Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 Judy, I'm glad your visit went well. It's good to be able to ask the 'top of the field' isn't it. It's also good to be taken seriously and given meds that really help. wishing you the best hugs S. "rjbasso@..." wrote: Well I went to Camp Baughman for the first time today. I was amazed at how intelligent he is and was glad I belonged to this support group because without realizing it I knew what he was talking about.He saw my son Joe first then he came in with me, then all of us got together and he used me to explain things to Joe.Bottom line for me will be Remicaide and Methotrexate. I really like him, he was wery therow. He told Joe that the prednizone would not help the granulomas in his ches.. He put him on a pulmacort inhaler. He said the granulomas in his lungs should clear by themselves in 6 yo 12 monthw.He said that it may take two months to see a differencce in me beccause of how extensive I have Neurosarcoidosis.Talked to Rose tonight her cumputer is a ittle under that weather. she should have it back in about one week.Well gang this old lady is exhausted, will write more when I get home tomorrow.Judy in PA Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 I'm happy for you Judy that you received such good care from Dr. Baughman. A lot of people have, I hope the Remicade works out for you. I would love to travel down and see him myself , but don't really have the resources. Good luck. Debbie T."rjbasso@..." wrote: Well I went to Camp Baughman for the first time today. I was amazed at how intelligent he is and was glad I belonged to this support group because without realizing it I knew what he was talking about.He saw my son Joe first then he came in with me, then all of us got together and he used me to explain things to Joe.Bottom line for me will be Remicaide and Methotrexate. I really like him, he was wery therow. He told Joe that the prednizone would not help the granulomas in his ches.. He put him on a pulmacort inhaler. He said the granulomas in his lungs should clear by themselves in 6 yo 12 monthw.He said that it may take two months to see a differencce in me beccause of how extensive I have Neurosarcoidosis.Talked to Rose tonight her cumputer is a ittle under that weather. she should have it back in about one week.Well gang this old lady is exhausted, will write more when I get home tomorrow.Judy in PA~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHAT: SUNDAY 4PM-5PM EASTERN TIME CHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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