Good evening from the Fraser Valley in Beautiful British Columbia

[Guest guest]

Good evening all! Hope all is well on your end. We just met with a

new doctor last Thursday who requested a slew of bloodwork, however,

when we got home the doctor's office called and said they forgot to

request a CBC so we went to the lab the next day to give one more

vial of blood. AT approximately 9:00 pm on Friday, the children's

hospital calls to tell us to bring Kayla into hospital as her

hemoglobin dropped to 45 and by 12:00 that nite, she dropped to 40.

We ended up spending the weekend watching her go through two blood

transfusions and still no answer as to why this was happening. It

brought her hemoglobin up to approx 60-70 but they still could not

answer what or why. This leads to a couple questions for anybody

that can answer them or have any thoughts:

1) Do any of your children face the problem with chronic anemia?

2) Is this chronic anemia a Mito problem or is it something totally

different?

We are just beside ourselves; I just resigned from my job so Kay is

not left at home alone anymore and to relieve my 11 year old from the

responsibility that we put on her little shoulders.

You know, when I read some of your stories I feel that Kay is not

that bad at all and that is why I do not come on line much as I feel

I am just whining and wasting peoples time. So on that note, thank

you for your time and listening to a worried mom and dad.

Suzette

[Guest guest]

Good evening all! Hope all is well on your end. We just met with a

new doctor last Thursday who requested a slew of bloodwork, however,

when we got home the doctor's office called and said they forgot to

request a CBC so we went to the lab the next day to give one more

vial of blood. AT approximately 9:00 pm on Friday, the children's

hospital calls to tell us to bring Kayla into hospital as her

hemoglobin dropped to 45 and by 12:00 that nite, she dropped to 40.

We ended up spending the weekend watching her go through two blood

transfusions and still no answer as to why this was happening. It

brought her hemoglobin up to approx 60-70 but they still could not

answer what or why. This leads to a couple questions for anybody

that can answer them or have any thoughts:

1) Do any of your children face the problem with chronic anemia?

2) Is this chronic anemia a Mito problem or is it something totally

different?

We are just beside ourselves; I just resigned from my job so Kay is

not left at home alone anymore and to relieve my 11 year old from the

responsibility that we put on her little shoulders.

You know, when I read some of your stories I feel that Kay is not

that bad at all and that is why I do not come on line much as I feel

I am just whining and wasting peoples time. So on that note, thank

you for your time and listening to a worried mom and dad.

Suzette