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Lots going on and not a lot of time to spend.. but I've had a couple

more trips to the Emergency Room over the last 2 weeks and I'm

getting pretty scared.. They all seem to agree that its " NOT MY

SACOID " but they refuse to draw any blood because they say that

that's the initial way to diagnosis sarcoid but not the way to test

for a flare.. but yet again they can not tell me how to check for

that.. I know that's total " BS " my MRI without contrast is negative..

I can't have the contrast because my renal profile is high.. that

alone should throw up a red flag that maybe, " SARCOID " has now

entered into my kidneys.. I am freaking out!!

Tracie, you will be glad to know tha my diabetic doctor realizes I

have fallen into the " Vanderbilt Hole " and I saw a new PCP on Friday

outside the system.. she says all this could be my sarcoid.. but it

could be Arterial Vasculitis.. that is causing my vertigo, the pain

and the horrilbe ringing/distorted sounds in my r ear.. and my vision

is horrible. she says if this is the arterial vasculitis and left

untreated I will go blind.. OMG!! and get this.. the blood test that

she drew was " crp " and " sed rate " the very two test that I have been

begging Vanderbilt doctors to draw for months and they refuse...

because they are certain that its not the sarcoid.. plus they also

told me.. that " for you, there is no futher treatment for it "

Now for the rest of the story.. my email is gonna have to change for

a couple of weeks.. I've changed it in yahoo so I should be getting

the emails ok.. if not my address is topdatster@... or

stopdat2005@.... seems I forgot to pay the bill... and not

being this far into the month I don't have the money to pay it till

next month.. ohh yeah, please I am on disability and " WANT " to

be.. " NOT " !! Could somebody please take me off this train? I want

OFF!

Sorry guys, for the rant.. as I've mentioned I think. I'm am freaking

totally out.. can't get anyone to help me yet.. but hopefully I will

soon..

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Lots going on and not a lot of time to spend.. but I've had a couple

more trips to the Emergency Room over the last 2 weeks and I'm

getting pretty scared.. They all seem to agree that its " NOT MY

SACOID " but they refuse to draw any blood because they say that

that's the initial way to diagnosis sarcoid but not the way to test

for a flare.. but yet again they can not tell me how to check for

that.. I know that's total " BS " my MRI without contrast is negative..

I can't have the contrast because my renal profile is high.. that

alone should throw up a red flag that maybe, " SARCOID " has now

entered into my kidneys.. I am freaking out!!

Tracie, you will be glad to know tha my diabetic doctor realizes I

have fallen into the " Vanderbilt Hole " and I saw a new PCP on Friday

outside the system.. she says all this could be my sarcoid.. but it

could be Arterial Vasculitis.. that is causing my vertigo, the pain

and the horrilbe ringing/distorted sounds in my r ear.. and my vision

is horrible. she says if this is the arterial vasculitis and left

untreated I will go blind.. OMG!! and get this.. the blood test that

she drew was " crp " and " sed rate " the very two test that I have been

begging Vanderbilt doctors to draw for months and they refuse...

because they are certain that its not the sarcoid.. plus they also

told me.. that " for you, there is no futher treatment for it "

Now for the rest of the story.. my email is gonna have to change for

a couple of weeks.. I've changed it in yahoo so I should be getting

the emails ok.. if not my address is topdatster@... or

stopdat2005@.... seems I forgot to pay the bill... and not

being this far into the month I don't have the money to pay it till

next month.. ohh yeah, please I am on disability and " WANT " to

be.. " NOT " !! Could somebody please take me off this train? I want

OFF!

Sorry guys, for the rant.. as I've mentioned I think. I'm am freaking

totally out.. can't get anyone to help me yet.. but hopefully I will

soon..

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,

My heart goes out to you, hon..........you hang in there

and know we are here for you. I know what it is like to be

sick and have the Doc say "you are in remission"! That is

what mine told me nearly 2 years ago when I ended up in

the hospital about 2 weeks later and almost died! I think

it scared him tho, because he got me to Methodist Hospital

in Indy and saved my life. I know none of them knows a

lot about Sarcoid, but it DOES seem like they would be

willing to try anything to help! It is very frustrating, I know.

You just take care of yourself and I will keep you in my

prayers. And by the way, you know you can vent ANY

TIME you want! :-) That is what we are here for.

