Re: Darla..............

[Guest guest]

Thanks for writing the encouraging note to me. It sounds like you have a

new little one in the home. I hope the baby is doing well. Newborns are so

precious. It has always been my favorite phase.

Our newest little one, Joey, has hydrocephalus as well as some other

brain issues so at this point we are working on head control as his head

circumference is about 53 cm. He is really a doll though to see and he has

overcome so much in his short life. His twin moves in tomorrow morning

bright and early and is healthy. It is definitely a change for us having

Joey in our home, but he is precious.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

Darla..............

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> > I am hoping we can keep the new member of the household free

> from the

> > virus as he just had brain surgery to revise his shunt and then

> his twin

> > sister arrives on Sunday. I hope we don't give it to her either!

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> I know I haven't been around much... but I just wanted to lyk that

> YOU AMAZE ME! WOW.... you are such a strong strong woman.

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> le

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> Please contact mito-owner with any problems or questions.

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