Guest guest Posted January 15, 2005 Report Share Posted January 15, 2005 I have a 3 1/2 year old daughter with Cytochrome C Oxidase Deficiency with seizures. I am looking to talk to another parent who's child has similar. Have not found anyone in three years. My email is bethann@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2005 Report Share Posted January 18, 2005 My understanding is that this is a long name for Complex IV deficiency? If thats the case there are several parents on here who deal with it... My son is still undiagnosed until we get the biopsy results, but Complex IV is one that is under consideration right now. Keely > > > I have a 3 1/2 year old daughter with Cytochrome C Oxidase > Deficiency with seizures. I am looking to talk to another parent > who's child has similar. Have not found anyone in three years. My > email is bethann@r... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2005 Report Share Posted January 18, 2005 My daughter morgan has a Complex III/IV deficiency. How can I help? Let me know. I think though so many things mito related are universal for most mito.Everyone here is a wealth of info! Have you visited www.umdf.org? Dawn Myers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2005 Report Share Posted January 18, 2005 hi, i think COX can cause Leighs, and Leighs Disease is what my daughter has been dx.............. so feel free to write and ask anything. my daughter, anna grace, is 5. She does not have active seizures, but did have a few following a head injury. She is nonverbal and nonambulatory. However, she does not miss a beat. she is aware of everything and is very social. bethany mom to brennan 8, palmer & anna grace (leighs) 5 > > > I have a 3 1/2 year old daughter with Cytochrome C Oxidase > Deficiency with seizures. I am looking to talk to another parent > who's child has similar. Have not found anyone in three years. My > email is bethann@r... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.