Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 the yahoogroups mail has not been going thur well, that could be why. I don't recall seeing any of your posts at my end. Sorry you feel ignored. Try posting again. God Bless, Robin Wife to Pup for 15 years Mommy to- and (twin boys, 8 years) and Daughter Madison- age 5 1/2 and new Mommy to- Emerson Roger born July 28, 2004 at 4:11 am 8lbs 7 oz, 20 1/2 inches long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 Yes, - you're making PERFECT sense. My 11-year-old daughter shows signs of having some of my genetic makeup WRT weight - she's pretty active, although not any kind of an athlete, and tall for her age, but she's still a lot heavier than she should be (about 170 and 5'2 " ). However, since she's still young I am hoping that when I have surgery, and can begin doing things WITH her, it may still be early enough in her life to help reverse some of what she would face without changing. We'll see. Older daughter (14) is very athletic - runs cross-country, dances, etc. - and although she's heavy according to the charts (174 and 5'7 " ) she's also got a very low body-fat percentage, so I'm not worried about her. But it's normal to worry about our kids, even when we know what they're doing is the best thing they can under the circumstances. It comes with the parenting license. If you don't worry, it's a sign that you're not doing the job right - the key is to worry but still manage somehow to help them find their wings even if you're scared they'll crash! Cathy C. > > Hey everyone: > > My 23 year old son just called. HE is the one most like me in our > family. All my children unfortunately carry my mutated obesity gene > (yes science has proved that its a genetic disease). He has been > having problem with vomiting and acid reflux for years but has never > been able to get a doctor to do anything! Well, he has finally found > a great doctor and they did an endoscopy this morning. He has a sever > hernia that is moving around, and his acid reflux has done some major > damage to his esophugus. Ok....he is 295 pounds and 5'10. His doctor > wants him to have gastric bypass ASAP. He said that they would do the > hernia repair and the bypass all at the same time, and do it > immediately due to the severity of the erosion caused by the acid > reflux. His doctor is going to consult with whoever he needs to and > see if they can expediate his process through the program. He does > not have Kaiser, so he doesnt have alot of the constraints we do. > > Im a bundle of mixed emotions. In one aspect Im so happy that he wont > have to struggle like I did for so many years and that he is getting > help at a young age. Feeling responsible because he got my genes (but > hey where did I get them..ok blame MY mom LOL). And then of course > since its my kid Im scared. Then I look at my other kids especially > Lucas and think can we just get a family plan. Sigh! I dont know how > to adequately explain all that Im going through mentally with this > news. I am mostly thrilled that he will be released from this > disease at a young age, but also, he is my rebel child and I worry > about him living this lifestlye without the preparation I recieved. > But on the other hand he has seen me live it and so knows what to > expect. Am I making any sense here or just rambling. > > Huggles > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 Well , I am glad they found out what the problem is and that something is going to be done. Look, you hold no responsibility for the gene thing...thats just life. Don't worry about what he has not gotton or probably won't get. You are a wide open book for him and you can teach him what he needs to know as well as online info that is out there. My prayers are with you and your son during this process. And, HAPPY HOLIDAYS! Pam Marsh --- Diane Duenas wrote: > Hey everyone: > > My 23 year old son just called. HE is the one most > like me in our > family. All my children unfortunately carry my > mutated obesity gene > (yes science has proved that its a genetic disease). > He has been > having problem with vomiting and acid reflux for > years but has never > been able to get a doctor to do anything! Well, he > has finally found > a great doctor and they did an endoscopy this > morning. He has a sever > hernia that is moving around, and his acid reflux > has done some major > damage to his esophugus. Ok....he is 295 pounds and > 5'10. His doctor > wants him to have gastric bypass ASAP. He said that > they would do the > hernia repair and the bypass all at the same time, > and do it > immediately due to the severity of the erosion > caused by the acid > reflux. His doctor is going to consult with whoever > he needs to and > see if they can expediate his process through the > program. He does > not have Kaiser, so he doesnt have alot of the > constraints we do. > > Im a bundle of mixed emotions. In one aspect Im so > happy that he wont > have to struggle like I did for so many years and > that he is getting > help at a young age. Feeling responsible because he > got my genes(but > hey where did I get them..ok blame MY mom LOL). And > then of course > since its my kid Im scared. Then I look at my other > kids especially > Lucas and think can we just get a family plan. Sigh! > I dont know how > to adequately explain all that Im going through > mentally with this > news. I am mostly thrilled that he will be released > from this > disease at a young age, but also, he is my rebel > child and I worry > about him living this lifestlye without the > preparation I recieved. > But on the other hand he has seen me live it and so > knows what to > expect. Am I making any sense here or just rambling. > > Huggles > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 .... One great thing for your son is he will certainly have the advantage of an excellent coach to help him along whatever path he chooses. It's a good thing that he found out early about his esophagus and that he now knows he has choices and hope for a full recovery. I will pray that he makes