Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 , thanks for your response, I appreciate your support, I worked as a ER, LPN for 25 years.. and I never once thought the profession that I loved and worked sooo hard at would ever treat me in such a fashion.. I was a work a holic never had a second thought about going in on my days off.. I was well liked by all my peers, and had perfect evaluations. Now? I'm nothing.. I was diagnosised with CNSV in 2001 as well, still my MRI was normal, nada, nothing.. It was then decided that I have Neurosarcoidosis involving the spinal cord.. no positive evidence except my pulmo sarc biopsy, and my symptoms..I was sent to these Neurologist because they specialized in MS/ Lupus/ auto immune disorders.. I was treated with multiple IV pulses of Steriods of 1000mg x3 approxiamtely 3 times, then began a regime of 90mg pred for two weeks and a horrid slow taper which they really wanted me to stay on 20mg for the rest of my life.. I gain 100lbs and have had a horrible time getting it off.. after the pred nightmare, I was started on Imuran.. and started to actually do well.. The idiots decided in December that I needed to come off the Imuran, because I had been on it 5 years.. 2 months later here I am.. like I said "SICK" and can't get anyone to do a thing.. Its like they are trying to prove me as not worthy of living.. Anyway, that's the way I feel about it.. Thanks again, and sorry that I am still ranting.. Hugs, Re: This is a RANT, Sooo... if you're interested read on, ... Hi this is I hate to see anyone misstreated like that by a dr. ! that angers me soooo much . I lived that for about 10 yrs and it made me feel crazy and I really thought I was going to die b4 someone found out what they were going to do... to tell someone to just lose weight,, that in plane words...Sucks im sorry ... You don't know how bad I feel for you. 2nd, by the results of your mri its sounds like you have some CNSV going on.. just like I did. I have NS and CNSV I am not a dr. but i've lived long enough with this and researched enough . Please don't let them get you down hun, I know you are in pain.. I am praying for you. if you need to plz get another Neuro. it took me seeing almost 9 other neuro's until I found the a good Neuro who treated me with respect and did what he needed to do to get me well. I yes you may rant all you need to . if you need to call me and talk i am here I will help you if i can. it does help to talk it out. Many Blessings and pain free daylove to "ALL" Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.7/1408 - Release Date: 4/30/2008 6:10 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 , thanks for your response, I appreciate your support, I worked as a ER, LPN for 25 years.. and I never once thought the profession that I loved and worked sooo hard at would ever treat me in such a fashion.. I was a work a holic never had a second thought about going in on my days off.. I was well liked by all my peers, and had perfect evaluations. Now? I'm nothing.. I was diagnosised with CNSV in 2001 as well, still my MRI was normal, nada, nothing.. It was then decided that I have Neurosarcoidosis involving the spinal cord.. no positive evidence except my pulmo sarc biopsy, and my symptoms..I was sent to these Neurologist because they specialized in MS/ Lupus/ auto immune disorders.. I was treated with multiple IV pulses of Steriods of 1000mg x3 approxiamtely 3 times, then began a regime of 90mg pred for two weeks and a horrid slow taper which they really wanted me to stay on 20mg for the rest of my life.. I gain 100lbs and have had a horrible time getting it off.. after the pred nightmare, I was started on Imuran.. and started to actually do well.. The idiots decided in December that I needed to come off the Imuran, because I had been on it 5 years.. 2 months later here I am.. like I said "SICK" and can't get anyone to do a thing.. Its like they are trying to prove me as not worthy of living.. Anyway, that's the way I feel about it.. Thanks again, and sorry that I am still ranting.. Hugs, Re: This is a RANT, Sooo... if you're interested read on, ... Hi this is I hate to see anyone misstreated like that by a dr. ! that angers me soooo much . I lived that for about 10 yrs and it made me feel crazy and I really thought I was going to die b4 someone found out what they were going to do... to tell someone to just lose weight,, that in plane words...Sucks im sorry ... You don't know how bad I feel for you. 2nd, by the results of your mri its sounds like you have some CNSV going on.. just like I did. I have NS and CNSV I am not a dr. but i've lived long enough with this and researched enough . Please don't let them get you down hun, I know you are in pain.. I am praying for you. if you need to plz get another Neuro. it took me seeing almost 9 other neuro's until I found the a good Neuro who treated me with respect and did what he needed to do to get me well. I yes you may rant all you need to . if you need to call me and talk i am here I will help you if i can. it does help to talk it out. Many Blessings and pain free daylove to "ALL" Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.7/1408 - Release Date: 4/30/2008 6:10 PM Quote Link to comment Share on other sites More sharing options...
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