Re: Dawn- Hydration issue (What do YOU do?)

[Guest guest]

She uses Pediasure and is supposed to get up to 6 cans/24 hr. period. She

barely eats by mouth but can when she wants to. She does drink fluids by

mouth, but not as much as she needs to either. Thanks for the suggestions.

Re: Hydration issue (What do YOU do?)

>

>

> Check with your pharmacist...there might be a generic form of

> pedialyte covered by medicaid. There is here in Ohio. is

> 55lbs and 4 1/2 yrs old and she recieves approx. 45-50 fl oz per day

> by mouth or by tube. What she doesn't drink we make sure she gets by

> tube no matter what. Those are our goals every day.If not she

> dehydrates. water, pedialyte, gatorade, milk, it shouldn't matter if

> she is eating. If she is not eating then she will need more

> substance and you may want to talk to the doc about a formula.

>

> Dawn

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>

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>

>

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> Please contact mito-owner with any problems or questions.

>

[Guest guest]

Asenath drinks lots of different things during the day too, but lately it

just hasn't been enough, partly due to the change of season and partly due

to viral attacks and diarrhea. Thanks for letting me know how much you use.

She and Grace are both around the same size as Asenath and so both really

help me get a gage on how much others give their kids like Asenath.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Hydration issue (What do YOU do?)

>

>

> Check with your pharmacist...there might be a generic form of

> pedialyte covered by medicaid. There is here in Ohio. is

> 55lbs and 4 1/2 yrs old and she recieves approx. 45-50 fl oz per day

> by mouth or by tube. What she doesn't drink we make sure she gets by

> tube no matter what. Those are our goals every day.If not she

> dehydrates. water, pedialyte, gatorade, milk, it shouldn't matter if

> she is eating. If she is not eating then she will need more

> substance and you may want to talk to the doc about a formula.

>

> Dawn

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>