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What a bummer summer

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Yikes, what a summer I am having! July my port-a-cath gets kinked and

has to be removed. My internist deems it too dangerous to put in

another one due to my compromised immune system. I have lousy veins so

my monthly remicade infusions will be long and painful without the

port-a-cath. Then two weeks later I develop HSV-1 pneumonia. Nearly

bought it, I can tell ya. Luckily responded to the IV cocktail they

put me on but I was almost airlifted to a big city hospital because I

was so sick, so fast and the results of the CT angiogram were so

mysterious they had me in airborne isolation for 2 days! This is the

ugly side of all the immune-suppressing they have to put us on. Truly

scary. Really feel like being crushed between a rock and a hard place.

Either the disease makes us sick or the medications kill us.

At least I am making a good recovery. I'm home now and am finally

allowed out of bed. I hope to make cookies today. My older son is

coming home for a few days to visit.

Hope the rest of you have had a chance for some fun this summer.

-

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