Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 I read your post and I feel so bad for what you are going through. I wish they would require ALL the medical profession to take a course in this monster we have been afflicted with. Right now I am going through something, I don't know what. I hope and pray it is just a UTI and not a flare up of some sort. My tongue feels fat and I can't speak clearly. I also am so dizzy and tired today. My PCP is off on Mondays so I have to deal with her assistant. I don't trust them I believe that is how I got sick. I had 3 different things I was told I had before my Nero had me come to the UW hospital and diagnosed with with NS. Any way that is going back to something I can't do anything about. I pray for you and hope you have some results soon. I also hope they are good ones. Thinking of you ALL Jackie [sPAM] Checking in Lots going on and not a lot of time to spend.. but I've had a couple more trips to the Emergency Room over the last 2 weeks and I'm getting pretty scared.. They all seem to agree that its "NOT MY SACOID" but they refuse to draw any blood because they say that that's the initial way to diagnosis sarcoid but not the way to test for a flare.. but yet again they can not tell me how to check for that.. I know that's total "BS" my MRI without contrast is negative.. I can't have the contrast because my renal profile is high.. that alone should throw up a red flag that maybe, "SARCOID" has now entered into my kidneys.. I am freaking out!! Tracie, you will be glad to know tha my diabetic doctor realizes I have fallen into the "Vanderbilt Hole" and I saw a new PCP on Friday outside the system.. she says all this could be my sarcoid.. but it could be Arterial Vasculitis.. that is causing my vertigo, the pain and the horrilbe ringing/distorted sounds in my r ear.. and my vision is horrible. she says if this is the arterial vasculitis and left untreated I will go blind.. OMG!! and get this.. the blood test that she drew was "crp" and "sed rate" the very two test that I have been begging Vanderbilt doctors to draw for months and they refuse... because they are certain that its not the sarcoid.. plus they also told me.. that "for you, there is no futher treatment for it" Now for the rest of the story.. my email is gonna have to change for a couple of weeks.. I've changed it in yahoo so I should be getting the emails ok.. if not my address is topdatster (AT) gmail (DOT) com or stopdat2005 (AT) yahoo (DOT) com.. seems I forgot to pay the bill... and not being this far into the month I don't have the money to pay it till next month.. ohh yeah, please I am on disability and "WANT" to be.. "NOT"!! Could somebody please take me off this train? I want OFF!Sorry guys, for the rant.. as I've mentioned I think. I'm am freaking totally out.. can't get anyone to help me yet.. but hopefully I will soon.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 I read your post and I feel so bad for what you are going through. I wish they would require ALL the medical profession to take a course in this monster we have been afflicted with. Right now I am going through something, I don't know what. I hope and pray it is just a UTI and not a flare up of some sort. My tongue feels fat and I can't speak clearly. I also am so dizzy and tired today. My PCP is off on Mondays so I have to deal with her assistant. I don't trust them I believe that is how I got sick. I had 3 different things I was told I had before my Nero had me come to the UW hospital and diagnosed with with NS. Any way that is going back to something I can't do anything about. I pray for you and hope you have some results soon. I also hope they are good ones. Thinking of you ALL Jackie [sPAM] Checking in Lots going on and not a lot of time to spend.. but I've had a couple more trips to the Emergency Room over the last 2 weeks and I'm getting pretty scared.. They all seem to agree that its "NOT MY SACOID" but they refuse to draw any blood because they say that that's the initial way to diagnosis sarcoid but not the way to test for a flare.. but yet again they can not tell me how to check for that.. I know that's total "BS" my MRI without contrast is negative.. I can't have the contrast because my renal profile is high.. that alone should throw up a red flag that maybe, "SARCOID" has now entered into my kidneys.. I am freaking out!! Tracie, you will be glad to know tha my diabetic doctor realizes I have fallen into the "Vanderbilt Hole" and I saw a new PCP on Friday outside the system.. she says all this could be my sarcoid.. but it could be Arterial Vasculitis.. that is causing my vertigo, the pain and the horrilbe ringing/distorted sounds in my r ear.. and my vision is horrible. she says if this is the arterial vasculitis and left untreated I will go blind.. OMG!! and get this.. the blood test that she drew was "crp" and "sed rate" the very two test that I have been begging Vanderbilt doctors to draw for months and they refuse... because they are certain that its not the sarcoid.. plus they also told me.. that "for you, there is no futher treatment for it" Now for the rest of the story.. my email is gonna have to change for a couple of weeks.. I've changed it in yahoo so I should be getting the emails ok.. if not my address is topdatster (AT) gmail (DOT) com or stopdat2005 (AT) yahoo (DOT) com.. seems I forgot to pay the bill... and not being this far into the month I don't have the money to pay it till next month.. ohh yeah, please I am on disability and "WANT" to be.. "NOT"!! Could somebody please take me off this train? I want OFF!Sorry guys, for the rant.. as I've mentioned I think. I'm am freaking totally out.. can't get anyone to help me yet.. but hopefully I will soon.