Re: Good morning all............

[Guest guest]

here checking in.. its 9:13am and Sherif, just left so I thought I would stay up and work on my last bit of homework for school.. today starts my finals .... I made it through the first semester of college guys/gals !!!! I got my one essay back yesterday and I got an A yes I said A lol ... this has been so hard for me , what a struggle . going to class when I can hardly get off the sofa, but as I look back over the last 3 months it went fast...wowww. but now after weds I am done until may 17th and my allied health and bio 111 starts.

love to all

Many Blessings and pain free day Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

[Guest guest]

here checking in.. its 9:13am and Sherif, just left so I thought I would stay up and work on my last bit of homework for school.. today starts my finals .... I made it through the first semester of college guys/gals !!!! I got my one essay back yesterday and I got an A yes I said A lol ... this has been so hard for me , what a struggle . going to class when I can hardly get off the sofa, but as I look back over the last 3 months it went fast...wowww. but now after weds I am done until may 17th and my allied health and bio 111 starts.

love to all

Many Blessings and pain free day Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

[Guest guest]

It's a beautiful morning here in NC after two days of much-needed

rain. I haven't posted often but I've learned so much from this group

since I discovered it a couple of months ago. Welcome to all who have

recently joined and my sympathies that you had to search for us. If

you care to know any more, here is my story. I'm curious to know how

common my course has been since my doctors leave me with the

impression that they still don't quite know what to do with me.

By profession I am a nurse but had never even heard of sarcoidosis

and especially not neurosarcoidosis until I was diagnosed in Nov

of '07. Exactly one year ago yesterday, April 28,2007, I began having

fever of 101.5 & 3-4 major night sweats per night which eventually

sent me to my truly wonderful PCP. Several CAT scans and many vials

of blood later I found myself in the Infectious Disease Clinic at

Duke where they eventually told me (again after many, many vials of

blood later) they didn't know what was wrong with me. To confuse

them further, my fevers had just about gone away completely and I

really had no other real complaints.

Because of an elevated ACE and a couple of very small but

disconcerting hilar lymph nodes my PCP continued to follow me with

some degree of puzzlement. He was really afraid that I had some kind

of lymphoma but my symptoms didn't fit that diaganosis either.

Within a couple of months, I began showing some neurological symptoms

(tremors especially in my hands, balance and equilibrium issues, and

vision problems) and I told myself that when someone else noticed, I

would call my doctor. So, by September's end, my PCP ordered yet

another CAT scan and admitted me to the Neuro Unit at Duke University

Hospital. A tentative diagnosis of NS was confirmed a few weeks later

by a biopsy of the lymph nodes in my chest and I was started on 60

mg of prednisone.

Unfortunately, within a couple of weeks I developed infection in both

my pancreas and in my gallbladder so the prednisone had to be

decreased to 40 mg to prepare me for surgery to remove my gallbladder

and the gallstones causing all of the problems. That happened in

January and all went well. Since then, I have had two MRI's. the

first one (Jan '07)showed a couple of new granulomas and my doctor

decreased my pred to 30 mg mainly b/c of side effects. The second

(April '07)) showed no further changes. I have an appt with the

neurologist at Duke next month. He has mentioned decreasing my pred

to 25 and possibly adding CellCept to the mix.

I haven't worked since Sept of last year mainly b/c of the continued

balance issues as well as some visual problems. Currently, my

biggest frustrations come from my decreased ability to think clearly

and the extreme fatigue. Not to mention the difficulty in planning

ahead b/c of not knowing how I will feel from day to day.

I hope I haven't overstepped my bounds by unloading. Hopefully, my

experience will strike a common chord with someone and help you know

that you are not alone. This group is great for that.

All the best to you,

Sharon in NC

Try to laugh every day. " A merry heart doeth good like a medicine "

[Guest guest]

It's a beautiful morning here in NC after two days of much-needed

rain. I haven't posted often but I've learned so much from this group

since I discovered it a couple of months ago. Welcome to all who have

recently joined and my sympathies that you had to search for us. If

you care to know any more, here is my story. I'm curious to know how

common my course has been since my doctors leave me with the

impression that they still don't quite know what to do with me.

