time to research. My neurologist tells me to wait and see the specialist. When I call for an update on my tests I was told the Dr already gave you the results that he was going to give you. They just expect me to wait until i see the specialist. Well, the wait is almost over. I go thurs. i was told i had a lesion in my spinal cord and was tested for MS. My dr called me and said it's possible i could develope ms in next 5 yrs but he'll just call it an inflamation of the spinal cord he sd just go on with your life and maybe it will go away. I callled him when my right hand started tingling and my toes started going numb and he set me up with intervenous solu medrol treatments for 3 days. My left hand and arm are numb and getting stiff. some of my fingers arent wrkg very well, my legs are numb and sensations are off in my feet so i lose my balance at times. i could go on but won't. So if anyone has any words of encouragement.... or can anyone tell me if this specialist will be doing any tests or am i going just to hear the gourry details. I am getting nervous the closer it gets. My prayers will be with the group! Thanks for listening Kathy Get the MapQuest Toolbar, Maps, Traffic, Directions More! Quote Link to comment Share on other sites More sharing options...
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