Recently diagnosed with Neurosarcoidosis-What to do about pain?

[Guest guest]

I've been suffering for about 10 years now with pins & needles from

my toes to my chest and from my fingers to my neck, bone grinding

pain in every joint, especially my hip sockets, stabbing pains

through out every muscle, electrical jolts up and down my spine

through to my legs, arms and head, facial palsy, tremors, urinary

hesitency and urgency, muscle spasams throughout my body, headaches,

blurry vision, buzzing crackle in my ears, burning pain all over my

skin, a strange painful stiffness in my spine and muscles.

Well, at first I was diagnosed as having too much stress in my life;

then diagnosed as depressed and psychotic.

Then I had a seizure, a spinal tap was done and was diagnosed with

neuro-lyme disease, spinal meningites and possible multiple sclerosis.

After a year of IV & oral antibiotics I was still not well. I

continued my search for an answer; which ended up being Multiple

Sclerosis. I was treated with Copaxone with no relief, but many

different doctors didn't want to try anything else because they

questioned my diagnosis, but did nothing to find answers to their

questions.

I've found a new neurologist who has sent me for numerous tests and

he comes up with Multiple Sclerosis with a twist. I also have

neurosarcoidosis. He's been trying to treat the pain with different

anti-seizure, anti-convulsants, diabetic type meds, restless leg

syndrome meds, anti-anxiety and depression meds; to no avail. The

side effects are horrible and cause more problems. Has anyone found

anything the helps with the kinds of pains I've described above?

Thanks,