Re: Seeing double...

[Guest guest]

Hi, Seeing double was my first neuro sarc symptom. See a Neurologist, seeing double is related to loss of a motor control nerve (think #6) with one of your eyes. Sooner you see them the better. I wore an eye patch for several months and couldn't drive, it was not fun. RickDebbie wrote: Hey guys, For the past few months, when I use the computer for awhile or read for awhile, I start to see double. At first I thought I needed glasses. I went to

the optomertrist and they tested me and said I was off a bit (can't remember the stats) and decided I needed bifocals. Well, after spending $500 on the glasses, ( a lot of money in my household), I am still having the same issues. Do you think this is from sarc or what? Should I go to an opthamologist, Tracie? I'm afraid he will just say "Oh, you are just fine, and send me on my merry way." I don't know if seeing double after using my eyes for awhile is could really be related to sarc. Thanks for any input . Debbie Debbie T. Co-Moderator __________________________________________________

[Guest guest]

Should I go to an opthamologist, Tracie? I'm afraid he will just say "Oh, you are just fine, and send me on my merry way." I don't know if seeing double after using my eyes for awhile is could really be related to sarc. Thanks for any

Deb,

Yes, change your eye care to an MD- Ophthalmololgist. It could be sarc-- as it may be related to optic neuritis. (Inflammation of the optic nerve.) They can run Visual Field Tests to see what part of the brain is miss- firing. Also, if it is eye fatigue, you may want to try blinking more often, and looking from near to far distance. This is actually exercises they will tell you to do-- so may as well start with this, and if it doesn't help-- tell them you've already been doing that. Then they will take it to the next level of exam to see what the organic problem is. (Organic is physical in this sense).

We have a tendency to stare at the stuff we're reading, which exhausts our eyes, and we forget to blink (which makes the eyes even more dry) and then we can't control the muscles as well either.

Hugs to you,

Tracie

'NS Co-owner/moderatorSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Hi Debbie,

My diplopia (double vision) started back in 2001. It began slowly,

much like you described but eventually became chronic. Some of my

MRIs show a questionable area near the brain stem but nothing

conclusive...like I expect anything to be conclusive when it comes to

sarc. The opto recommended prisms to correct the double vision. I

spent more money & time than I care to remember on finding different

glasses to correct the problem. The prisms didn't worked very well

for me as my vision changes so much depending upon if I'm flaring or

even on how tired I might be. I went through 4 different rx in a

single year before I gave up on lenses with prisms...not the optos

fault, just the way it is.

Best I've found so far is patching one eye while using standard

reading lenses. The eye patch was ~$20 for one that is comfortable

enough to wear for extended periods...my favorite one is from www.eye-

grafx.com. I switch which eye I'm using now and again, and take

breaks in between. The patch / glasses combo really cut down on some

of my headaches which were apparently due to eye strain. I came to

the conclusion that I would rather deal with comments ('argghhh,

look, a pirate') from some of the less evolved individuals that I

work with than deal with the double vision and the related problems.

I still see an opto at least once a year to have my eyes checked just

because sarc likes eyes. Hope this helps.

Peace, Tony

>

> Hey guys,

> For the past few months, when I use the computer for awhile or

read for awhile, I start to see double. At first I thought I needed

glasses. I went to the optomertrist and they tested me and said I

was off a bit (can't remember the stats) and decided I needed

bifocals. Well, after spending $500 on the glasses, ( a lot of money

in my household), I am still having the same issues. Do you think

this is from sarc or what? Should I go to an opthamologist, Tracie?

I'm afraid he will just say " Oh, you are just fine, and send me on my

merry way. " I don't know if seeing double after using my eyes

for awhile is could really be related to sarc. Thanks for

any input . Debbie

>

>

>

> Debbie T.

