Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Okay, I've been debating about whether to write this for awhile, but here goes. As a nurse, I cannot figure out a connection between my feet & my peehole, but for the past few weeks (months?) sometimes when I pee, my feet start burning just before the urinary burning. You probably don't remember, but starting in 4/2006 I had a nearly continuous bladder infection for 7 months. It started with burning when I urinated, and the burning persisted, even after the infection finally cleared up. It isn't as bad, but I still have it nearly every time I go. I had a cystoscopy, saw my gyne doc, & no one knows why this burning continues. But it's not severe, so I've just lived with it. I hate to tell any of my docs, even the neuro, about this new thing, because it sounds so bizarre, even to me. My feet burn anyway, from the neuropathy, but nearly every day, usually in the evening, just before the urine starts coming, I feel a wave of burning in my feet, then here comes the pee, with another burning wave up there! I have paid close attention, and I'm not straining or doing anything different like that. And it doesn't happen every time, even though I have the burning with urination nearly every time. Any ideas out there? Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 "How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these." ~ Washington Carver Explore the seven wonders of the world Learn more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Rose, Before I can postulate my diagnosis I need to know if your sarcoid is in the spine or brain. If it is in the brain, my theory is kaput! Terri G > > > Okay, I've been debating about whether to write this for awhile, but here goes. > > As a nurse, I cannot figure out a connection between my feet & my peehole, but for the past few weeks (months?) sometimes when I pee, my feet start burning just before the urinary burning. You probably don't remember, but starting in 4/2006 I had a nearly continuous bladder infection for 7 months. It started with burning when I urinated, and the burning persisted, even after the infection finally cleared up. It isn't as bad, but I still have it nearly every time I go. I had a cystoscopy, saw my gyne doc, & no one knows why this burning continues. But it's not severe, so I've just lived with it. I hate to tell any of my docs, even the neuro, about this new thing, because it sounds so bizarre, even to me. My feet burn anyway, from the neuropathy, but nearly every day, usually in the evening, just before the urine starts coming, I feel a wave of burning in my feet, then here comes the pee, with another burning wave up there! I have paid close attention, and I'm not straining or doing anything different like that. And it doesn't happen every time, even though I have the burning with urination nearly every time. > > Any ideas out there? > > Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 > " How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these. " > > ~ Washington Carver > _________________________________________________________________ > Explore the seven wonders of the world > http://search.msn.com/results.aspx?q=7+wonders+world & mkt=en-US & form=QBRE > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Well, Terri, who knows. I've definitely had brainstem involvement in the past, but it is believed to be in remission now. No proof of spinal sarc, just lots of degenerative stuff. So give your theory a go! Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: mosaicgirl1@...Date: Tue, 2 Oct 2007 20:33:14 +0000Subject: Re: weird & a little graphic Rose,Before I can postulate my diagnosis I need to know if your sarcoid is inthe spine or brain. If it is in the brain, my theory is kaput!Terri G>>> Okay, I've been debating about whether to write this for awhile, buthere goes.>> As a nurse, I cannot figure out a connection between my feet & mypeehole, but for the past few weeks (months?) sometimes when I pee, myfeet start burning just before the urinary burning. You probably don'tremember, but starting in 4/2006 I had a nearly continuous bladderinfection for 7 months. It started with burning when I urinated, and theburning persisted, even after the infection finally cleared up. It isn'tas bad, but I still have it nearly every time I go. I had a cystoscopy,saw my gyne doc, & no one knows why this burning continues. But it's notsevere, so I've just lived with it. I hate to tell any of my docs, eventhe neuro, about this new thing, because it sounds so bizarre, even tome. My feet burn anyway, from the neuropathy, but nearly every day,usually in the evening, just before the urine starts coming, I feel awave of burning in my feet, then here comes the pee, with anotherburning wave up there! I have paid close attention, and I'm notstraining or doing anything different like that. And it doesn't happenevery time, even though I have the burning with urination nearly everytime.>> Any ideas out there?>> Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22> "How far you go in life depends on your being tender with the young,compassionate with the aged, sympathetic with the striving, and tolerantof the weak and the strong. Because someday in life you will have beenall of these.">> ~ Washington Carver> __________________________________________________________> Explore the seven wonders of the world>http://search.msn.com/results.aspx?q=7+wonders+world & mkt=en-US & form=QBRE> Help yourself to FREE treats served up daily at the Messenger Café. Stop by today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Rose, My theory was that if you had spinal sarc it was causing the burning in the feet and with urination at the same time due to some short circuiting. I have a neurogenic bladder and they cannot find lesions on the brain which would indicate the problem is in the micturation center. It is thought the problem is spinal and most likely in the lumbar sacral area. If my anatomy is correct, then the nerves going to the feet come from this area so by my calculations that is your problem. Hows that? Terri G. >>> Okay, I've been debating about whether to write this for awhile, buthere goes.