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Jackie, from the way you are describing it.....it could be a neurological problem. I'd call the neurologist again and make an appointment. As soon as possible! hugs S.jackie wrote: I read your post and I feel so bad for what you are going through. I wish they would require ALL the medical profession to take a course in this monster we have been afflicted with. Right now I am going through something, I don't know what. I hope and pray it is just a UTI and not a flare up of some sort. My tongue feels fat and I can't speak clearly. I also am so dizzy and tired today. My PCP is off on Mondays so I have to deal with her assistant. I don't trust them I believe that is how I got sick. I had 3 different things I was told I had before my Nero had me come to the UW hospital and diagnosed with with NS. Any way that is going back to something I can't do anything about. I pray for you and hope you have some results soon. I also hope they are good ones. Thinking of you ALL Jackie [sPAM] Checking in Lots going on and not a lot of time to spend.. but I've had a couple more trips to the Emergency Room over the last 2 weeks and I'm getting pretty scared.. They all seem to agree that its "NOT MY SACOID" but they refuse to draw any blood because they say that that's the initial way to diagnosis sarcoid but not the way to test for a flare.. but yet again they can not tell me how to check for that.. I know that's total "BS" my MRI without contrast is negative.. I can't have the contrast because my renal profile is high.. that alone should throw up a red flag that maybe, "SARCOID" has now entered into my kidneys.. I am freaking out!! Tracie, you will be glad to know tha my diabetic doctor realizes I have fallen into the "Vanderbilt Hole" and I saw a new PCP on Friday outside the system.. she says all this could be my sarcoid.. but it could be Arterial Vasculitis.. that is causing my vertigo, the pain and the horrilbe ringing/distorted sounds in my r ear.. and my vision is horrible. she says if this is the arterial vasculitis and left untreated I will go blind.. OMG!! and get this.. the blood test that she drew was "crp" and "sed rate" the very two test that I have been begging Vanderbilt doctors to draw for months and they refuse... because they are certain that its not the sarcoid.. plus they also told me.. that "for you, there is no futher treatment for it" Now for the rest of the story.. my email is gonna have to change for a couple of weeks.. I've changed it in yahoo so I should be getting the emails ok.. if not my address is topdatster (AT) gmail (DOT) com or stopdat2005 (AT) yahoo (DOT) com.. seems I forgot to pay the bill... and not being this far into the month I don't have the money to pay it till next month.. ohh yeah, please I am on disability and "WANT" to be.. "NOT"!! Could somebody please take me off this train? I want OFF!Sorry guys, for the rant.. as I've mentioned I think. I'm am freaking totally out.. can't get anyone to help me yet.. but hopefully I will soon.. 29:11, For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future. "If anyone would come after Me, he must deny himself" ( 16:24 NIV). Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Jackie, from the way you are describing it.....it could be a neurological problem. I'd call the neurologist again and make an appointment. As soon as possible! hugs S.jackie wrote: I read your post and I feel so bad for what you are going through. I wish they would require ALL the medical profession to take a course in this monster we have been afflicted with. Right now I am going through something, I don't know what. I hope and pray it is just a UTI and not a flare up of some sort. My tongue feels fat and I can't speak clearly. I also am so dizzy and tired today. My PCP is off on Mondays so I have to deal with her assistant. I don't trust them I believe that is how I got sick. I had 3 different things I was told I had before my Nero had me come to the UW hospital and diagnosed with with NS. Any way that is going back to something I can't do anything about. I pray for you and hope you have some results soon. I also hope they are good ones. Thinking of you ALL Jackie [sPAM] Checking in Lots going on and not a lot of time to spend.. but I've had a couple more trips to the Emergency Room over the last 2 weeks and I'm getting pretty scared.. They all seem to agree that its "NOT MY SACOID" but they refuse to draw any blood because they say that that's the initial way to diagnosis sarcoid but not the way to test for a flare.. but yet again they can not tell me how to check for that.. I know that's total "BS" my MRI without contrast is negative.. I can't have the contrast because my renal profile is high.. that alone should throw up a red flag that maybe, "SARCOID" has now entered into my kidneys.. I am freaking out!! Tracie, you will be glad to know tha my diabetic doctor realizes I have fallen into the "Vanderbilt Hole" and I saw a new PCP on Friday outside the system.. she says all this could be my sarcoid.. but it could be Arterial Vasculitis.. that is causing my vertigo, the pain and the horrilbe ringing/distorted sounds in my r ear.. and my vision is horrible. she says if this is the arterial vasculitis and left untreated I will go blind.. OMG!! and get this.. the blood test that she drew was "crp" and "sed rate" the very two test that I have been begging Vanderbilt doctors to draw for months and they refuse... because they are certain that its not the sarcoid.. plus they also told me.. that "for you, there is no futher treatment for it" Now for the rest of the story.. my email is gonna have to change for a couple of weeks.. I've changed it in yahoo so I should be getting the emails ok.. if not my address is topdatster (AT) gmail (DOT) com or stopdat2005 (AT) yahoo (DOT) com.. seems I forgot to pay the bill... and not being this far into the month I don't have the money to pay it till next month.. ohh yeah, please I am on disability and "WANT" to be.. "NOT"!! Could somebody please take me off this train? I want OFF!Sorry guys, for the rant.. as I've mentioned I think. I'm am freaking totally out.. can't get anyone to help me yet.. but hopefully I will soon.. 29:11, For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future. "If anyone would come after Me, he must deny himself" ( 16:24 NIV). Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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