>

> Co-Moderator

>

> __________________________________________________

>

[Guest guest]

Hi, I consider myself lucky, once I started taking Prednisone my eyes started improving, after 6 weeks my vision was back to normal. I'm on a much lesser dosage of Prednisone now and my vision is still normal, however double vision has come back a few mornings when I did not get enough sleep. Hope your doing well. Regards, RickTony wrote: Hi Debbie,My diplopia (double vision) started back in 2001. It began slowly, much like you described but

eventually became chronic. Some of my MRIs show a questionable area near the brain stem but nothing conclusive...like I expect anything to be conclusive when it comes to sarc. The opto recommended prisms to correct the double vision. I spent more money & time than I care to remember on finding different glasses to correct the problem. The prisms didn't worked very well for me as my vision changes so much depending upon if I'm flaring or even on how tired I might be. I went through 4 different rx in a single year before I gave up on lenses with prisms...not the optos fault, just the way it is. Best I've found so far is patching one eye while using standard reading lenses. The eye patch was ~$20 for one that is comfortable enough to wear for extended periods...my favorite one is from www.eye-grafx.com. I switch which eye I'm using now and again, and take breaks in between. The patch / glasses combo really

cut down on some of my headaches which were apparently due to eye strain. I came to the conclusion that I would rather deal with comments ('argghhh, look, a pirate') from some of the less evolved individuals that I work with than deal with the double vision and the related problems. I still see an opto at least once a year to have my eyes checked just because sarc likes eyes. Hope this helps.Peace, Tony >> Hey guys, > For the past few months, when I use the computer for awhile or read for awhile, I start to see double. At first I thought I needed glasses. I went to the optomertrist and they tested me and said I was off a bit (can't remember the stats) and decided I needed bifocals. Well, after spending $500 on the glasses, ( a lot of

money in my household), I am still having the same issues. Do you think this is from sarc or what? Should I go to an opthamologist, Tracie? I'm afraid he will just say "Oh, you are just fine, and send me on my merry way." I don't know if seeing double after using my eyes for awhile is could really be related to sarc. Thanks for any input . Debbie> > > > Debbie T.> > Co-Moderator> > __________________________________________________>

[Guest guest]

hey, have any of you all noticed this?? when my eyes get tired, or if I'm really tired, my eyes don't look the same or blink at the same time. My eye doc never seemed to think this was important. well, I think I'm going to go to a new one anyway. The last big flare I had was last Nov!! Hurray!! But I called them today to order some contacts and the last visit wasn't in my chart!! Now, this wasn't any ordinary visit. I had developed a huge almost black line in my eye, that kind of looked like the letter "C" circling the outer rim of my vision. He never even dilated my eye, which I thought was not taking me seriously. I have had nearly chronic uveitis in this eye since before I was diagnosed.

Anyway, back to the eye thing. It seems to get worse with fatigue so I 'm just curious if anyone else has it to. Thanks, Bonnie BSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

I had developed a huge almost black line in my eye, that kind of looked like the letter "C" circling the outer rim of my vision. He never even dilated my eye, which I thought was not taking me seriously. I have had nearly chronic uveitis in this eye since before I was diagnosed.

It could have been a bit of vitreous that became detached --vitreous is the fluid that fills the inside of the eyeball, and gives it shape. It is a protein, so as we age, it starts to deteriorate and pull away from the eyeglobe. Sometimes, tiny amounts (it seems huge in our field of vision) will tear away and float freely. These are called Flashers and Floaters. They reabsorb back into our system, and we don't have any problem. (It may take some time, and many times, it'll sink down into the bottom of the eyeglobe, and then when we start moving again, it comes back into our field of vision.

If you have a "curtain veil" effect, like someone pulling a shade from the bottom of your vision upward-- this is a sign of retinal or macular detachment-- and is an EMERGENT appointment. There is actually laser surgery that can be done within the first few hours that can reattach the retina-- and save your vision!

As far as the "fatigue" and goofinesss of vision, blinking, etc-- it's fairly normal. We have 6 muscles that control the eye movements, and when you're tired, if one of the muscles is weaker than others-- then you can get the weird movements and blinking.

Blinking is also the way we hydrate (spread) the normal tears over our eyes-- so when our eyes are dry-- we blink more. If you have mild iritis or uveitis, that eye generally will be the "over-active" one. It needs more tears, and it wants to block the irritation that light brings on.

Sincerely,

Tracie

NS Co-owner/moderatorSee what's new at AOL.com and Make AOL Your Homepage.