By profession I am a nurse but had never even heard of sarcoidosis

and especially not neurosarcoidosis until I was diagnosed in Nov

of '07. Exactly one year ago yesterday, April 28,2007, I began having

fever of 101.5 & 3-4 major night sweats per night which eventually

sent me to my truly wonderful PCP. Several CAT scans and many vials

of blood later I found myself in the Infectious Disease Clinic at

Duke where they eventually told me (again after many, many vials of

blood later) they didn't know what was wrong with me. To confuse

them further, my fevers had just about gone away completely and I

really had no other real complaints.

Because of an elevated ACE and a couple of very small but

disconcerting hilar lymph nodes my PCP continued to follow me with

some degree of puzzlement. He was really afraid that I had some kind

of lymphoma but my symptoms didn't fit that diaganosis either.

Within a couple of months, I began showing some neurological symptoms

(tremors especially in my hands, balance and equilibrium issues, and

vision problems) and I told myself that when someone else noticed, I

would call my doctor. So, by September's end, my PCP ordered yet

another CAT scan and admitted me to the Neuro Unit at Duke University

Hospital. A tentative diagnosis of NS was confirmed a few weeks later

by a biopsy of the lymph nodes in my chest and I was started on 60

mg of prednisone.

Unfortunately, within a couple of weeks I developed infection in both

my pancreas and in my gallbladder so the prednisone had to be

decreased to 40 mg to prepare me for surgery to remove my gallbladder

and the gallstones causing all of the problems. That happened in

January and all went well. Since then, I have had two MRI's. the

first one (Jan '07)showed a couple of new granulomas and my doctor

decreased my pred to 30 mg mainly b/c of side effects. The second

(April '07)) showed no further changes. I have an appt with the

neurologist at Duke next month. He has mentioned decreasing my pred

to 25 and possibly adding CellCept to the mix.

I haven't worked since Sept of last year mainly b/c of the continued

balance issues as well as some visual problems. Currently, my

biggest frustrations come from my decreased ability to think clearly

and the extreme fatigue. Not to mention the difficulty in planning

ahead b/c of not knowing how I will feel from day to day.

I hope I haven't overstepped my bounds by unloading. Hopefully, my

experience will strike a common chord with someone and help you know

that you are not alone. This group is great for that.

All the best to you,

Sharon in NC

Try to laugh every day. " A merry heart doeth good like a medicine "

[Guest guest]

Congratulations ! That is a huge accomplishment. I am so glad you made it through the first semester without any setbacks. Good luck on your finals. I'll be praying for you. ChristyJessicAbouhamama@... wrote: here checking in.. its 9:13am and Sherif, just left so I thought I would stay up and work on my last bit of homework for school.. today starts my finals .... I

made it through the first semester of college guys/gals !!!! I got my one essay back yesterday and I got an A yes I said A lol ... this has been so hard for me , what a struggle . going to class when I can hardly get off the sofa, but as I look back over the last 3 months it went fast...wowww. but now after weds I am done until may 17th and my allied health and bio 111 starts. love to all Many Blessings and pain free day Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Congratulations ! That is a huge accomplishment. I am so glad you made it through the first semester without any setbacks. Good luck on your finals. I'll be praying for you. ChristyJessicAbouhamama@... wrote: here checking in.. its 9:13am and Sherif, just left so I thought I would stay up and work on my last bit of homework for school.. today starts my finals .... I

