Y at the top of 'butt crack' or bottom of spine

[Guest guest]

I may have missed a few posts about this but I just wanted to add to this...

Avery has LCF and while I was pregnant they had us do an Amnio to rule out SB

and it did, but we still went to talk to a genetic counselor (is that a normal

process, does anyone know??). So when she was born they checked her out and told

us everything was fine but she did come 8 weeks early and spent a month in the

NICU (she was 3lb 10oz) so while she was there she was always very wrapped up

and I didn't notice until I got her home that she had a " Y " looking

'butt crack' so of course I panicked ... since then I have asked every nurse,

doctor or anyone in the medical field to look at that and tell me if it looked

like something to be concerned with... they would all tell me it looked fine but

I knew in my heart it didn't seem right but finally I got my new pediatrician to

have an ultrasound on it and that came back GOOD. I was very relieved to find

that out but I still look at it all the time and she is just over a year old.

She has full mobility of her legs and is actually VERY flexible (CF babies seem

to be?!?) but she doesn't walk yet ... I am pretty sure she will but it is

always a concern in the back of my mind... even though I did ask the Orthopedic

and she said of course she will walk and I started crying with relief and she

didn't realize that I had been that worried about it ...I am hoping that her not

walking yet is due to the casting and DBB... so I find it interesting to hear

more of you talk about this 'thing' on the top of

their 'butt crack' or at the bottom of the spine (which ever way I should say

it!!!) ... how old are all of the babies that have this type of 'mark' ?? are

they walking? someone had mentioned the phrase 'spina bifida occulta' to me and

I still don't know if that could be it... who would rule that out? the

Orthopedic? I just don't seem to get any answers... I am enjoying my baby but I

too feel like I am always looking for something else. I never had any concerns

with my older daughter (now 5) and then I haven't had any with Avery's twin

sister but it a constant worry with Avery?!?!? The high-risk Drs do that to you

when they detect something then once the baby is born I felt like we were left

high and dry with a bunch of unanswered questions....

WOW.. I didn't mean to write a book about this... sorry but please let me know

if any of you have had an similar experiences with this or if anyone has any

advice to give .... my ears are anxiously awaiting!!!

Thanks so much for listening...

mommy to:

Chesney just turned 5

Delaney just turned one

Avery just turned one also and has LCF DBB 20/7

Joy wrote:

--- wrote:

> I thought Spina Bifida & club foot are very related.

Well, kinda. Our newest baby to arrive in September is supposed to have spina

bifida and bilateral clubfeet. The clubfeet are part of the spina bifida. In

Rose's case, there was no reason for the clubfoot other than it happened.

According to the neonatologist and genetic counselor, this baby and Rose are

entirely individual cases and not linked. Even with Rose's sacral dimple. I

find it hard to believe there isn't some correlation, but hey, I'm no doctor.

I think clubfoot can be very related to spina bifida, but I don't think spina

bifida is very related to clubfoot if that makes much sense!

Joy

>

>

>

> >

> > > OK this is veering off of feet but Kelsey has that

> > > little pucker at the top of her butt as well. As an

> > > infant, they did an ultrasound to rule out spina

> > > bifida because it also it also has a skin tag inside

> > > it which I guess can be an indicator. It turned out

> > > to be nothing but that is funny that another little

> > > one on here has it as well.

> >

> > When Rose was born, she had a sacral dimple (which can indicate

> spina bifida

> > occulta-meaning closed spina bifida). The u/s she had ruled that

> out. Each

> > doctor we saw, though, would check her feet and check her diaper

> area. I have

> > to wonder if it's pretty common in clubfoot children.

> >

> > Joy

> >

> > http://www.geocities.com/joybelle15/rosesclubfootpage.html

> >

> >

> >

> > ____________________________________________________

> > Start your day with Yahoo! - make it your home page

> > http://www.yahoo.com/r/hs

>

>

>

http://www.geocities.com/joybelle15/rosesclubfootpage.html

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