good choices in whatever path he takes. Keep us posted. Regards, Gordy > > Hey everyone: > > My 23 year old son just called. HE is the one most like me in our > family. All my children unfortunately carry my mutated obesity gene > (yes science has proved that its a genetic disease). He has been > having problem with vomiting and acid reflux for years but has never > been able to get a doctor to do anything! Well, he has finally found > a great doctor and they did an endoscopy this morning. He has a sever > hernia that is moving around, and his acid reflux has done some major > damage to his esophugus. Ok....he is 295 pounds and 5'10. His doctor > wants him to have gastric bypass ASAP. He said that they would do the > hernia repair and the bypass all at the same time, and do it > immediately due to the severity of the erosion caused by the acid > reflux. His doctor is going to consult with whoever he needs to and > see if they can expediate his process through the program. He does > not have Kaiser, so he doesnt have alot of the constraints we do. > > Im a bundle of mixed emotions. In one aspect Im so happy that he wont > have to struggle like I did for so many years and that he is getting > help at a young age. Feeling responsible because he got my genes (but > hey where did I get them..ok blame MY mom LOL). And then of course > since its my kid Im scared. Then I look at my other kids especially > Lucas and think can we just get a family plan. Sigh! I dont know how > to adequately explain all that Im going through mentally with this > news. I am mostly thrilled that he will be released from this > disease at a young age, but also, he is my rebel child and I worry > about him living this lifestlye without the preparation I recieved. > But on the other hand he has seen me live it and so knows what to > expect. Am I making any sense here or just rambling. > > Huggles > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 Hey Gordy, I am so very happy that you are on the other side now. I wish you well with your journey and as always, you know we are all here for you. I sent a wishing you well notice to but had not contacted you direct. I remembered when I first got on this group online that you really steered me away from hiding out in the back ground so I thank you so very much for pushing me out there. I wish you well with everything and I am so very proud of you for your strength with this thing. I know for a while that you worked at it without the surgery and I am so glad that you decided to have the surgery. Be encouraged as I know you will. You are such a strong and motivated person. Happy holidays to you! Pam Marsh --- Gordy wrote: > .... > > One great thing for your son is he will certainly > have the advantage > of an excellent coach to help him along whatever > path he chooses. > > It's a good thing that he found out early about his > esophagus and > that he now knows he has choices and hope for a full > recovery. > > I will pray that he makes good choices in whatever > path he takes. > Keep us posted. > > Regards, > Gordy > > > > > > > > Hey everyone: > > > > My 23 year old son just called. HE is the one most > like me in our > > family. All my children unfortunately carry my > mutated obesity gene > > (yes science has proved that its a genetic > disease). He has been > > having problem with vomiting and acid reflux for > years but has > never > > been able to get a doctor to do anything! Well, he > has finally > found > > a great doctor and they did an endoscopy this > morning. He has a > sever > > hernia that is moving around, and his acid reflux > has done some > major > > damage to his esophugus. Ok....he is 295 pounds > and 5'10. His > doctor > > wants him to have gastric bypass ASAP. He said > that they would do > the > > hernia repair and the bypass all at the same time, > and do it > > immediately due to the severity of the erosion > caused by the acid > > reflux. His doctor is going to consult with > whoever he needs to and > > see if they can expediate his process through the > program. He does > > not have Kaiser, so he doesnt have alot of the > constraints we do. > > > > Im a bundle of mixed emotions. In one aspect Im so > happy that he > wont > > have to struggle like I did for so many years and > that he is > getting > > help at a young age. Feeling responsible because > he got my genes > (but > > hey where did I get them..ok blame MY mom LOL). > And then of course > > since its my kid Im scared. Then I look at my > other kids especially > > Lucas and think can we just get a family plan. > Sigh! I dont know > how > > to adequately explain all that Im going through > mentally with this > > news. I am mostly thrilled that he will be > released from this > > disease at a young age, but also, he is my rebel > child and I worry > > about him living this lifestlye without the > preparation I recieved. > > But on the other hand he has seen me live it and > so knows what to > > expect. Am I making any sense here or just > rambling. > > > > Huggles > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 It's like your getting ready to have surgery all over again. We feel for our children, but at least he's young and can get the weight off and healed and will lead a better life, than waiting until more weight and more problems. My son that was in his motorcycle accident with the broken shoulder can't have surgery, there's not enough bone to even put artificial stuff in there, so it's weird but the pain is gone and 3 different surgeons said he will learn to live with it for life. There is a slim chance for up to a year it may have some tissue or calcium growth, but not bone growth at this point so it will work just be weaker. This makes me feel bad, if only surgery was an option. So stand by your boy, he will learn from you. Take care, as Pam Marsh says life has pit holes, we strengthen from them. LOL Donna Diane Duenas wrote: Hey everyone:My 23 year old son just called. HE is the one most like me in our family. All my children unfortunately carry my mutated obesity gene(yes science