Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Hi, , I'm glad your son is doing so well! I believe 15-20% of clubfoot kids don't need the tenotomy. Many times, if a child is " borderline " with their dorsiflexion, a doctor will not do the tenotomy right away as it can be done at any point thereafter up until a year of age I believe. However, for many kids, the foot definitely needs the tenotomy to even get into the shoe/brace. Do you know what your son's dorsiflexion is right now? I think they usually strive for a minimum 10-15° of dorsiflexion. Are you doing any stretches to work on the Achilles at all? What doctor are you seeing? There are a few parents here whose kids have not had tenotomies- hopefully they'll respond to your post. I think most of the " older kids " here, though, have had tenotomies, so there might not be feedback on the older kids to know how much dorsiflexion they currently have. Best wishes- & (3-16-00, left clubfoot) > Hi All, > > I am following up to a former posting where I voiced my concern over > the reccommended tenotomy; My son Max wore 5 sets of casts, and his > feet made terrific progress. My wife and I were skeptical when we > were told that the Dr. reccomended this procedure, and we took a lot > of time researching and asking questions. We then started him on > the brace and he adjusted after a couple of days. When we had him > out of the brace we were able to stand him flat on his feet, and > there was no problem flexing up or down. Thus, we were even more > skeptical of the necessity of the tenotomy. > > We returned to the Doctor after a few weeks with Max in the brace, > and upon inspection he was impressed with how well Max's feet had > improved. He then concurred that it would be alright to forgo the > tenotomy. > > As a matter of curiosity, has anyone else chosen to forgo the > tenotomy. If so, I would really like to hear about your situation, > and how well your child has done with just the casting and the brace? > > Thank You, > > R Wagner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 - My son (almost 11 months) has been in the brace since December and has yet to need a tenotomy. Our doctor has told us that it is still a possibility however his current flexibility does not warrant one. We do stretches 2 times a day to help keep is feet nice and flexible. Hope this helps! Kathleen Mom to BCF DBB 16/7 > Hi All, > > I am following up to a former posting where I voiced my concern over > the reccommended tenotomy; My son Max wore 5 sets of casts, and his > feet made terrific progress. My wife and I were skeptical when we > were told that the Dr. reccomended this procedure, and we took a lot > of time researching and asking questions. We then started him on > the brace and he adjusted after a couple of days. When we had him > out of the brace we were able to stand him flat on his feet, and > there was no problem flexing up or down. Thus, we were even more > skeptical of the necessity of the tenotomy. > > We returned to the Doctor after a few weeks with Max in the brace, > and upon inspection he was impressed with how well Max's feet had > improved. He then concurred that it would be alright to forgo the > tenotomy. > > As a matter of curiosity, has anyone else chosen to forgo the > tenotomy. If so, I would really like to hear about your situation, > and how well your child has done with just the casting and the brace? > > Thank You, > > R Wagner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Great to hear things are going so well! is almost 8 months old, and did not have a tenotomy. We would have had it done if he needed, but his dorsiflex was and still is 20 degrees. He has been wearing the shoes for 6 months and we have had no problems and his dorsiflex hasn't changed. He is still young, but we are hoping everything continues to go well. No Tenotomy Hi All, I am following up to a former posting where I voiced my concern over the reccommended tenotomy; My son Max wore 5 sets of casts, and his feet made terrific progress. My wife and I were skeptical when we were told that the Dr. reccomended this procedure, and we took a lot of time researching and asking questions. We then started him on the brace and he adjusted after a couple of days. When we had him out of the brace we were able to stand him flat on his feet, and there