Guest guest Posted February 11, 2005 Report Share Posted February 11, 2005 Any ideas about how to treat a sinus infection? is almost seven and has had sinus infections since she started developing sinuses (we're not born with them). She had sinus surgery two years ago. She has been on antibiotics (abx) for about four plus years. She has been on rotating abx for almost two years. She changes meds every two weeks and does not come off. Our ENT at home wanted to do more surgery. Our ENT (out of state) was happy when our pulmo found that the rotating abx worked well. Since fall, the abx have decreased in effectiveness. She has switched early about four or five times since fall. She switched early a week ago and is switching early tomorrow too. She is on her normal advair (250/50 for a 43 pound kid), taking xopenex every 3 to 4 hours and just had pulmicort twice daily added to the mix. Oh, did I mention that she is almost to her red zone with peak flows. Her sinus infections cause her asthma to go bonkers. I am concerned that we are going to have to try something more invasive to get these infections under control. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2005 Report Share Posted February 11, 2005 Any ideas about how to treat a sinus infection? is almost seven and has had sinus infections since she started developing sinuses (we're not born with them). She had sinus surgery two years ago. She has been on antibiotics (abx) for about four plus years. She has been on rotating abx for almost two years. She changes meds every two weeks and does not come off. Our ENT at home wanted to do more surgery. Our ENT (out of state) was happy when our pulmo found that the rotating abx worked well. Since fall, the abx have decreased in effectiveness. She has switched early about four or five times since fall. She switched early a week ago and is switching early tomorrow too. She is on her normal advair (250/50 for a 43 pound kid), taking xopenex every 3 to 4 hours and just had pulmicort twice daily added to the mix. Oh, did I mention that she is almost to her red zone with peak flows. Her sinus infections cause her asthma to go bonkers. I am concerned that we are going to have to try something more invasive to get these infections under control. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2005 Report Share Posted February 12, 2005 , I probably sound like a broken record about this and I can't remember if I've written you particularly on this issue, but has she seen an immunologist and had her immunoglobulin levels (including IgA, IgG, IgE, IgM; IgG subclasses; and had her antibody response to the Prevnar or Pneumovax vaccine) checked? I ask this b/c immune deficiencies can accompany mito and b/c I have a primary immune deficiency but no mito AND I spent 10 straight years on antibiotics plus one sinus surgery.... and, we didn't discover my primary immune deficiency (I have an IgA and polysaccharide antibody deficiency) until I, not my regular doctors, not even my ENT, started asking many more questions and pursuing the immune system route. The reason I started pursuing the immune system b/c I was trying to exhaust all resources as the ENT was recommending ANOTHER sinus surgery - and I hated my first surgery. If you want more info on this, just email me back and put my name in the subject area or email me personally and I will let you know what I know. You may have already explored her immune system so I don't want to write too much if this is already been determined to not be the problem. Also, many allergists say they are also " immunologists " - the specialty does go together in training BUT most allergists do not focus on primary immune deficiencies and will easily dismiss someone who is not having multiple pneumonias. This happened to me and then I went to a nationally recognized immunologist - he did a lot of blood work, diagnosed me, and I'm on gammaglobulin and have maybe 2 infections a year! Anne R - mom to Asher (mito, Complex III defect) and Sam (non- mito, primary immune deficiency) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2005 Report Share Posted February 12, 2005 , I probably sound like a broken record about this and I can't remember if I've written you particularly on this issue, but has she seen an immunologist and had her immunoglobulin levels (including IgA, IgG, IgE, IgM; IgG subclasses; and had her antibody response to the Prevnar or Pneumovax vaccine) checked? I ask this b/c immune deficiencies can accompany mito and b/c I have a primary immune deficiency but no mito AND I spent 10 straight years on antibiotics plus one sinus surgery.... and, we didn't discover my primary immune deficiency (I have an IgA and polysaccharide antibody deficiency) until I, not my regular doctors, not even my ENT, started asking many more questions and pursuing the immune system route. The reason I started pursuing the immune system b/c I was trying to exhaust all resources as the ENT was recommending ANOTHER sinus surgery - and I hated my first surgery. If you want more info on this, just email me back and put my name in the subject area or email me personally and I will let you know what I know. You may have already explored her immune system so I don't want to write too much if this is already been determined to not be the problem. Also, many allergists say they are also " immunologists " - the specialty does go together in training BUT most allergists do not focus on primary immune deficiencies and will easily dismiss someone who is not having multiple pneumonias. This happened to me and then I went to a nationally recognized immunologist - he did a lot of blood work, diagnosed me, and I'm on gammaglobulin and have maybe 2 infections a year! Anne R - mom to Asher (mito, Complex III defect) and Sam (non- mito, primary immune deficiency) Quote Link to comment Share on other sites More sharing options...
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