seizures or sleep walking???

February 23, 2005

Yesterday we a very unusual therapy session with Zipporrah. She was

sleeping on the way to the therapy location (about 10-15 minutes drive) and

when we got there I took her out of the stroller and lay her on the floor in

the therapy room, took her coat off, and sat her up since her eyes were

open, assuming of course that she was awake. Well, this is a very normal

occurrence, but yesterday she just was so strange. For the entire hour

(minus the last 5-10 minutes) she moved slowly, would stop to lean on the

wall or sit and was totally dazed looking. She was staring a lot and

wouldn't speak, smile, or respond to stimulus no matter what we tried. The

therapist was pretty concerned as she had never seen her like this and it

looked like she might be having petit mals and not coming out of them in

between (clustering). She did walk to pick up a couple balls, would bend

and drop them in a hoop, etc. but no emotional responses and most of the

time she would stop to just sit still looking down. Then, as if someone

flipped a switch, she looked up, smiled, jumped up, ran across the room to

the swing she was just on, started communicating, and was extra hyper and it

was a relief to see her back to normal (but extra hyper). We have seen a

few seizures with Zipporrah during her two largest stroke episodes and have

been wondering lately if she has petit mals as there are occasions where she

will be staring into space, but it is so hard to tell with them often.

Petit mals are the type Asenath has and we have seen the clusters and the

same behavior with her. I just am hoping I am wrong. But then I also

wonder a bit if she was actually not awake yet??? Any opinions are

appreciated.

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

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