Love ya,

Darlene

NS Co-Owner/Moderator

Checking in

Lots going on and not a lot of time to spend.. but I've had a couple more trips to the Emergency Room over the last 2 weeks and I'm getting pretty scared.. They all seem to agree that its "NOT MY SACOID" but they refuse to draw any blood because they say that that's the initial way to diagnosis sarcoid but not the way to test for a flare.. but yet again they can not tell me how to check for that.. I know that's total "BS" my MRI without contrast is negative.. I can't have the contrast because my renal profile is high.. that alone should throw up a red flag that maybe, "SARCOID" has now entered into my kidneys.. I am freaking out!! Tracie, you will be glad to know tha my diabetic doctor realizes I have fallen into the "Vanderbilt Hole" and I saw a new PCP on Friday outside the system.. she says all this could be my sarcoid.. but it could be Arterial Vasculitis.. that is causing my vertigo, the pain and the horrilbe ringing/distorted sounds in my r ear.. and my vision is horrible. she says if this is the arterial vasculitis and left untreated I will go blind.. OMG!! and get this.. the blood test that she drew was "crp" and "sed rate" the very two test that I have been begging Vanderbilt doctors to draw for months and they refuse... because they are certain that its not the sarcoid.. plus they also told me.. that "for you, there is no futher treatment for it" Now for the rest of the story.. my email is gonna have to change for a couple of weeks.. I've changed it in yahoo so I should be getting the emails ok.. if not my address is topdatster (AT) gmail (DOT) com or stopdat2005 (AT) yahoo (DOT) com.. seems I forgot to pay the bill... and not being this far into the month I don't have the money to pay it till next month.. ohh yeah, please I am on disability and "WANT" to be.. "NOT"!! Could somebody please take me off this train? I want OFF!Sorry guys, for the rant.. as I've mentioned I think. I'm am freaking totally out.. can't get anyone to help me yet.. but hopefully I will soon..

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Guest guest

,

My heart goes out to you, hon..........you hang in there

and know we are here for you. I know what it is like to be

sick and have the Doc say "you are in remission"! That is

what mine told me nearly 2 years ago when I ended up in

the hospital about 2 weeks later and almost died! I think

it scared him tho, because he got me to Methodist Hospital

in Indy and saved my life. I know none of them knows a

lot about Sarcoid, but it DOES seem like they would be

willing to try anything to help! It is very frustrating, I know.

You just take care of yourself and I will keep you in my

prayers. And by the way, you know you can vent ANY

TIME you want! :-) That is what we are here for.

Love ya,

Darlene

NS Co-Owner/Moderator

Checking in

Lots going on and not a lot of time to spend.. but I've had a couple more trips to the Emergency Room over the last 2 weeks and I'm getting pretty scared.. They all seem to agree that its "NOT MY SACOID" but they refuse to draw any blood because they say that that's the initial way to diagnosis sarcoid but not the way to test for a flare.. but yet again they can not tell me how to check for that.. I know that's total "BS" my MRI without contrast is negative.. I can't have the contrast because my renal profile is high.. that alone should throw up a red flag that maybe, "SARCOID" has now entered into my kidneys.. I am freaking out!! Tracie, you will be glad to know tha my diabetic doctor realizes I have fallen into the "Vanderbilt Hole" and I saw a new PCP on Friday outside the system.. she says all this could be my sarcoid.. but it could be Arterial Vasculitis.. that is causing my vertigo, the pain and the horrilbe ringing/distorted sounds in my r ear.. and my vision is horrible. she says if this is the arterial vasculitis and left untreated I will go blind.. OMG!! and get this.. the blood test that she drew was "crp" and "sed rate" the very two test that I have been begging Vanderbilt doctors to draw for months and they refuse... because they are certain that its not the sarcoid.. plus they also told me.. that "for you, there is no futher treatment for it" Now for the rest of the story.. my email is gonna have to change for a couple of weeks.. I've changed it in yahoo so I should be getting the emails ok.. if not my address is topdatster (AT) gmail (DOT) com or stopdat2005 (AT) yahoo (DOT) com.. seems I forgot to pay the bill... and not being this far into the month I don't have the money to pay it till next month.. ohh yeah, please I am on disability and "WANT" to be.. "NOT"!! Could somebody please take me off this train? I want OFF!Sorry guys, for the rant.. as I've mentioned I think. I'm am freaking totally out.. can't get anyone to help me yet.. but hopefully I will soon..

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