Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 Hi! I'm Sheri. My Mom has neurosarcoidosis, and is not responding to prednisone. Her docs are out of answers and want to send her to Mass. General, which is two hours away. Help!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 Sheri, Can you tell us a little more about what is going on with your Mom, when was she dx, what other medications if any is she on, what are her symptoms? And we would love to help you. Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Sheri Gallo Sent: Thursday, May 15, 2008 4:13 AM To: Neurosarcoidosis Subject: I'm new... Hi! I'm Sheri. My Mom has neurosarcoidosis, and is not responding to prednisone. Her docs are out of answers and want to send her to Mass. General, which is two hours away. Help!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 hi i am sorry to hear about your mum i know she will be o.k. i live with my son and daughter and know what it is for you to worry i expect she would really love to see you smile and not worry i am on predisone also take azathioprine50mg two each day amitriptyline10mg and co-codamol 500mg as well as some other stuff i have had neurosarcoidosis for 5years the doctors gave me azathioprine because the predisone was not working well i hope this is some help it sounds as if you live in the u.s.a. i live in england keep in touch if you want to and good luck witheverthingSheri Gallo wrote: Hi! I'm Sheri. My Mom has neurosarcoidosis, and is not responding to prednisone. Her docs are out of answers and want to send her to Mass. General, which is two hours away. Help!! Quote Link to comment Share on other sites More sharing options...
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