was no problem flexing up or down. Thus, we were even more skeptical of the necessity of the tenotomy. We returned to the Doctor after a few weeks with Max in the brace, and upon inspection he was impressed with how well Max's feet had improved. He then concurred that it would be alright to forgo the tenotomy. As a matter of curiosity, has anyone else chosen to forgo the tenotomy. If so, I would really like to hear about your situation, and how well your child has done with just the casting and the brace? Thank You, R Wagner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Darbi didn't have a tenotomy, and she's done well. (better than well in fact, her CF dorsiflexes more than her non CF) I think if the dorsiflexion is good, (what is it, 5-15 degrees is considered good?) and all looks well Max should be fine. Just don't ignore it tightening up, the younger the child is when the tenotomy is done the better so you want to catch it early if it does start to pull. Your bar is bent to dorsiflex the feet right? Make sure the orthotists maintain that bend when you get new bars over the next few years, I don't know how many times I have had to remind them to bend Darbi's bar... They seem to always bring it out unbent and I have to send it back. That's great news BTW. Sounds like Max is on his way~!! Kori At 04:10 PM 7/13/2005, you wrote: >Hi All, > >I am following up to a former posting where I voiced my concern over >the reccommended tenotomy; My son Max wore 5 sets of casts, and his >feet made terrific progress. My wife and I were skeptical when we >were told that the Dr. reccomended this procedure, and we took a lot >of time researching and asking questions. We then started him on >the brace and he adjusted after a couple of days. When we had him >out of the brace we were able to stand him flat on his feet, and >there was no problem flexing up or down. Thus, we were even more >skeptical of the necessity of the tenotomy. > >We returned to the Doctor after a few weeks with Max in the brace, >and upon inspection he was impressed with how well Max's feet had >improved. He then concurred that it would be alright to forgo the >tenotomy. > >As a matter of curiosity, has anyone else chosen to forgo the >tenotomy. If so, I would really like to hear about your situation, >and how well your child has done with just the casting and the brace? > >Thank You, > > R Wagner > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 What do you mean by bent? I have never heard of bending the bar. I know 's bar has always been just as they come. Re: No Tenotomy Darbi didn't have a tenotomy, and she's done well. (better than well in fact, her CF dorsiflexes more than her non CF) I think if the dorsiflexion is good, (what is it, 5-15 degrees is considered good?) and all looks well Max should be fine. Just don't ignore it tightening up, the younger the child is when the tenotomy is done the better so you want to catch it early if it does start to pull. Your bar is bent to dorsiflex the feet right? Make sure the orthotists maintain that bend when you get new bars over the next few years, I don't know how many times I have had to remind them to bend Darbi's bar... They seem to always bring it out unbent and I have to send it back. That's great news BTW. Sounds like Max is on his way~!! Kori At 04:10 PM 7/13/2005, you wrote: >Hi All, > >I am following up to a former posting where I voiced my concern over >the reccommended tenotomy; My son Max wore 5 sets of casts, and his >feet made terrific progress. My wife and I were skeptical when we >were told that the Dr. reccomended this procedure, and we took a lot >of time researching and asking questions. We then started him on >the brace and he adjusted after a couple of days. When we had him >out of the brace we were able to stand him flat on his feet, and >there was no problem flexing up or down. Thus, we were even more >skeptical of the necessity of the tenotomy. > >We returned to the Doctor after a few weeks with Max in the brace, >and upon inspection he was impressed with how well Max's feet had >improved. He then concurred that it would be alright to forgo the >tenotomy. > >As a matter of curiosity, has anyone else chosen to forgo the >tenotomy. If so, I would really like to hear about your situation, >and how well your child has done with just the casting