>> As a nurse, I cannot figure out a connection between my feet & mypeehole, but for the past few weeks (months?) sometimes when I pee, myfeet start burning just before the urinary burning. You probably don'tremember, but starting in 4/2006 I had a nearly continuous bladderinfection for 7 months. It started with burning when I urinated, and theburning persisted, even after the infection finally cleared up. It isn'tas bad, but I still have it nearly every time I go. I had a cystoscopy,saw my gyne doc, & no one knows why this burning continues. But it's notsevere, so I've just lived with it. I hate to tell any of my docs, eventhe neuro, about this new thing, because it sounds so bizarre, even tome. My feet burn anyway, from the neuropathy, but nearly every day,usually in the evening, just before the urine starts coming, I feel awave of burning in my feet, then here comes the pee, with anotherburning wave up there! I have paid close attention, and I'm notstraining or doing anything different like that. And it doesn't happenevery time, even though I have the burning with urination nearly everytime.>> Any ideas out there?>> Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22> " How far you go in life depends on your being tender with the young,compassionate with the aged, sympathetic with the striving, and tolerantof the weak and the strong. Because someday in life you will have beenall of these. " >> ~ Washington Carver> __________________________________________________________> Explore the seven wonders of the world>http://search.msn.com/results.aspx?q=7+wonders+world & mkt=en-US & for\ m=QBRE> > > > > > > > _________________________________________________________________ > Help yourself to FREE treats served up daily at the Messenger Café. Stop by today. > http://www.cafemessenger.com/info/info_sweetstuff2.html?ocid=TXT_TAGLM_O\ ctWLtagline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 That's pretty interesting, Terri. You know, I've had the neuropathy in my feet for several years, with a variety of sensations, including burning. An EMG has confirmed peripheral neuropathy. But this burning is different, because it comes in a wave that just lasts a few seconds. I've been assuming that it was just a different neuropathic symptom, but it could be from a totally different source. Judy has also given me some ideas to check out. You know the old saying that 400+ brains are better than one?!? Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: mosaicgirl1@...Date: Wed, 3 Oct 2007 01:49:00 +0000Subject: Re: weird & a little graphic Rose,My theory was that if you had spinal sarc it was causing the burning inthe feet and with urination at the same time due to some shortcircuiting. I have a neurogenic bladder and they cannot find lesions onthe brain which would indicate the problem is in the micturation center.It is thought the problem is spinal and most likely in the lumbar sacralarea. If my anatomy is correct, then the nerves going to the feet comefrom this area so by my calculations that is your problem.Hows that?Terri G.>>> Okay, I've been debating about whether to writethis for awhile, buthere goes.>> As a nurse, I cannot figure out aconnection between my feet & mypeehole, but for the past few weeks(months?) sometimes when I pee, myfeet start burning just before theurinary burning. You probably don'tremember, but starting in 4/2006 Ihad a nearly continuous bladderinfection for 7 months. It started withburning when I urinated, and theburning persisted, even after theinfection finally cleared up. It isn'tas bad, but I still have it nearlyevery time I go. I had a cystoscopy,saw my gyne doc, & no one knows whythis burning continues. But it's notsevere, so I've just lived with it.I hate to tell any of my docs, eventhe neuro, about this new thing,because it sounds so bizarre, even tome. My feet burn anyway, from theneuropathy, but nearly every day,usually in the evening, just before theurine starts coming, I feel awave of burning in my feet, then here comesthe pee, with anotherburning wave up there! I have paid close attention,and I'm notstraining or doing anything different like that. And itdoesn't happenevery time, even though I have the burning with urinationnearly everytime.>> Any ideas out there?>> Ramblin' RoseModerator Amerry heart is good medicine. Proverbs 17:22> "How far you go in lifedepends on your being tender with the young,compassionate with the aged,sympathetic with the striving, and tolerantof the weak and the strong.Because someday in life you will have beenall of these.">> ~ Washington Carver>__________________________________________________________> Explore theseven wonders of theworld>http://search.msn.com/results.aspx?q=7+wonders+world & mkt=en-US & for\m=QBRE>>>>>>>> __________________________________________________________> Help yourself to FREE treats served up daily at the Messenger Café.Stop by today.>http://www.cafemessenger.com/info/info_sweetstuff2.html?ocid=TXT_TAGLM_O\ctWLtagline> Peek-a-boo FREE Tricks Treats for You! Get 'em! Quote Link to comment Share on other sites More sharing options...
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