made it through the first semester of college guys/gals !!!! I got my one essay back yesterday and I got an A yes I said A lol ... this has been so hard for me , what a struggle . going to class when I can hardly get off the sofa, but as I look back over the last 3 months it went fast...wowww. but now after weds I am done until may 17th and my allied health and bio 111 starts. love to all Many Blessings and pain free day Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Good Morning to everyone. I am reletively new to the group, but I am doing ok right now. My facial palsy is still trying to hang in there. But as I start getting some of the nerves back, it almost feels weird, because the palsy has been there for so long. I see my neuro in 2 weeks. Won't know what the plan of action is until I see him, again. I am the first one with NS that my Family doc and my neuro has seen. I had a second opinion with a neuro in Iowa City (the Mayo Clinic of Iowa), and he's been in practice for 43 years now. I am his 3rd. But, they still don't know what to do. It really can be very discouraging at times when you know something inside of you just isn't right, and you are in alot of pain, but doctors don't seem to take you very seriously. I can relate to what said in one of the other emails, about having a hard time getting out of bed or off the sofa some days. I have arthritis setting in already in my legs and it hurts SO

bad at times to move. If I squat down to put somethng in the bottom of the fridge, I can't get back up. Some days my head hurts soo bad from the pressure. I have a scheduled EMG for May 8th, kindof scared. I heard that they hurt. But, just a quick sign off, I pray for each and every one of us that has this nasty disease. That includes the new people, too! Christy P.S. Thank you, for being there for me! Darlene wrote: First of all, WELCOME to all the new

members............gang, we are now 517 strong! We have several new members so let's have a roll call and check in...........I know we are ALL sick and most of the time it is an effort to even get online, but PLEASE send in an email saying "hello, I am ok", at least. If you want, please bring us up to date on YOU! We all worry when we do not hear from you for a while and it will help the new members also. To the new members, IF you have not posted yet, please do so and let us get to know you. Tell us about yourself, your symptoms, etc..........questions.........whatever....... There are so many knowledgeable people

on the list - from all walks of life -- so you will get some answers to your questions. Most are willing to share their experiences.... We are a tight knit group and really DO CARE about each other, so join in and let us hear from you. I will be around all day but will be in and out. I have to help my daughter at her business -- (I help answer the phones) for a while today.........so it might be a while before I can answer anyone's email. Hope you all have a "good, pain free" day..........those are rare but beautiful, aren't they?? :-) Hugs to all, DarleneNS Co-Owner/Moderator

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Good Morning to everyone. I am reletively new to the group, but I am doing ok right now. My facial palsy is still trying to hang in there. But as I start getting some of the nerves back, it almost feels weird, because the palsy has been there for so long. I see my neuro in 2 weeks. Won't know what the plan of action is until I see him, again. I am the first one with NS that my Family doc and my neuro has seen. I had a second opinion with a neuro in Iowa City (the Mayo Clinic of Iowa), and he's been in practice for 43 years now. I am his 3rd. But, they still don't know what to do. It really can be very discouraging at times when you know something inside of you just isn't right, and you are in alot of pain, but doctors don't seem to take you very seriously. I can relate to what said in one of the other emails, about having a hard time getting out of bed or off the sofa some days. I have arthritis setting in already in my legs and it hurts SO

bad at times to move. If I squat down to put somethng in the bottom of the fridge, I can't get back up. Some days my head hurts soo bad from the pressure. I have a scheduled EMG for May 8th, kindof scared. I heard that they hurt. But, just a quick sign off, I pray for each and every one of us that has this nasty disease. That includes the new people, too! Christy P.S. Thank you, for being there for me! Darlene wrote: First of all, WELCOME to all the new

members............gang, we are now 517 strong! We have several new members so let's have a roll call and check in...........I know we are ALL sick and most of the time it is an effort to even get online, but PLEASE send in an email saying "hello, I am ok", at least. If you want, please bring us up to date on YOU! We all worry when we do not hear from you for a while and it will help the new members also. To the new members, IF you have not posted yet, please do so and let us get to know you. Tell us about yourself, your symptoms, etc..........questions.........whatever....... There are so many knowledgeable people

on the list - from all walks of life -- so you will get some answers to your questions. Most are willing to share their experiences.... We are a tight knit group and really DO CARE about each other, so join in and let us hear from you. I will be around all day but will be in and out. I have to help my daughter at her business -- (I help answer the phones) for a while today.........so it might be a while before I can answer anyone's email. Hope you all have a "good, pain free" day..........those are rare but beautiful, aren't they?? :-) Hugs to all, DarleneNS Co-Owner/Moderator

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

....checking in ....

