Guest guest Posted April 30, 2008 Report Share Posted April 30, 2008 this was sent to me by a distant cousin I have never met. But certainly sounds interesting. I have had neusosarc since 2003 and now am in wheelchair and have severe double vision. THIS IS OUR FAMILY---PLEASE READ Over four years have passed already since Joy was diagnosed with MS. I remember Dot and Charlie Schauss (her grandparents) were up here visiting and how devastated they were because Joy could not see or walk well enough to be able to do such a simple task as go to the store with them - something she had always done from the time she was a little girl. Dot (about 78 years old!) grabbed her out of the car and literally carried her as best she could, into the store. Joy was hanging on to her " gram " and doing her best to use her failing legs. Joy was always so full of life, but her immune system was compromised when the MS attacked. The areas she was hit the hardest were her eyes (optic neuritis in both eyes) and her legs. She always kept very positive mentally though - I believe more for our sake than for hers. " Don't worry!! I'm fine!! " she would tell us all the time. But we knew she wasn't. We started looking into schools for the blind and were trying to decide on what kind of wheel chair would work best for her. She was self injecting the junk that her well-meaning neurologist prescribed, but she just kept deteriorating. We did get a second opinion, diagnosis and prognosis - all concurring. An answer to prayer came by the way of our Luke talking about " alternative therapies " that we immediately started to investigate. After filtering through all the snake oil, we were led (Divinely) to a Manhattan neurologist who wrote about his success in MS and other auto-immune patients using LDN. We immediately made an appointment and got the prescription. Only by our Fathers grace and to His glory, Joy's sight was fully restored and her legs returned to normal. She is again full of life and harassing her friends and relatives - especially her poor old dad! ;-) We went back to her original neurologist showing him the great results and hoping he may be able to help his other patients with LDN, but of course he was more than just resistant and tried to discourage Joy from taking LDN. I brought this information to a friend and co-worker of mine who happened to be the doctor heading our research department. " Forget it - Big Pharm is making too much money on existing therapies - they'll never fund any research " . Since this " miracle " drug does not offer the pharmaceutical companies any financial gain (it's a very old patent) there is no aggressive clinical testing being done. There are many people whose lives have been changed, like Joy, by using LDN. We are hoping to motivate the medical community to put aside their financial motives and get back to patient care via this petition. I'm asking you to sign this petition to help us reach our goal of 20,000 signatures. I care deeply about this cause, and I hope you will support our efforts. Please pass this on to other " email buddies " . Thanks! - Tony and Barbara You can view this petition at: http://www.thepetitionsite.com/1/sign-support-the-campaign-for- research-trials-in-low-dose-naltrexone-for-multiple-scierosis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2008 Report Share Posted April 30, 2008 this was sent to me by a distant cousin I have never met. But certainly sounds interesting. I have had neusosarc since 2003 and now am in wheelchair and have severe double vision. THIS IS OUR FAMILY---PLEASE READ Over four years have passed already since Joy was diagnosed with MS. I remember Dot and Charlie Schauss (her grandparents) were up here visiting and how devastated they were because Joy could not see or walk well enough to be able to do such a simple task as go to the store with them - something she had always done from the time she was a little girl. Dot (about 78 years old!) grabbed her out of the car and literally carried her as best she could, into the store. Joy was hanging on to her " gram " and doing her best to use her failing legs. Joy was always so full of life, but her immune system was compromised when the MS attacked. The areas she was hit the hardest were her eyes (optic neuritis in both eyes) and her legs. She always kept very positive mentally though - I believe more for our sake than for hers. " Don't worry!! I'm fine!! " she would tell us all the time. But we knew she wasn't. We started looking into schools for the blind and were trying to decide on what kind of wheel chair would work best for her. She was self injecting the junk that her well-meaning neurologist prescribed, but she just kept deteriorating. We did get a second opinion, diagnosis and prognosis - all concurring. An answer to prayer came by the way of our Luke talking about " alternative therapies " that we immediately started to investigate. After filtering through all the snake oil, we were led (Divinely) to a Manhattan neurologist who wrote about his success in MS and other auto-immune patients using LDN. We immediately made an appointment and got the prescription. Only by our Fathers grace and to His glory, Joy's sight was fully restored and her legs returned to normal. She is again full of life and harassing her friends and relatives - especially her poor old dad! ;-) We went back to her original neurologist showing him the great results and hoping he may be able to help his other patients with LDN, but of course he was more than just resistant and tried to discourage Joy from taking LDN. I brought this information to a friend and co-worker of mine who happened to be the doctor heading our research department. " Forget it - Big Pharm is making too much money on existing therapies - they'll never fund any research " . Since this " miracle " drug does not offer the pharmaceutical companies any financial gain (it's a very old patent) there is no aggressive clinical testing being done. There are many people whose lives have been changed, like Joy, by using LDN. We are hoping to motivate the medical community to put aside their financial motives and get back to patient care via this petition. I'm asking you to sign this petition to help us reach our goal of 20,000 signatures. I care deeply about this cause, and I hope you will support our efforts. Please pass this on to other " email buddies " . Thanks! - Tony and Barbara You can view this petition at: http://www.thepetitionsite.com/1/sign-support-the-campaign-for- research-trials-in-low-dose-naltrexone-for-multiple-scierosis Quote Link to comment Share on other sites More sharing options...
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