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Hello,

I am wondering if anyone has ever been in this situation. My son (aged 9) has

been ill for

almost a whole year. His docotrs have just now begun to explore the

possibility of

sarcoidosis. Do children get this disease????

Briefly, he was diagnosed with arthritis early September but became increasingly

unwell

over the following months. He has had some very disturbing neurological

symptoms --

loss of balance, loss of strength in his arms, incontinence, unable to do finger

- nose test,

unable to sit up without falling over.

He has peculiar swellings on his face that no one has been able to identify

(extremely

tender).

The doctors have just tested his ACE levels recently and have repeated the test

several

times. Each time, the ACE levles are elevated. Obviously, this is making them

think about

sarcoidosis. They had written off all his neuro symptoms as psychological until

his

brainstem auditory evoked response test came back as very abnormal (repeated

twice with

same results). He has a headache all day every day.

If any of this rings a bell with anyone, please let me know. Deesperately

trying to help my

son,

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