I know i don't post much, but have been reading the daily

posts...even having been in remission (I think) for a time, I still

have measurable memory problems so find it difficult keeping track of

who's who - all my best thoughts for all those battling their many

battles. I, too , had wondered what had been keeping Becky from

joining us - I hope she is doing well.

I have juts been to my Nephrologist (kidney Dr - a guy who tells you

to pee in a cup, just to tell me I still add too much salt to my

food). I had been Dxd with NeuroSarcoid in Dec 1995, treated with

Pred, and Cyclosporine. As the cyclosporine is known to be toxic ro

the kidneys, I was referred to a Nephrologist to monitor renal

function. I have been in remmission since 1999, but still battle with

various 'brain blips' - memory, speech-blanks (aphasia), slight

tremors, and my eyes (both) still have some retinal scarring. If only

I could blame it all on middle age, but .....

Here in southern Ontario, we have been enjoying some warmer weather,

but not nearly enough rain. I will be taking my yearly trip to visit a

sister of mine in Yarmouth, Maine in June ( anyone in this group from

Yarmouth, or freepoert?), so hopefully will have some nice weather.

Mike

ps. I had stepped into the chat around 16:00 on Sunday - noone else

was there - maybe next week

pps. Is it the N-Sarc or middle age to blmae for my crappy spellnig ?

[Guest guest]

....checking in ....

I know i don't post much, but have been reading the daily

posts...even having been in remission (I think) for a time, I still

have measurable memory problems so find it difficult keeping track of

who's who - all my best thoughts for all those battling their many

battles. I, too , had wondered what had been keeping Becky from

joining us - I hope she is doing well.

I have juts been to my Nephrologist (kidney Dr - a guy who tells you

to pee in a cup, just to tell me I still add too much salt to my

food). I had been Dxd with NeuroSarcoid in Dec 1995, treated with

Pred, and Cyclosporine. As the cyclosporine is known to be toxic ro

the kidneys, I was referred to a Nephrologist to monitor renal

function. I have been in remmission since 1999, but still battle with

various 'brain blips' - memory, speech-blanks (aphasia), slight

tremors, and my eyes (both) still have some retinal scarring. If only

I could blame it all on middle age, but .....

Here in southern Ontario, we have been enjoying some warmer weather,

but not nearly enough rain. I will be taking my yearly trip to visit a

sister of mine in Yarmouth, Maine in June ( anyone in this group from

Yarmouth, or freepoert?), so hopefully will have some nice weather.

Mike

ps. I had stepped into the chat around 16:00 on Sunday - noone else

was there - maybe next week

pps. Is it the N-Sarc or middle age to blmae for my crappy spellnig ?

[Guest guest]

Marla,

you're quite right...spell check...thats it...

...if only I could remember to use it

mikescott

>

> > ...checking in ....

> > I know i don't post much, but have been reading the daily

> > posts...even having been in remission (I think) for a time, I still

> > have measurable memory problems so find it difficult keeping track of

> > who's who - all my best thoughts for all those battling their many

> > battles. I, too , had wondered what had been keeping Becky from

> > joining us - I hope she is doing well.

> > I have juts been to my Nephrologist (kidney Dr - a guy who tells you

> > to pee in a cup, just to tell me I still add too much salt to my

> > food). I had been Dxd with NeuroSarcoid in Dec 1995, treated with

> > Pred, and Cyclosporine. As the cyclosporine is known to be toxic ro

> > the kidneys, I was referred to a Nephrologist to monitor renal

> > function. I have been in remmission since 1999, but still battle with

> > various 'brain blips' - memory, speech-blanks (aphasia), slight

> > tremors, and my eyes (both) still have some retinal scarring. If only

> > I could blame it all on middle age, but .....

