Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 I am a 52 year old female and I am awaiting the results of my muscle biopsy to confirm the diagnosis of mitochondrial disease. My symptoms actually started almost 6 years ago with occassional double peripheral vision which would go away if I rested for 15-20 minutes. At that time I went to my opthamoligist and he refered me to the University of Michigan, to a neuro opthamologist, and to have a MRI. The brain scan came back normal and I prety much stumped the experts as to what my problems were. As life goes on I just dealt with it. My symptoms over the years, (though eposodic, happening at least once a day now, but not lasting for more than a few hours) have increased to include, imbalance, leg weakness, (a stiff legged gait) almost like I am drunk, and the latest, slurred speach. These symptoms are also not always present at the same time...sometimes it is just the double vision or the balance, or maybe my speach. Fatigue can bring on an episode. My balance and stiff leggedness seems to be worse at night after I have been sitting for a long period. Anyway I would be interested in chatting with anyone who is experiencing anything similar. I have started taking the " Vitimin Cocktail " (on my 4th day) and though I was symptom free during the day, which hasn't happened in a while, I had a hard time walking late at night. Hope to hear from some adults with this disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 I am a 52 year old female and I am awaiting the results of my muscle biopsy to confirm the diagnosis of mitochondrial disease. My symptoms actually started almost 6 years ago with occassional double peripheral vision which would go away if I rested for 15-20 minutes. At that time I went to my opthamoligist and he refered me to the University of Michigan, to a neuro opthamologist, and to have a MRI. The brain scan came back normal and I prety much stumped the experts as to what my problems were. As life goes on I just dealt with it. My symptoms over the years, (though eposodic, happening at least once a day now, but not lasting for more than a few hours) have increased to include, imbalance, leg weakness, (a stiff legged gait) almost like I am drunk, and the latest, slurred speach. These symptoms are also not always present at the same time...sometimes it is just the double vision or the balance, or maybe my speach. Fatigue can bring on an episode. My balance and stiff leggedness seems to be worse at night after I have been sitting for a long period. Anyway I would be interested in chatting with anyone who is experiencing anything similar. I have started taking the " Vitimin Cocktail " (on my 4th day) and though I was symptom free during the day, which hasn't happened in a while, I had a hard time walking late at night. Hope to hear from some adults with this disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Their is a group specifically for adults with mito or suspected mito it's mitooldies through the yahoo web site this is a very good group to help us oldies out ha ha. I don't have time now to write but check out this group. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Their is a group specifically for adults with mito or suspected mito it's mitooldies through the yahoo web site this is a very good group to help us oldies out ha ha. I don't have time now to write but check out this group. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 There are several of us here who are members both here and at adult mito. It is a group targeted towards adults. Most here are parents of affected children. But many of the parents are at least slightly affected. adultmito-subscribe Quote Link to comment Share on other sites More sharing options...
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