National Sarcoidosis Awareness Day!

May 4, 2008

Greetings everyone,

So happy to report that on Friday, August 29, 2008 the country will

celebrate National Sarcoidosis Awareness Day.

Please spread the word to let your community know. I am going to work

with the National Sarcoidosis Foundation to make this worldwide

news. I am also very pleased to report that The 2009 Chase Calendar

of Events will list Saturday, August 29, 2009, as National

Sarcoidosis Awareness Day in their nationwide publication.

Here is what we need to do - each of us write our congressman,

senator and even President Bush to have them recognize National

Sarcoidosis Awareness Day, this YEAR.

There are many of us out there who suffer from sarcoidosis and it is

masked as Multiple Sclerosis and other neurogenic diseases and we all

know it is neurosarcoidosis! We are just not doctors.

Our nation needs to know more about this disease and its effects.

Please read the information below and get excited about letting our

country know more about this disease. Bill has it, Bernie

Mac has it, Angie Stone has it, Duff has it, I am sure there are many

more celebrities that suffer from it, we need to get theri buy in to

get our government simply to recognize it.

" Sarcoidosis, a disease that affects many of our fellow citizens and

people around the world, remains shrouded in mystery. Skin-related

symptoms of this chronic, multi-system disease were first recognized

more than 100 years ago; however, the effects of sarcoidosis on other

bodily organs were not observed until the first quarter of this

century. Today researchers are still trying to learn more about the

cause and the nature of this affliction.

Sarcoidosis can strike people of all races and of all ages, but,

according to the United States Department of Health and Human

Services, it is most common among black Americans who are between the

ages of 20 and 40. While no cause has yet been identified, it is

thought that heredity predisposes some individuals to the disease.

Intensive research during the past decade has not only supported this

belief but also enabled physicians to diagnose and to manage

sarcoidosis more effectively.

Today researchers at both the National Institute of Allergy and

Infectious Diseases and the National Heart, Lung, and Blood Institute

are leading studies on the etiology, diagnosis, and treatment of

sarcoidosis. On this occasion, we recognize their work and that of

other concerned physicians and scientists throughout the United

States. We also salute the victims of sarcoidosis who demonstrate

great courage and determination in their efforts to cope with the

disease; and we pay tribute to their family members and to other

concerned Americans who are engaged in grass-roots efforts to promote

awareness of sarcoidosis, as well as improved treatment and support

for its victims.

To focus national attention on sarcoidosis, the Congress, by House

Joint Resolution 309, has designated August 29, 1991, as " National

Sarcoidosis Awareness Day " and has authorized and requested the

President to issue a proclamation in observance of this day.

Now, Therefore, I, Bush, President of the United States of

America, do hereby proclaim August 29, 1991, as National Sarcoidosis

Awareness Day. I invite all Americans to join in observing this day

with appropriate programs and activities.

In Witness Whereof, I have hereunto set my hand this fifteenth day of

August, in the year of our Lord nineteen hundred and ninety-one, and

of the Independence of the United States of America the two hundred

and sixteenth. "

Bush

Okay everyone, let's get busy. Love to you all,

Madonna

May 4, 2008