Re: Could this be a migraine??

[Guest guest]

Kass,

It sounds like a migraine to me. I don't think it would be food poisoning because I think the bad food is supposed to hit you about 45min after you've eaten or so.

When I get a migraine, I get all of the symptoms you can possibly get. First the headache, followed by an upset stomach and nausea which kicks off either diarrhea or a large bowel movement, then I get the sound and light sensitivity, then vertigo, then vomiting. Sounds just like what Madison did!

Does she have Cyclic Vomiting Syndrome? Has that ever been discussed with a GI? I wonder why you have the phenergran. I would keep a close watch on these headaches and the symptoms that come with them, and contact her GI if it persists.

One of my sons has a possible mitochondrial disease, but definitely has Cyclic Vomiting Syndrome with it. (Last week we saw Dr. Li in Chicago, the world renowned expert in CVS! He was so helpful to us!) My other son is on Propanolol daily for migraine prevention. He doesn't react to headaches like Madison did, but he had bad headaches nonetheless.

Hope you get alot of help and ideas for this. I'd be interested to hear what others have to say as well.

Krisitne *Ü*

-- Could this be a migraine??

Hi All :-) Madison had an odd episode today and I am wondering if it might have been a migraine but don't know alot about them. Hoping maybe someone here can give me some feedback. She complained some Friday of car sickness and that her tummy was bothering her, but nothing significant. Only thing she ate different than the rest of us was fried cat fish that evening. Woke Saturday morning at 7 fine, had breakfast (cereal), and then at 9 complained of a head ache....something she's never complained of before. DH said he'd get her something for it in a sec, but she laid down and closed her eyes and said she really needed something right then (just not like her usually). He gave her some ibuprophen and they all got dressed to go to an art party at Make A Wish. Got there at 10 and on the way to the room where it was happening, she whispered to him that she felt like she might throw up. He got the other two situated and took her to the bathroom where she tried but was unable to vomit. Went back to the party and just as they got there she said she was getting sick again, so they headed back to the bathroom where she was still unable to vomit, but had a very large (normal consistency) bowel movement. DH thought this was the problem and they headed back to the party. Less than a minute after getting there, she threw up all over (this would have been about 10:15). They stopped by the bathroom on the way out and she vomited again, and then did so two more times on the way home. Once home he tried giving her some phenergan (orally) and she promptly threw it back up. He tried one more time to get the phenergan into her before heading out to come and get me from work, but she threw that up immediatly too. She vomited 2 more times on the way to get me, and 2 more times on the way home, dozing in between each spell. Her color was awful. Once we got home, I was able to get an ounce of gatorade in her through her g-tube that stayed down. She slept and I woke her every hour for the next 3 hours to do Gatorade through her tube, and did give her a small dose of phenergan through her tube at 2:30, all of which stayed down. We checked her temp several times and it was always normal. She woke at 4:30.......and was fine!! We took it easy but she was able to do chicken broth, crackers and water at 5:30 and cheese brocolli soup, crackers and gatorade at 8....but she really wanted Taco Bell for dinner if that tells you anything!! LOL She and I talked about the head pain tonight and she said it was just behind and a little higher than her right temple and that it was a "10" pain-wise on a 1-10 scale. I told her a 10 was really bad pain where even light and noise hurt and you just want to lay down and close your eyes and she said this was exactly how she felt this morning (DH says that she did lay down and close her eyes while waiting on the meds). When asked if she had ever had head pain like this before, she said a few other times apparently in the last 6 months or so, although she had never mentioned it to me. She frequently doesn't tell me when she is having pain, so this doesn't totally shock me. So what do you guys think?? Was this food poisening or a migraine?? Or something else altogether that I have not thought of?? Thanks a ton for any help you can offer!! -- BIG hugs, Kass, proud mom to Chance(11-Mito), Madison(8-Mito), and Abby(7-Mito) "Life is not measured by the breaths we take, but by the moments that take our breath away" Unknown Please contact mito-owner with any problems or questions.

[Guest guest]

Kass,

It sounds like a migraine to me. I don't think it would be food poisoning because I think the bad food is supposed to hit you about 45min after you've eaten or so.

