Guest guest Posted February 11, 2005 Report Share Posted February 11, 2005 I was wondering how many people had their children's g-tubes placed endoscopically rather than through an operation, and for those of you who had the procedure done that way, did you have to have it removed endoscopically as well or did the docs just gently pull them out through the opening of the stomach to replace it with a mic-key button or other type? Joey had his placed this way and the docs now want to change it endoscopically again with sedation. It just seems a strange way to do it. I LOVED how Asenath and Zipporrah both had their mic-key buttons placed immediately rather than having the long tube for the first several weeks. Unfortunately Joey's long tube was placed in September or October of last year and " fell through the cracks " as they said for changing it to a mic-key button and the last foster parents didn't realize it was supposed to be changed or just didn't care to do so, so now we have to deal with it when we go back to Iowa City (1 1/2 hrs. from here) for his check-up. See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks like Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues... Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ... Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2005 Report Share Posted February 11, 2005 I was wondering how many people had their children's g-tubes placed endoscopically rather than through an operation, and for those of you who had the procedure done that way, did you have to have it removed endoscopically as well or did the docs just gently pull them out through the opening of the stomach to replace it with a mic-key button or other type? Joey had his placed this way and the docs now want to change it endoscopically again with sedation. It just seems a strange way to do it. I LOVED how Asenath and Zipporrah both had their mic-key buttons placed immediately rather than having the long tube for the first several weeks. Unfortunately Joey's long tube was placed in September or October of last year and " fell through the cracks " as they said for changing it to a mic-key button and the last foster parents didn't realize it was supposed to be changed or just didn't care to do so, so now we have to deal with it when we go back to Iowa City (1 1/2 hrs. from here) for his check-up. See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks like Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues... Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ... Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Quote Link to comment Share on other sites More sharing options...
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