> > Here in southern Ontario, we have been enjoying some warmer weather,

> > but not nearly enough rain. I will be taking my yearly trip to visit a

> > sister of mine in Yarmouth, Maine in June ( anyone in this group from

> > Yarmouth, or freepoert?), so hopefully will have some nice weather.

> >

> > Mike

> >

> > ps. I had stepped into the chat around 16:00 on Sunday - noone else

> > was there - maybe next week

> > pps. Is it the N-Sarc or middle age to blmae for my crappy spellnig ?

> >

> >

> >

> >

>

>

>

> --

> Marla Bramer

> Independent Beauty Consultant

> Kay

>

> mbramer@...

> www.marykay.com/mbramer

>

[Guest guest]

Marla,

you're quite right...spell check...thats it...

...if only I could remember to use it

mikescott

>

> > ...checking in ....

> > I know i don't post much, but have been reading the daily

> > posts...even having been in remission (I think) for a time, I still

> > have measurable memory problems so find it difficult keeping track of

> > who's who - all my best thoughts for all those battling their many

> > battles. I, too , had wondered what had been keeping Becky from

> > joining us - I hope she is doing well.

> > I have juts been to my Nephrologist (kidney Dr - a guy who tells you

> > to pee in a cup, just to tell me I still add too much salt to my

> > food). I had been Dxd with NeuroSarcoid in Dec 1995, treated with

> > Pred, and Cyclosporine. As the cyclosporine is known to be toxic ro

> > the kidneys, I was referred to a Nephrologist to monitor renal

> > function. I have been in remmission since 1999, but still battle with

> > various 'brain blips' - memory, speech-blanks (aphasia), slight

> > tremors, and my eyes (both) still have some retinal scarring. If only

> > I could blame it all on middle age, but .....

> > Here in southern Ontario, we have been enjoying some warmer weather,

> > but not nearly enough rain. I will be taking my yearly trip to visit a

> > sister of mine in Yarmouth, Maine in June ( anyone in this group from

> > Yarmouth, or freepoert?), so hopefully will have some nice weather.

> >

> > Mike

> >

> > ps. I had stepped into the chat around 16:00 on Sunday - noone else

> > was there - maybe next week

> > pps. Is it the N-Sarc or middle age to blmae for my crappy spellnig ?

> >

> >

> >

> >

>

>

>

> --

> Marla Bramer

> Independent Beauty Consultant

> Kay

>

> mbramer@...

> www.marykay.com/mbramer

>

[Guest guest]

,

Congrats - I know that it has not been the easiest thing for you to do

so bask in the glow of a well deserved " A "

Terri G.

>

> here checking in.. its 9:13am and Sherif, just left so I

thought I

> would stay up and work on my last bit of homework for school.. today

starts

> my finals .... I made it through the first semester of college

guys/gals !!!!

> I got my one essay back yesterday and I got an A yes I said A lol ...

this

> has been so hard for me , what a struggle . going to class when I can

hardly

> get off the sofa, but as I look back over the last 3 months it went

> fast...wowww. but now after weds I am done until may 17th and my

allied health and bio

> 111 starts.

> love to all

>

> Many Blessings and pain free day

>

>

>

>

>

> **************Need a new ride? Check out the largest site for U.S.

used car

> listings at AOL Autos.

> (http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

[Guest guest]

,

Congrats - I know that it has not been the easiest thing for you to do

so bask in the glow of a well deserved " A "

Terri G.

>

> here checking in.. its 9:13am and Sherif, just left so I

thought I

> would stay up and work on my last bit of homework for school.. today

starts

> my finals .... I made it through the first semester of college

guys/gals !!!!

> I got my one essay back yesterday and I got an A yes I said A lol ...

this

> has been so hard for me , what a struggle . going to class when I can

hardly

> get off the sofa, but as I look back over the last 3 months it went

> fast...wowww. but now after weds I am done until may 17th and my

allied health and bio

> 111 starts.