and the brace? > >Thank You, > > R Wagner > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Hey , The bar shouldn't be straight/flat. I think the red bar has the bends from the factory, they're bent at the ends though. If you have that bar, that's why no one has ever bent it for you. You can tell if you lie it on a flat surface and check how the shoes look. The gold bars need to be bent 10-15 degrees (preferably in two spots so that it's somewhat flat in the middle for standing) so the feet are dorsiflexed. I have pictures, but they're on a puter that isn't on right now. If you want, I'll send them to you or to the CFPics list here in a bit to show you what I'm talking about. Bending the bar is a standard and important part of brace set up, the orthotist should know this. Lucky for us our first orthotist knew so Darbi's has always been bent but he left Shriners shortly after Darbi went into the FAB and I have had to remind them many times since then. LMK about the pics. I just gotta start up that dog of a laptop and send them to you. I will try to remember to insert them into the photo library at CFPics too. Kori (At 07:26 AM 7/15/2005, you wrote: >What do you mean by bent? I have never heard of bending the bar. I >know 's bar has always been just as they come. > > > > Re: No Tenotomy > >Darbi didn't have a tenotomy, and she's done well. (better than well >in fact, her CF dorsiflexes more than her non CF) I think if the >dorsiflexion is good, (what is it, 5-15 degrees is considered good?) >and all looks well Max should be fine. Just don't ignore it >tightening up, the younger the child is when the tenotomy is done the >better so you want to catch it early if it does start to pull. Your >bar is bent to dorsiflex the feet right? Make sure the orthotists >maintain that bend when you get new bars over the next few years, I >don't know how many times I have had to remind them to bend Darbi's >bar... They seem to always bring it out unbent and I have to send it back. > >That's great news BTW. Sounds like Max is on his way~!! > >Kori > > > > > >At 04:10 PM 7/13/2005, you wrote: > >Hi All, > > > >I am following up to a former posting where I voiced my concern over > >the reccommended tenotomy; My son Max wore 5 sets of casts, and his > >feet made terrific progress. My wife and I were skeptical when we > >were told that the Dr. reccomended this procedure, and we took a lot > >of time researching and asking questions. We then started him on > >the brace and he adjusted after a couple of days. When we had him > >out of the brace we were able to stand him flat on his feet, and > >there was no problem flexing up or down. Thus, we were even more > >skeptical of the necessity of the tenotomy. > > > >We returned to the Doctor after a few weeks with Max in the brace, > >and upon inspection he was impressed with how well Max's feet had > >improved. He then concurred that it would be alright to forgo the > >tenotomy. > > > >As a matter of curiosity, has anyone else chosen to forgo the > >tenotomy. If so, I would really like to hear about your situation, > >and how well your child has done with just the casting and the brace? > > > >Thank You, > > > > R Wagner > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Hi Kori, I just thought I'd mention that we have the red bar (the one that comes in two parts, is that the one you meant?) and it's not pre-bent. That is the ends are bent up but then bent flat again, something like this: --\________/-- (hope that makes sense) the -- are where the shoes are attached (level), the \ and / are where the bar goes up a bit (not as steep as that, probably 10 degrees I guess). with (*9/02) and Alister (*9/02, RCF) --- frogabog wrote: > Hey , > > The bar shouldn't be straight/flat. I think the red > bar has the > bends from the factory, they're bent at the ends > though. If you have > that bar, that's why no one has ever bent it for > you. You can tell if > you lie it on a flat surface and check how the > shoes look. The gold > bars need to be bent 10-15 degrees (preferably in > two spots so that > it's somewhat flat in the middle for standing) so > the feet are > dorsiflexed. I have pictures, but they're on a > puter that isn't on > right now. If you want, I'll send them to you or to > the CFPics list > here in a bit to show you what I'm talking