Re:Cara- holiday - special needs website

[Guest guest]

Wow! It's been ages since I have heard from you. How is everyone doing?

If you get a chance, give us an update on yourself and your kids, please.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

holiday - special needs website

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> http://www.sleepingangel.com/smc_dec02.htm

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> Perhaps everyone already has seen this site, but I thought it was timely

> reading, if anyone is so inclined. The holidays are so hard and we could

> all use a little more support.

>

> Cara

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> Please contact mito-owner with any problems or questions.

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