> love to all

>

> Many Blessings and pain free day

>

>

>

>

>

> **************Need a new ride? Check out the largest site for U.S.

used car

> listings at AOL Autos.

> (http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

[Guest guest]

S. checking in. I guess this has been my year/spring for sinus/gums/salivary glands/eyes problems. General aches and pains, some specific to my arms and right leg and some sharp pains in my back. It has also affected my fatigue level as any extra stresses would. I have been so fatigued and weak that I haven't left the house for a few weeks. I feel too tired to even get dressed. But I plod along like most of the rest of you. I've upped my MSM level and when i ran out for a day or two, man on man , did I notice the difference. I've had some extra family issues which didn't help matters either. Most of them have been resolved...to a degree. I'm plodding along on NutriSystem and have lost 53 lbs. The more active I am the more I lose. So the last couple on weeks it's really slowed down. At

least I will be more comfortable with the heat this summer. YAHOO to that. I don't always have the expertise or knowledge to help with the questions some posters have but I do read the posts and offer up my prayers for all who post. I need to see the dermatologist about a few suspicious spots but otherwise I'm hanging in there. That last flare with the gums and salivary glands really did me in and it's taking a while to gain the ground back that I lost. But I'll get there. The weather starting to warm up will help, too. Thanks for all the moderators do! hugs S.Darlene wrote: First of all, WELCOME to all the new members............gang, we are now 517 strong! We have several new members so let's have a roll call and check in...........I know we are ALL sick and most of the time it is an effort to even get online, but PLEASE send in an email saying "hello, I am ok", at least. If you want, please bring us up to date on YOU! We all worry when we do not hear from you for a while and it will help the new members also. To the new members, IF you have not posted yet, please do so and let us get to know

you. Tell us about yourself, your symptoms, etc..........questions.........whatever....... There are so many knowledgeable people on the list - from all walks of life -- so you will get some answers to your questions. Most are willing to share their experiences.... We are a tight knit group and really DO CARE about each other, so join in and let us hear from you. I will be around all day but will be in and out. I have to help my daughter at her business -- (I help answer the phones) for a while today.........so it might be a while before I can answer anyone's email.

Hope you all have a "good, pain free" day..........those are rare but beautiful, aren't they?? :-) Hugs to all, DarleneNS Co-Owner/Moderator 29:11, For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future. "If anyone would come after Me, he must deny himself" ( 16:24 NIV).

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

S. checking in. I guess this has been my year/spring for sinus/gums/salivary glands/eyes problems. General aches and pains, some specific to my arms and right leg and some sharp pains in my back. It has also affected my fatigue level as any extra stresses would. I have been so fatigued and weak that I haven't left the house for a few weeks. I feel too tired to even get dressed. But I plod along like most of the rest of you. I've upped my MSM level and when i ran out for a day or two, man on man , did I notice the difference. I've had some extra family issues which didn't help matters either. Most of them have been resolved...to a degree. I'm plodding along on NutriSystem and have lost 53 lbs. The more active I am the more I lose. So the last couple on weeks it's really slowed down. At

least I will be more comfortable with the heat this summer. YAHOO to that. I don't always have the expertise or knowledge to help with the questions some posters have but I do read the posts and offer up my prayers for all who post. I need to see the dermatologist about a few suspicious spots but otherwise I'm hanging in there. That last flare with the gums and salivary glands really did me in and it's taking a while to gain the ground back that I lost. But I'll get there. The weather starting to warm up will help, too. Thanks for all the moderators do! hugs S.Darlene wrote: First of all, WELCOME to all the new members............gang, we are now 517 strong! We have several new members so let's have a roll call and check in...........I know we are ALL sick and most of the time it is an effort to even get online, but PLEASE send in an email saying "hello, I am ok", at least. If you want, please bring us up to date on YOU! We all worry when we do not hear from you for a while and it will help the new members also. To the new members, IF you have not posted yet, please do so and let us get to know

you. Tell us about yourself, your symptoms, etc..........questions.........whatever....... There are so many knowledgeable people on the list - from all walks of life -- so you will get some answers to your questions. Most are willing to share their experiences.... We are a tight knit group and really DO CARE about each other, so join in and let us hear from you. I will be around all day but will be in and out. I have to help my daughter at her business -- (I help answer the phones) for a while today.........so it might be a while before I can answer anyone's email.