When I get a migraine, I get all of the symptoms you can possibly get. First the headache, followed by an upset stomach and nausea which kicks off either diarrhea or a large bowel movement, then I get the sound and light sensitivity, then vertigo, then vomiting. Sounds just like what Madison did!

Does she have Cyclic Vomiting Syndrome? Has that ever been discussed with a GI? I wonder why you have the phenergran. I would keep a close watch on these headaches and the symptoms that come with them, and contact her GI if it persists.

One of my sons has a possible mitochondrial disease, but definitely has Cyclic Vomiting Syndrome with it. (Last week we saw Dr. Li in Chicago, the world renowned expert in CVS! He was so helpful to us!) My other son is on Propanolol daily for migraine prevention. He doesn't react to headaches like Madison did, but he had bad headaches nonetheless.

Hope you get alot of help and ideas for this. I'd be interested to hear what others have to say as well.

Krisitne *Ü*

-- Could this be a migraine??

Hi All :-) Madison had an odd episode today and I am wondering if it might have been a migraine but don't know alot about them. Hoping maybe someone here can give me some feedback. She complained some Friday of car sickness and that her tummy was bothering her, but nothing significant. Only thing she ate different than the rest of us was fried cat fish that evening. Woke Saturday morning at 7 fine, had breakfast (cereal), and then at 9 complained of a head ache....something she's never complained of before. DH said he'd get her something for it in a sec, but she laid down and closed her eyes and said she really needed something right then (just not like her usually). He gave her some ibuprophen and they all got dressed to go to an art party at Make A Wish. Got there at 10 and on the way to the room where it was happening, she whispered to him that she felt like she might throw up. He got the other two situated and took her to the bathroom where she tried but was unable to vomit. Went back to the party and just as they got there she said she was getting sick again, so they headed back to the bathroom where she was still unable to vomit, but had a very large (normal consistency) bowel movement. DH thought this was the problem and they headed back to the party. Less than a minute after getting there, she threw up all over (this would have been about 10:15). They stopped by the bathroom on the way out and she vomited again, and then did so two more times on the way home. Once home he tried giving her some phenergan (orally) and she promptly threw it back up. He tried one more time to get the phenergan into her before heading out to come and get me from work, but she threw that up immediatly too. She vomited 2 more times on the way to get me, and 2 more times on the way home, dozing in between each spell. Her color was awful. Once we got home, I was able to get an ounce of gatorade in her through her g-tube that stayed down. She slept and I woke her every hour for the next 3 hours to do Gatorade through her tube, and did give her a small dose of phenergan through her tube at 2:30, all of which stayed down. We checked her temp several times and it was always normal. She woke at 4:30.......and was fine!! We took it easy but she was able to do chicken broth, crackers and water at 5:30 and cheese brocolli soup, crackers and gatorade at 8....but she really wanted Taco Bell for dinner if that tells you anything!! LOL She and I talked about the head pain tonight and she said it was just behind and a little higher than her right temple and that it was a "10" pain-wise on a 1-10 scale. I told her a 10 was really bad pain where even light and noise hurt and you just want to lay down and close your eyes and she said this was exactly how she felt this morning (DH says that she did lay down and close her eyes while waiting on the meds). When asked if she had ever had head pain like this before, she said a few other times apparently in the last 6 months or so, although she had never mentioned it to me. She frequently doesn't tell me when she is having pain, so this doesn't totally shock me. So what do you guys think?? Was this food poisening or a migraine?? Or something else altogether that I have not thought of?? Thanks a ton for any help you can offer!! -- BIG hugs, Kass, proud mom to Chance(11-Mito), Madison(8-Mito), and Abby(7-Mito) "Life is not measured by the breaths we take, but by the moments that take our breath away" Unknown Please contact mito-owner with any problems or questions.

[Guest guest]

Thanks SO much e for the feedback. I suspect we're going to

have to wait and see if this happens again to know for sure one way or

the other, but I think the migraine possibility fits better than anything

else I can figure out. Her brother has migraine aura's (without headaches

at this time) or optical migraines depending on who you ask, but we've

not really dealt with anything like this before.

