Re: Vitamin D

[Guest guest]

I am replacing vit d with a prescription of 50,000 IU

once a week! I will have to say that I can not say I

notice a difference but it would show in my bones. So

I know there are so many benifits to replacing what is

deficient. I also need growth hormone injections,

which has many possibilities, one it is believed to

help with the control of sarcoid? I have always had to

avoid the sun I am Irish and Scandinavian so fair that

I am allergic to the sun and my skin breaks out where

it is exposed. But yet sunlight is so important! Hope

this helps! Anne p.s. do you also have diabetes

insipidus (water diab)?

__________________________________________________

[Guest guest]

,

That is the same amount that I have been prescribed. I too am fair and

have been staying out of the sun for years due to having spent to much

time in the sun as a child. I had numerous biopsies (2 for melanoma)

and decided enough was enough. The good thing about that though is no

one can believe you are the age you are because you don't have the

" leathery " look.

So, thanks for letting me know about the vitamin D.

Terri G.

>

> I am replacing vit d with a prescription of 50,000 IU

> once a week! I will have to say that I can not say I

> notice a difference but it would show in my bones. So

> I know there are so many benifits to replacing what is

> deficient. I also need growth hormone injections,

> which has many possibilities, one it is believed to

> help with the control of sarcoid? I have always had to

> avoid the sun I am Irish and Scandinavian so fair that

> I am allergic to the sun and my skin breaks out where

> it is exposed. But yet sunlight is so important! Hope

> this helps! Anne p.s. do you also have diabetes

> insipidus (water diab)?

>

> __________________________________________________

>

[Guest guest]

I realize that many have discussed Vitamin D. I had read that those of us who have sarcoid are not to have alot of Vitamin D. Or are we suppose to supplement with Vitamin D? When I came down with this in 1980 we were to avoid the sun, taking vitamin D. People with MS need Vitamin D or sun. So I was just wondering what information you have on this.

Kat,

Here is a good website that covers the Vit D issue.

http://www.sarcoidosisonlinesites.com/sarcoid%20newsletter.htm

I know that FSR www.stopsarcoidosis.org also addresses this issue. For those of us that do not have hypercalcuria or hypercalciuma (sp) and have been on high dose prednisones-- or are peri or menopausal-- we still need calcium. Calcium cannot be assimilated without Vit D and Magnesium.

Also, Vit D is needed to avoid depression-- so to try to totally eliminate it would be tragic. Not only would you develop severe depression, but also severe osteoporosis. So it is a trade off.

The guess is that 3-60% *(yep, that is right) people with sarc have high calcium levels. High calcium levels are dangerous in that you form kidney stones and have a small amount of a higher risk of kidney failure if you have kidney stones.

As with all things-- moderation is a good thing. You may want to have your MD run calcitrol and 24 hr urine tests to check for calcium issues.

My personal experience is that when I cut back my calcium --my bone pain and joint pain went thru the roof. My body was so starved for calcium that it was leaching it from my bones-- and the pain of being so deficient was excrutiating. I also had developed severe clinical depression to the point of being suicidal.

Weil, MD states in his books that what our bodies will do when deficient is to run the "starvation" action. If you don't have what you need in vitamins and minerals, your immune system grabs ahold of what you feed it nutrientionally, and puts the vitamins and minerals in places they don't belong-- so that if you do enter a state of defiency- the body can pull from those other places.

This to me made so much sense. If I don't have or am not assimilating the calcium-- then my body needs to store some somewhere, or take it from my bones to make up for the loss. So if I have extra calcium in my kidneys, or in my joints (in the form of spurs or granulomas) then to leach that back into your system for emergency use-- is what the body thinks it should do. However, this for us doesn't work. Our bodies see those cells as the enemy, sends the troops (white cells) to the area to clean out the problem, but we don't stop with that. We build upon the problem, and our bodies don't clear out the invader correctly. So we build upon the initial invader, and the subsequent T-cell (TNF-a, then TNF- and this builds the foundations for the granulomas to enlarge.

My thought is that if I have enough of the right vitamins and minerals-- then I'm not forcing my body to deposit stuff where it doesn't belong. I also found that by allowing myself to take calcium/magnesium supplements, that I don't hurt as much.

I hope this makes sense-- and that each of you discuss this with your MD's. HAve your calcium levels checked. If you've been on high dose steroids- your bones are or will thin because of it. We are going to tax our immune systems to heal a broken hip-- and our lungs are going to pay a price to have to fight the effects of surgeries-- that may be avoided with some simple basic nutrition insight.

Sincerely,

Tracie

NS Co-owner/moderatorCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

Thank you Rick.Check out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

Thank you Tracie. I have been on high IV and oral prednisone for 1 year and had trouble with Fosamax and jaw pain so I stopped it. I know they wanted me to try actonel but I do supplement with calcium magensium capsules before I go to bed as that helps me sleep better too.

Thanks again.

KatCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

Hi, I was told it depends upon the meds your on. Ask your doctor. I myself had no problem. RickK wrote: I realize that many have discussed Vitamin D. I had read that those of us who have sarcoid are not to have alot of Vitamin D. Or are we suppose to supplement with Vitamin D? When I came down with this in 1980 we were to avoid the sun, taking vitamin D. People with MS need Vitamin D or sun. So I was just wondering what information you have on

this.ThanksKat

Never miss a thing. Make Yahoo your homepage.