has proved that its a genetic disease). He has been having problem with vomiting and acid reflux for years but has never been able to get a doctor to do anything! Well, he has finally found a great doctor and they did an endoscopy this morning. He has a sever hernia that is moving around, and his acid reflux has done some major damage to his esophugus. Ok....he is 295 pounds and 5'10. His doctor wants him to have gastric bypass ASAP. He said that they would do the hernia repair and the bypass all at the same time, and do it immediately due to the severity of the erosion caused by the acid reflux. His doctor is going to consult with whoever he needs to and see if they can expediate his process through the program. He does not have Kaiser, so he doesnt have alot of the constraints we do.Im a bundle of mixed emotions. In one aspect Im so happy that he wont have to struggle like I did for so many years and that he is getting help at a young age. Feeling responsible because he got my genes(but hey where did I get them..ok blame MY mom LOL). And then of course since its my kid Im scared. Then I look at my other kids especially Lucas and think can we just get a family plan. Sigh! I dont know how to adequately explain all that Im going through mentally with this news. I am mostly thrilled that he will be released from this disease at a young age, but also, he is my rebel child and I worry about him living this lifestlye without the preparation I recieved. But on the other hand he has seen me live it and so knows what to expect. Am I making any sense here or just rambling.Huggles Donna JordonDSJordon@... Yahoo! Shopping Find Great Deals on Holiday Gifts at Yahoo! Shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 My Dear , You have to be one of the bravest women I've had the pleasure of knowing. To undergo multiple heart surgeries, to live with the Russian Roullete syndrome-- and still you keep going. I know it would be easy to become so very depressed, and I can tell you are right at the edge-- you still keep putting one foot in front of the other. That is all any of us can do. Know that when you are at the end of your rope-- that you've got a whole bunch of us out here weaving our ropes together to help each other. You are loved, Tracie NS Co-owner/moderatorSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 ,I feel like I'm sitting on a fence. My sprint lead was recalled too as you know. I have documented V-tach as well as many other abn rhythms. It goes beyond scary. I am not pacer dependent (for now) and my medtronic AICD is a defib as well as a pacer when I go below 40bpm (have been as low as 47) or above 187...it will try to pace me out first if V-tach or V-fib but will shock me if unable to pace me back to normal rhythm. All my drs who saw my V-tach strips asked why my AICD didn't shock me...thank God my V-tach self-terminated. In the back of my mind, I'm left to wonder if my lead screwed up and it NEVER would have shocked me which was one of the causes of the deaths attributed to the leads. Please know you're in my prayers. We WILL get through this. But for the Grace of God...Blessings,Becky Mommer wrote: this is m three open heart surgeries and several pacemakers and three valves done and now I am finally feeling the best I have in 10 years. I am finally tweaked to the t. And my icd pacemaker wire gets recalled. I am reliant on it I have no under laying heart rhythm without the sucker. and have right now a 2.3 percentage chance it will break. then after they go thru all several thousand of us that have them all over the world and not enough wires to go around to replace them. so go figure my lawyer says that % will go much higher after they check us all out. then he says they can just pull mine out it has only been in there 11 months then he brings my x ray up and the sucker is cemented in between my heart and the valve. and to many 5 wires in veins two not being used. no space left to put any other wire. then he says I could put one in the right shoulder well I have had two valves replaced because the lids would not stay shut right. no chance of a fix so I live my life with the human game of russian roulette. M Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Wow, an Aunt who I haven't talked to in a long time just called looking for my Mom's phone number as she just moved. and I found out that she (my Moms sister) and her daughter, and granddaughter, all have Sarcoidosis, I know my Aunt has been sick for yearssssssssss trouble with her lungs is all I ever heard, I even asked my Mom once if she was ever tested for Sarcoid, my Mother has it too, only she has no problems, Thank God. But wow it runs rampant in this family, I have two 3rd cousins in Oslo, Norway with it. I sure hope my boys don't get, and thankful my daughter is adopted. We are all Scandinavian descent. Also my aunt thinks her brother died of it, as he had such terrible lung problems??? Anyway just wanted to share this with everyone, wow. -- Marla BramerIndependent Beauty Consultant Kay mbramer@... www.marykay.com/mbramer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Wow, an Aunt who I haven't talked to in a long time just called looking for my Mom's phone number as she just moved. and I found out that she (my Moms sister) and her daughter, and granddaughter, all have Sarcoidosis, I know my Aunt has been sick for yearssssssssss trouble with her lungs is all I ever heard, I even asked my Mom once if she was ever tested for Sarcoid, my Mother has it too, only she has no problems, Thank God. But wow it runs rampant in this family, I have two 3rd cousins in Oslo, Norway with it. I sure hope my boys don't get, and thankful my daughter is adopted. We are all Scandinavian descent. Also my aunt thinks her brother died of it, as he had such terrible lung problems??? Anyway just wanted to share this with everyone, wow. -- Marla BramerIndependent Beauty Consultant Kay mbramer@... www.marykay.com/mbramer Quote Link to comment Share on other sites More sharing options...
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