She does have episodes that Dr. Whiteman is calling Cyclic vomiting,

although I think its just the closest thing to a name he can give it, if

that makes sense. Her usual episodes happen after overdoing it or

getting overheated, she'll vomit once and then fall into a very deep sleep/pass

out. She's never vomited more than once with these episodes though

and they always happen right after the activity except for one time when

it was first thing the next morning after overdoing it. We've gotten

labs several times now right after an episode and her blood sugar is always

low and she's spilling major Ketones in her urine. The one time they

checked it, the acetone in her blood was near toxic almost 24 hours after

the episode. Per the doctors, it was so high she should have been

in a coma but was sitting there talking to the doctor, looking sickly,

but certainly no where near a coma!! She always "looks bad" for a

few days after one of these episodes, but perks up overall.

This episode yesterday was very different in that she had not overdone

it or gotten overheated beforehand (or the day before even), there was

a headache involved, she vomited 8-10 times, and she woke feeling completely

normal!! Looking good too...LOL. Just very different than we've

seen before.....though maybe this could be a change in symptoms too.

We actually had the Phenergran on hand on a fluke!! My youngest

Abby had her tonsils and adnoids out a week ago last Thursday (sucky recovery

but are finally getting over the hump) and ended up not tolerating the

Lortab for pain because it really upset her stomach. They gave us

Phenergran to take before the Lortab so she could get some pain control.

So just happened to have it on hand to try!!

Really appreciate your feeedback.and hope to hear from some others as

well.

-- BIG hugs,

Kass, proud mom to Chance(11-Mito), Madison(8-Mito),

and Abby(7-Mito)

"Life is not measured by the breaths we take, but by the moments

that take our breath away" Unknown

e wrote:

Kass,It

sounds like a migraine to me. I don't think it would be food poisoning

because I think the bad food is supposed to hit you about 45min after you've

eaten or so. When I get a migraine, I get all of the symptoms you can possibly

get. First the headache, followed by an upset stomach and nausea which

kicks off either diarrhea or a large bowel movement, then I get the sound

and light sensitivity, then vertigo, then vomiting. Sounds just like what

Madison did!Does she have Cyclic Vomiting Syndrome? Has that ever been

discussed with a GI? I wonder why you have the phenergran. I would keep

a close watch on these headaches and the symptoms that come with them,

and contact her GI if it persists. One of my sons has a possible mitochondrial

disease, but definitely has Cyclic Vomiting Syndrome with it. (Last week

we saw Dr. Li in Chicago, the world renowned expert in CVS! He was so helpful

to us!) My other son is on Propanolol daily for migraine prevention. He

doesn't react to headaches like Madison did, but he had bad headaches nonetheless.

Hope you get alot of help and ideas for this. I'd be interested to hear

what others have to say as well.Krisitne *Ü*

-- Could

this be a migraine??

Hi All :-)

Madison had an odd episode today and I am wondering if it might have

been a migraine but don't know alot about them. Hoping maybe someone

here can give me some feedback.

She complained some Friday of car sickness and that her tummy was bothering

her, but nothing significant. Only thing she ate different than the

rest of us was fried cat fish that evening.

Woke Saturday morning at 7 fine, had breakfast (cereal), and then at

9 complained of a head ache....something she's never complained of before.

DH said he'd get her something for it in a sec, but she laid down and closed

her eyes and said she really needed something right then (just not like

her usually). He gave her some ibuprophen and they all got dressed

to go to an art party at Make A Wish.

Got there at 10 and on the way to the room where it was happening, she

whispered to him that she felt like she might throw up. He got the

other two situated and took her to the bathroom where she tried but was

unable to vomit. Went back to the party and just as they got there

she said she was getting sick again, so they headed back to the bathroom

where she was still unable to vomit, but had a very large (normal consistency)

bowel movement. DH thought this was the problem and they headed back

to the party. Less than a minute after getting there, she threw up

all over (this would have been about 10:15).

