Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 The nasty virus spoke of is indeed, paravirus 3... Jody, I wonder if this means the parainfluenza virus, which is a flulike virus that causes croup. My daughter landed in the hospital with this once after coughing almost 24hrs straight. I hope Kirk is doing better and getting some much needed rest with the bi-pap. Please let know that I am praying for Kirk to be home and healthy before Christmas=) Krisitne, Chelsa's mom, Atypical Rett Syndrome (FKA nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 Thank you Jody for the update. I was wondering how things were going since I hadn't heard anything in the last day or so. Tell her we are continuing to pray for her and to definitely try to get some rest! See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into Mito using a photo collage of my girls at www.heartbeatsformito.org Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting... Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID, GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery, disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency... Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), & Marquis (2) (some with Mito symptoms) Update - Kirkland > > > > called me tonight from Sick Kids in Toronto. She wondered > if I would drop in and give a quick update on Kirkland. Since > had updated Kirkland's Caringbridge website, test results have come > back. The nasty virus spoke of is indeed, paravirus 3... > (Still have to do my homework on that one, so if anyone has any info, > we're quite receptive at this moment.) > > Kirkland is still fairing well with the Bi-Pap machine and it is > allowing him to rest quite comfortably at present. (Too bad > couldn't also be resting quite comfortably!! That poor girl runs on > overdrive!!!!) > > She'll try to pop down in the morning to give another update.... > > Bye for now, > J*O*D*Y > > > > > > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Hi e.... Yes, it is Parainfluenza Virus 3.... (I guess we forgot the 'influenza' inza middle!!) I sent this update on Monday, but since I am not a regular 'poster,' it may have been slightly delayed. (I have been a lurker for a few years though!!!) If anyone is following Kirkland's website, 's been keeping us all updated pretty regularly!!! http://www.caringbridge.org/canada/kirklandk/ J*O*D*Y > ____________________________________________________________________ > > Message: 6 > Date: Wed, 15 Dec 2004 16:12:47 EST > From: jayvelde@... > Subject: Re: Update - Kirkland > > In a message dated 12/15/2004 2:11:54 P.M. Eastern Standard Time, > jodeezstuff@... writes: > > The nasty virus spoke of is indeed, paravirus 3... > > Jody, I wonder if this means the parainfluenza virus, which is a flulike > virus that causes croup. My daughter landed in the hospital with this once after > coughing almost 24hrs straight. I hope Kirk is doing better and getting some > much needed rest with the bi-pap. Please let know that I am praying for > Kirk to be home and healthy before Christmas=) > > Krisitne, Chelsa's mom, Atypical Rett Syndrome (FKA nonspecific mito) > > [This message contained attachments] To: <Mito > Sent: Monday, December 13, 2004 10:49 PM Subject: Update - Kirkland > called me tonight from Sick Kids in Toronto. She wondered if I would drop in and give a quick update on Kirkland. Since had updated Kirkland's Caringbridge website, test results have come back. The nasty virus spoke of is indeed, paravirus 3... (Still have to do my homework on that one, so if anyone has any info, we're quite receptive at this moment.) > > Kirkland is still fairing well with the Bi-Pap machine and it is allowing him to rest quite comfortably at present. (Too bad couldn't also be resting quite comfortably!! That poor girl runs on overdrive!!!!) > > She'll try to pop down in the morning to give another update.... > > Bye for now, > J*O*D*Y -- " Sorry for the inconvenience, but I've inserted a spam-filter in my email address. When you hit 'reply' to email me, you must " Take out the TRASH.... " or your email will bounce back to you... " Quote Link to comment Share on other sites More sharing options...
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