about. > > Bending the bar is a standard and important part of > brace set up, the > orthotist should know this. Lucky for us our first > orthotist knew so > Darbi's has always been bent but he left Shriners > shortly after Darbi > went into the FAB and I have had to remind them many > times since then. > > LMK about the pics. I just gotta start up that dog > of a laptop and > send them to you. I will try to remember to insert > them into the > photo library at CFPics too. > > Kori > > > > > (At 07:26 AM 7/15/2005, you wrote: > >What do you mean by bent? I have never heard of > bending the bar. I > >know 's bar has always been just as they > come. > > > > > > > > Re: No Tenotomy > > > >Darbi didn't have a tenotomy, and she's done well. > (better than well > >in fact, her CF dorsiflexes more than her non CF) > I think if the > >dorsiflexion is good, (what is it, 5-15 degrees is > considered good?) > >and all looks well Max should be fine. Just don't > ignore it > >tightening up, the younger the child is when the > tenotomy is done the > >better so you want to catch it early if it does > start to pull. Your > >bar is bent to dorsiflex the feet right? Make sure > the orthotists > >maintain that bend when you get new bars over the > next few years, I > >don't know how many times I have had to remind them > to bend Darbi's > >bar... They seem to always bring it out unbent and > I have to send it back. > > > >That's great news BTW. Sounds like Max is on his > way~!! > > > >Kori > > > > > > > > > > > >At 04:10 PM 7/13/2005, you wrote: > > >Hi All, > > > > > >I am following up to a former posting where I > voiced my concern over > > >the reccommended tenotomy; My son Max wore 5 > sets of casts, and his > > >feet made terrific progress. My wife and I were > skeptical when we > > >were told that the Dr. reccomended this > procedure, and we took a lot > > >of time researching and asking questions. We > then started him on > > >the brace and he adjusted after a couple of days. > When we had him > > >out of the brace we were able to stand him flat > on his feet, and > > >there was no problem flexing up or down. Thus, > we were even more > > >skeptical of the necessity of the tenotomy. > > > > > >We returned to the Doctor after a few weeks with > Max in the brace, > > >and upon inspection he was impressed with how > well Max's feet had > > >improved. He then concurred that it would be > alright to forgo the > > >tenotomy. > > > > > >As a matter of curiosity, has anyone else chosen > to forgo the > > >tenotomy. If so, I would really like to hear > about your situation, > > >and how well your child has done with just the > casting and the brace? > > > > > >Thank You, > > > > > > R Wagner > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Hey , Perfect description! lol... exactly, that's what it should look like. But the ends shouldn't be flat after going up, they should be a bit tipped. Your bar may be just right. I just sent pics of various bar bends to the CFPics list if anyone wants to reference them. Both of the gold fixed and red adjustable bars. If you're not a member I can send them to you directly. LMK Kori At 03:15 PM 7/15/2005, you wrote: >Hi Kori, > >I just thought I'd mention that we have the red bar >(the one that comes in two parts, is that the one you >meant?) and it's not pre-bent. That is the ends are >bent up but then bent flat again, something like this: >--\________/-- (hope that makes sense) the -- are >where the shoes are attached (level), the \ and / are >where the bar goes up a bit (not as steep as that, >probably 10 degrees I guess). > > >with (*9/02) >and Alister (*9/02, RCF) > > >--- frogabog wrote: > > > Hey , > > > > The bar shouldn't be straight/flat. I think the red > > bar has the > > bends from the factory, they're bent at the ends > > though. If you have > > that bar, that's why no one has ever bent it for > > you. You can tell if > > you lie it on a flat surface and check how the > > shoes look. The gold > > bars need to be bent 10-15 degrees (preferably in > > two spots so that > > it's somewhat flat in the middle for standing) so > > the feet are > > dorsiflexed. I have pictures, but they're on a > > puter that isn't on > > right now. If you want, I'll send them to you or to > > the CFPics list > > here in a bit to show you what I'm talking about. > > > > Bending