nervous abt unaffected sibling - cylic nausea?

[Guest guest]

Hi all,

I'm writing b/c I'm worried about my oldest son, Sam, 8 yrs. old. My almost four year old son, Asher, has mito, Complex III defect and possible/partial complex I defect (detected through fresh muscle biopsy).

Sam has had normal development all his life and is quite advanced intellectually (more than me, that's for sure!). He does have a primary immune deficiency that was diagnosed at age 3 following chronic sinus infections - he was tested b/c we already knew that I have a primary immune deficiency for which I'm treated with gammaglobulin. Anyhow, Sam has an IgA def and an IgG subclass deficiency, but, regardless, he's been pretty healthy (does not get gammaglobulin at this point) for the past 2 years. The docs have felt his body was compensating. No drs have suggested his primary immune deficiency as being mito related - not even the mito experts - even when I ask.

Anyhow, this just hit me tonight. For the past 6 out of 7 nights, Sam has become incredibly nauseous at about 7:00 at night coupled with extreme fatigue. At first I thought and still think that, maybe, he was dehydrated. We are on vacation in Colorado so I assumed it was the altitude, dehydration, and that he was not resting that much. He's absolutely fine and normal during the day. Not sick at all. Today, we made sure he drank A LOT and so did he. He did not exert himself physically. In addition, we've not been in the mountains, so, altho the altitude is quite a bit higher than Florida, it's not the typical high altitudes that would produce altitude sickness that keeps occurring all week.

I'm just sharing this b/c I'm worried and need to write about it. I've been partly able to cope with the mito disease in my younger son by believing that my older son is "fine". It scares me that Sam is having this trouble.

Also, do I remember correctly that drinks with caffeine and sugar are helpful at these times?

Thanks for reading,

Anne R