They stopped by the bathroom on the way out and she vomited again, and

then did so two more times on the way home. Once home he tried giving

her some phenergan (orally) and she promptly threw it back up. He

tried one more time to get the phenergan into her before heading out to

come and get me from work, but she threw that up immediatly too.

She vomited 2 more times on the way to get me, and 2 more times on the

way home, dozing in between each spell. Her color was awful.

Once we got home, I was able to get an ounce of gatorade in her through

her g-tube that stayed down. She slept and I woke her every hour

for the next 3 hours to do Gatorade through her tube, and did give her

a small dose of phenergan through her tube at 2:30, all of which stayed

down. We checked her temp several times and it was always normal.

She woke at 4:30.......and was fine!!

We took it easy but she was able to do chicken broth, crackers and water

at 5:30 and cheese brocolli soup, crackers and gatorade at 8....but she

really wanted Taco Bell for dinner if that tells you anything!! LOL

She and I talked about the head pain tonight and she said it was just

behind and a little higher than her right temple and that it was a "10"

pain-wise on a 1-10 scale. I told her a 10 was really bad pain where

even light and noise hurt and you just want to lay down and close your

eyes and she said this was exactly how she felt this morning (DH says that

she did lay down and close her eyes while waiting on the meds). When

asked if she had ever had head pain like this before, she said a few other

times apparently in the last 6 months or so, although she had never mentioned

it to me. She frequently doesn't tell me when she is having pain,

so this doesn't totally shock me.

So what do you guys think?? Was this food poisening or a migraine??

Or something else altogether that I have not thought of?? Thanks

a ton for any help you can offer!!

-- BIG hugs,

Kass, proud mom to Chance(11-Mito), Madison(8-Mito),

and Abby(7-Mito)

"Life is not measured by the breaths we take, but by the moments

that take our breath away" Unknown

Please contact mito-owner with any problems or questions.

[Guest guest]

Kass,

Both of my kids have migraine. I do too. Each of us have different ones. I have

an ache in my right eye that feels like a bullet through it. is bothered

by

lights, sees flashes, and hears voices. Her pain is across her forehead.

also has pain across his forehead. Sometimes his is accompanied by

sensitivity to light. It often is accompanied by nausea. He also sometimes has

stomach pains that we suspect are abdominal migraines. We have found no

meds to help him at all.

I think that the best way to tell if this is migraine or not is to see if it

comes

back. It could be a tummy but (something similar is going around here). Food

poisoning does not usually happen quickly--usually it is a day or two after the

tainted food.

If you have any migraine meds I'd ask about using them. Our will hear

voices at times. It really scared me at first. The kid is not quite seven and I

was

scared to death of psychiatric issues. I gave her a zomig (her migraine med)

and the voices went away immediately.

[Guest guest]

Sounds alot like a migrane to me. Grace does not ever seem to vomit from them, but I do. Grace cannot express verbally her pain, but it is obvious when she is having a migrane. Typically she will curl up on the couch and hold pillows up to her ears. She will sit there for hours with a very bleak look to her face. We actually, at first, thought she had an ear infection and took her to the doctors, by the process of elimination we found out that they were actually migranes.

Now, she has a prescripiton for Periactin. We actually use it for many things, but at first it was just for migrane prevention. It really does work well for her, so if this continues it may be something to talk to your doctor about.

Best wishes

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[Guest guest]

Sounds alot like a migrane to me. Grace does not ever seem to vomit from them, but I do. Grace cannot express verbally her pain, but it is obvious when she is having a migrane. Typically she will curl up on the couch and hold pillows up to her ears. She will sit there for hours with a very bleak look to her face. We actually, at first, thought she had an ear infection and took her to the doctors, by the process of elimination we found out that they were actually migranes.

Now, she has a prescripiton for Periactin. We actually use it for many things, but at first it was just for migrane prevention. It really does work well for her, so if this continues it may be something to talk to your doctor about.

Best wishes

Try the new Beta version of MSN Messenger - it's FREE!

[Guest guest]

We also use periactin for migraine prevention. Just a note about it, though. It

only works for some (for my daughter, not my son), can cause twitching, can

cause weight gain (good for daughter, not son), is an antihistamine so could

mask allergic reactions, etc.