the bar is a standard and important part of > > brace set up, the > > orthotist should know this. Lucky for us our first > > orthotist knew so > > Darbi's has always been bent but he left Shriners > > shortly after Darbi > > went into the FAB and I have had to remind them many > > times since then. > > > > LMK about the pics. I just gotta start up that dog > > of a laptop and > > send them to you. I will try to remember to insert > > them into the > > photo library at CFPics too. > > > > Kori > > > > > > > > > > (At 07:26 AM 7/15/2005, you wrote: > > >What do you mean by bent? I have never heard of > > bending the bar. I > > >know 's bar has always been just as they > > come. > > > > > > > > > > > > Re: No Tenotomy > > > > > >Darbi didn't have a tenotomy, and she's done well. > > (better than well > > >in fact, her CF dorsiflexes more than her non CF) > > I think if the > > >dorsiflexion is good, (what is it, 5-15 degrees is > > considered good?) > > >and all looks well Max should be fine. Just don't > > ignore it > > >tightening up, the younger the child is when the > > tenotomy is done the > > >better so you want to catch it early if it does > > start to pull. Your > > >bar is bent to dorsiflex the feet right? Make sure > > the orthotists > > >maintain that bend when you get new bars over the > > next few years, I > > >don't know how many times I have had to remind them > > to bend Darbi's > > >bar... They seem to always bring it out unbent and > > I have to send it back. > > > > > >That's great news BTW. Sounds like Max is on his > > way~!! > > > > > >Kori > > > > > > > > > > > > > > > > > >At 04:10 PM 7/13/2005, you wrote: > > > >Hi All, > > > > > > > >I am following up to a former posting where I > > voiced my concern over > > > >the reccommended tenotomy; My son Max wore 5 > > sets of casts, and his > > > >feet made terrific progress. My wife and I were > > skeptical when we > > > >were told that the Dr. reccomended this > > procedure, and we took a lot > > > >of time researching and asking questions. We > > then started him on > > > >the brace and he adjusted after a couple of days. > > When we had him > > > >out of the brace we were able to stand him flat > > on his feet, and > > > >there was no problem flexing up or down. Thus, > > we were even more > > > >skeptical of the necessity of the tenotomy. > > > > > > > >We returned to the Doctor after a few weeks with > > Max in the brace, > > > >and upon inspection he was impressed with how > > well Max's feet had > > > >improved. He then concurred that it would be > > alright to forgo the > > > >tenotomy. > > > > > > > >As a matter of curiosity, has anyone else chosen > > to forgo the > > > >tenotomy. If so, I would really like to hear > > about your situation, > > > >and how well your child has done with just the > > casting and the brace? > > > > > > > >Thank You, > > > > > > > > R Wagner > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Thanks Kori! I will check it out! In all mine and my husband's research, we never saw anything about a bent bar, and our ortho never mentioned it! I will check out the pics. Maybe our bar is bent and we just didn't realize it. Re: No Tenotomy > > > > > >Darbi didn't have a tenotomy, and she's done well. > > (better than well > > >in fact, her CF dorsiflexes more than her non CF) > > I think if the > > >dorsiflexion is good, (what is it, 5-15 degrees is > > considered good?) > > >and all looks well Max should be fine. Just don't > > ignore it > > >tightening up, the younger the child is when the > > tenotomy is done the > > >better so you want to catch it early if it does > > start to pull. Your > > >bar is bent to dorsiflex the feet right? Make sure > > the orthotists > > >maintain that bend when you get new bars over the > > next few years, I > > >don't know how many times I have had to remind them > > to bend Darbi's > > >bar... They seem to always bring it out unbent and > > I have to send it back. > > > > > >That's great news BTW. Sounds like Max is on his > > way~!! > > > > > >Kori > > > > > > > > > > > > > > > > > >At 04:10 PM 7/13/2005, you wrote: > > > >Hi All, > > > > > > > >I am following up to a former posting where I > > voiced my concern over > > > >the reccommended tenotomy; My son Max wore 5 > > sets of casts, and his > > > >feet made terrific progress. My wife