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Hi! I'm Sheri. My Mom has neurosarcoidosis, and is not responding to

prednisone. Her docs are out of answers and want to send her to Mass.

General, which is two hours away. Help!!

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Sheri,

Can you tell us a little

more about what is going on with your Mom, when was she dx, what other

medications if any is she on, what are her symptoms? And we would love to help

you. Marla

From:

Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Sheri Gallo

Sent: Thursday, May 15, 2008 4:13

AM

To:

Neurosarcoidosis

Subject: I'm

new...

Hi! I'm Sheri. My Mom has neurosarcoidosis, and is not

responding to

prednisone. Her docs are out of answers and want to send her to Mass.

General, which is two hours away. Help!!

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hi i am sorry to hear about your mum i know she will be o.k. i live with my son and daughter and know what it is for you to worry i expect she would really love to see you smile and not worry i am on predisone also take azathioprine50mg two each day amitriptyline10mg and co-codamol 500mg as well as some other stuff i have had neurosarcoidosis for 5years the doctors gave me azathioprine because the predisone was not working well i hope this is some help it sounds as if you live in the u.s.a. i live in england keep in touch if you want to and good luck witheverthingSheri Gallo wrote: Hi! I'm Sheri. My Mom has neurosarcoidosis, and is not responding to prednisone. Her docs are out of answers and want to send her to Mass. General, which is two hours away. Help!!

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