Hope you all have a "good, pain free" day..........those are rare but beautiful, aren't they?? :-) Hugs to all, DarleneNS Co-Owner/Moderator 29:11, For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future. "If anyone would come after Me, he must deny himself" ( 16:24 NIV).

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

HELP ME PLEASE I WANT TO STOP GETTING THE E-MAILS FROM THE SARCOID GROUP, IT'S TOO MUCH JUST OVERWHELMING HELP ME PLEASE!!!!!!JessicAbouhamama@... wrote: here checking in.. its 9:13am and Sherif, just left so I thought I would stay up and work on my last bit of homework for school.. today starts my finals .... I made it through the first semester of college guys/gals !!!! I got my one essay back

yesterday and I got an A yes I said A lol ... this has been so hard for me , what a struggle . going to class when I can hardly get off the sofa, but as I look back over the last 3 months it went fast...wowww. but now after weds I am done until may 17th and my allied health and bio 111 starts. love to all Many Blessings and pain free day Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

[Guest guest]

,

You will have to go in and change your preference for

receiving emails............you need to set it to Digest (which

will give you fewer emails grouped in groups of 20, I

believe) or set it to No Mail ---- which will give you just

that---- No Mail......we cannot do it for you, you will

have to do it yourself.

http://groups.yahoo.com/group/Neurosarcoidosis/join

Hugs,

DarleneNS Co-Owner/Moderator

Re: Good morning all............

HELP ME PLEASE I WANT TO STOP GETTING THE E-MAILS FROM THE SARCOID GROUP, IT'S TOO MUCH JUST OVERWHELMING HELP ME PLEASE!!!!!!

..

[Guest guest]

GREETINGS DARLENE AND ALL MEMBERS,

I WAS DISAPPOINTED IN THE NUMBER OF WELCOME MESSAGES I RECEIVED FROM

THE GROUP.OUT OF A GROUP OF FIVE HUNDRED' MAYBE FOUR MEMEBERS GREETED ME

AND SAID HELLO.DESPITE THAT I HAVE BEEN ENCOURAGED BY THE POSTING AND

ALL THE INFORMATION MEMBERS HAVE SHARED.I WILL CONTINUE TO READ EACH

MESSAGE SENT AND TRY TO ENCOURAGE'SHARE ,DEPEND ON THE GROUP AND LOOK

FORWARD TO HEARING FROM OTHER MEMBERS SO I CAN GET TO KNOW YOU ALL

>

> First of all, WELCOME to all the new members............gang, we are

now 517 strong!

> We have several new members so let's have a roll call and check

in...........I know we

> are ALL sick and most of the time it is an effort to even get online,

but PLEASE send

> in an email saying " hello, I am ok " , at least. If you want, please

bring us up to date

> on YOU! We all worry when we do not hear from you for a while and it

will help

> the new members also.

>

> To the new members, IF you have not posted yet, please do so and let

us get to know

> you. Tell us about yourself, your symptoms,

etc..........questions.........whatever.......

> There are so many knowledgeable people on the list - from all walks of

life -- so you

> will get some answers to your questions. Most are willing to share

their experiences....

> We are a tight knit group and really DO CARE about each other, so join

in and let us

> hear from you.

>

> I will be around all day but will be in and out. I have to help my

daughter at her

> business -- (I help answer the phones) for a while today.........so it

might be a while

> before I can answer anyone's email.

>

> Hope you all have a " good, pain free " day..........those are rare but

beautiful, aren't

> they?? :-)

>

> Hugs to all,

> Darlene

> NS Co-Owner/Moderator

>