and I were > > skeptical when we > > > >were told that the Dr. reccomended this > > procedure, and we took a lot > > > >of time researching and asking questions. We > > then started him on > > > >the brace and he adjusted after a couple of days. > > When we had him > > > >out of the brace we were able to stand him flat > > on his feet, and > > > >there was no problem flexing up or down. Thus, > > we were even more > > > >skeptical of the necessity of the tenotomy. > > > > > > > >We returned to the Doctor after a few weeks with > > Max in the brace, > > > >and upon inspection he was impressed with how > > well Max's feet had > > > >improved. He then concurred that it would be > > alright to forgo the > > > >tenotomy. > > > > > > > >As a matter of curiosity, has anyone else chosen > > to forgo the > > > >tenotomy. If so, I would really like to hear > > about your situation, > > > >and how well your child has done with just the > > casting and the brace? > > > > > > > >Thank You, > > > > > > > > R Wagner > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Hi Kori, I've seen the pictures, thanks, and your red bar looks just like ours apart from that ours definitely is bent back to being completely straight, ie the shoes are level. I originally emailed Dr Ponseti about that by the way, with pictures of my son's foot and he said that a bend would be better but that they could be left level (probably because he has very good dorsiflexion I guess). Anyway, meanwhile I got another bar from a friend which is properly bent. The only thing I'm wondering there is that it is bent for both feet but Alister only has unilateral clubfoot, I hope it won't do his other foot any harm... Cheers, with (*9/02) and Alister (*9/02, RCF) --- frogabog wrote: > Hey , > > Perfect description! lol... exactly, that's what > it should look > like. But the ends shouldn't be flat after going > up, they should be a bit > tipped. Your bar may be just right. I just sent > pics of various bar bends > to the CFPics list if anyone wants to reference > them. Both of the gold > fixed and red adjustable bars. If you're not a > member I can send them to > you directly. LMK > > > Kori > > > > > > At 03:15 PM 7/15/2005, you wrote: > >Hi Kori, > > > >I just thought I'd mention that we have the red bar > >(the one that comes in two parts, is that the one > you > >meant?) and it's not pre-bent. That is the ends > are > >bent up but then bent flat again, something like > this: > >--\________/-- (hope that makes sense) the -- are > >where the shoes are attached (level), the \ and / > are > >where the bar goes up a bit (not as steep as that, > >probably 10 degrees I guess). > > > > > >with (*9/02) > >and Alister (*9/02, RCF) > > > > > >--- frogabog wrote: > > > > > Hey , > > > > > > The bar shouldn't be straight/flat. I think the > red > > > bar has the > > > bends from the factory, they're bent at the ends > > > though. If you have > > > that bar, that's why no one has ever bent it for > > > you. You can tell if > > > you lie it on a flat surface and check how the > > > shoes look. The gold > > > bars need to be bent 10-15 degrees (preferably > in > > > two spots so that > > > it's somewhat flat in the middle for standing) > so > > > the feet are > > > dorsiflexed. I have pictures, but they're on a > > > puter that isn't on > > > right now. If you want, I'll send them to you > or to > > > the CFPics list > > > here in a bit to show you what I'm talking > about. > > > > > > Bending the bar is a standard and important part > of > > > brace set up, the > > > orthotist should know this. Lucky for us our > first > > > orthotist knew so > > > Darbi's has always been bent but he left > Shriners > > > shortly after Darbi > > > went into the FAB and I have had to remind them > many > > > times since then. > > > > > > LMK about the pics. I just gotta start up that > dog > > > of a laptop and > > > send them to you. I will try to remember to > insert > > > them into the > > > photo library at CFPics too. > > > > > > Kori > > > > > > > > > > > > > > > (At 07:26 AM 7/15/2005, you wrote: > > > >What do you mean by bent? I have never heard > of > > > bending the bar. I > > > >know 's bar has always been just as they > > > come. > > > > > > > > > > > > > > > > Re: No Tenotomy > > > > > > > >Darbi didn't have a tenotomy, and she's done > well. > > > (better than well > > > >in fact, her CF dorsiflexes more than her non > CF) > > > I think if the > > > >dorsiflexion is good, (what is it, 5-15 degrees > is > > > considered good?) > > > >and all looks well Max should be fine. Just > don't > > > ignore it > > > >tightening up, the younger the child is when > the > > > tenotomy is done the > > > >better so you want to catch it early if it does > > > start to pull. Your > > > >bar is bent to dorsiflex the feet right? Make > sure > > > the orthotists > > > >maintain that bend when you get new bars over > the > > > next few years, I > > > >don't know how many times I have had to remind > them > > > to bend Darbi's > > > >bar... They seem to always bring it out unbent > and > > > I have to send it back. > > > > > > > >That's great news BTW. Sounds like Max is on > his > > > way~!! > > > > > > > >Kori > > > > > > > > > > > > > > > > > > > > > > > >At 04:10 PM 7/13/2005, you wrote: > > > > >Hi All, > > > > > > > > > >I am following up to a former posting where I > > > voiced my concern over > > > > >the reccommended tenotomy; My son Max wore 5 > > > sets of casts, and his > > > > >feet made terrific progress. My wife and I > were > > > skeptical when we > > > > >were told that the Dr. reccomended this > > > procedure, and we took a lot > > > > >of time researching and asking questions. > We > > > then started him on > > > > >the brace and he adjusted after a couple of > days. > > > When we had him > > > > >out of the brace we were able to stand him > flat > > > on his feet, and > > > > >there was no problem flexing up or down. > Thus, > > > we were even more > > > > >skeptical of the necessity of the tenotomy. > > > > > > > > > >We returned to the Doctor after a few weeks > with > > > Max in the brace, > > > > >and upon inspection he was impressed with how > > > well Max's feet had > > > > >improved. He then concurred that it would be > > > alright to forgo the > > > > >tenotomy. > > > > > > > > > >As a matter of curiosity, has anyone else > chosen > > > to forgo the > > > > >tenotomy. If so, I would really like to hear > > > about your situation, > > > > >and how well your child has done with just > the > > > casting and the brace? > > > > > > > > > >Thank You, > > > > > > > > > > R Wagner > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Darbi is unilateral too and they always bend both sides. I don't think it is harmful for the other foot personally. That's interesting that Dr. P. said either or... I have always been under the impression that it was more important. hummm... Kori At 03:37 PM 7/16/2005, you wrote: >Hi Kori, > >I've seen the pictures, thanks, and your red bar looks >just like ours apart from that ours definitely is bent >back to being completely straight, ie the shoes are >level. > >I originally emailed Dr Ponseti about that by the way, >with pictures of my son's foot and he said that a bend >would be better but that they could be left level >(probably because he has very good dorsiflexion I >guess). > >Anyway, meanwhile I got another bar from a friend >which is properly bent. The only thing I'm >wondering there is that it is bent for both feet but >Alister only has unilateral clubfoot, I hope it won't >do his other foot any harm... > >Cheers, > >with (*9/02) >and Alister (*9/02, RCF) > > > >--- frogabog wrote: > > > Hey , > > > > Perfect description! lol... exactly, that's what > > it should look > > like. But the ends shouldn't be flat after going > > up, they should be a bit > > tipped. Your bar may be just right. I just sent > > pics of various bar bends > > to the CFPics list if anyone wants to reference > > them. Both of the gold > > fixed and red adjustable bars. If you're not a > > member I can send them to > > you directly. LMK > > > > > > Kori > > > > > > > > > > > > At 03:15 PM 7/15/2005, you wrote: > > >Hi Kori, > > > > > >I just thought I'd mention that we have the red bar > > >(the one that comes in two parts, is that the one > > you > > >meant?) and it's not pre-bent. That is the ends > > are > > >bent up but then bent flat again, something like > > this: > > >--\________/-- (hope that makes sense) the -- are > > >where the shoes are attached (level), the \ and / > > are > > >where the bar goes up a bit (not as steep as that, > > >probably 10 degrees I guess). > > > > > > > > >with (*9/02) > > >and Alister (*9/02, RCF) > > > > > > > > >--- frogabog wrote: > > > > > > > Hey , > > > > > > > > The bar shouldn't be straight/flat. I think the > > red > > > > bar has the > > > > bends from the factory, they're bent at the ends > > > > though. If you have > > > > that bar, that's why no one has ever bent it for > > > > you. You can tell if > > > > you lie it on a flat surface and check how the > > > > shoes look. The gold > > > > bars need to be bent 10-15 degrees (preferably > > in > > > > two spots so that > > > > it's somewhat flat in the middle for standing) > > so > > > > the feet are > > > > dorsiflexed. I have pictures, but they're on a > > > > puter that isn't on > > > > right now. If you want, I'll send them to you > > or to > > > > the CFPics list > > > > here in a bit to show you what I'm talking > > about. > > > > > > > > Bending the bar is a standard and important part > > of > > > > brace set up, the > > > > orthotist should know this. Lucky for us our > > first > > > > orthotist knew so > > > > Darbi's has always been bent but he left > > Shriners > > > > shortly after Darbi > > > > went into the FAB and I have had to remind them > > many > > > > times since then. > > > > > > > > LMK about the pics. I just gotta start up that > > dog > > > > of a laptop and > > > > send them to you. I will try to remember to > > insert > > > > them into the > > > > photo library at CFPics too. > > > > > > > > Kori > > > > > > > > > > > > > > > > > > > > (At 07:26 AM 7/15/2005, you wrote: > > > > >What do you mean by bent? I have never heard > > of > > > > bending the bar. I > > > > >know 's bar has always been just as they > > > > come. > > > > > > > > > > > > > > > > > > > > Re: No Tenotomy > > > > > > > > > >Darbi didn't have a tenotomy, and she's done > > well. > > > > (better than well > > > > >in fact, her CF dorsiflexes more than her non > > CF) > > > > I think if the > > > > >dorsiflexion is good, (what is it, 5-15 degrees > > is > > > > considered good?) > > > > >and all looks well Max should be fine. Just > > don't > > > > ignore it > > > > >tightening up, the younger the child is when > > the > > > > tenotomy is done the > > > > >better so you want to catch it early if it does > > > > start to pull. Your > > > > >bar is bent to dorsiflex the feet right? Make > > sure > > > > the orthotists > > > > >maintain that bend when you get new bars over > > the > > > > next few years, I > > > > >don't know how many times I have had to remind > > them > > > > to bend Darbi's > > > > >bar... They seem to always bring it out unbent > > and > > > > I have to send it back. > > > > > > > > > >That's great news BTW. Sounds like Max is on > > his > > > > way~!! > > > > > > > > > >Kori > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >At 04:10 PM 7/13/2005, you wrote: > > > > > >Hi All, > > > > > > > > > > > >I am following up to a former posting where I > > > > voiced my concern over > > > > > >the reccommended tenotomy; My son Max wore 5 > > > > sets of casts, and his > > > > > >feet made terrific progress. My wife and I > > were > > > > skeptical when we > > > > > >were told that the Dr. reccomended this > > > > procedure, and we took a lot > > > > > >of time researching and asking questions. > > We > > > > then started him on > > > > > >the brace and he adjusted after a couple of > > days. > > > > When we had him > > > > > >out of the brace we were able to stand him > > flat > > > > on his feet, and > > > > > >there was no problem flexing up or down. > > Thus, > > > > we were even more > > > > > >skeptical of the necessity of the tenotomy. > > > > > > > > > > > >We returned to the Doctor after a few weeks > > with > > > > Max in the brace, > > > > > >and upon inspection he was impressed with how > > > > well Max's feet had > > > > > >improved. He then concurred that it would be > > > > alright to forgo the > > > > > >tenotomy. > > > > > > > > > > > >As a matter of curiosity, has anyone else > > chosen > > > > to forgo the > > > > > >tenotomy. If so, I would really like to hear > > > > about your situation, > > > > > >and how well your child has done with just > > the > > > > casting and the brace? > > > > > > > > > > > >Thank You, > > > > > > > > > > > > R Wagner > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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