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Re: - More questions...

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Hi

My son is 26 mos. I spoke to the neurologist again on Friday and he

still feels that it is best to do the MRI and to do it under

anesthesia. My son has been under anesthesia several times for GI

procedures and does not come out of it well. THey now have to

intubate him when they do it, but they still feel that it is

necessary.

Thanks for the info...I think he did have propofol the first time

they put him under and that was the one that he had such a hard time

with...hmmmm.

Willow

><BR>

>Willow,<BR>

><BR>

>How old is your child?  If possible, I'd see if they could do

>the MRI without <BR>

>sedation or anesthesia.  Does he really need an MRI? Anesthesia

>has a <BR>

>whole bunch of risks for mito patients. There is info about safe

>anesthesia on <BR>

>the umdf web sits.  Propofol should be avoided and malignant

>hyperthermia <BR>

>precautions should probably be used.<BR>

><BR>

>Amino acid levels are usuallly not important unless high, including

>pyruvic <BR>

>acid.<BR>

><BR>

><BR>

><BR>

><BR>

><BR>

><BR>

><BR>

></tt>

>

><br><br>

><tt>

>Please contact mito-owner with any problems or

>questions.</tt>

><br><br>

>

><br>

>

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I would always use mito precautions. My kids have both had apnea with

surgery and I just don't see the need to do anything other than use mito

precautions. The last time we did it the anesthesiologist was a bit hot--they

have to purge the equipment and set things up a bit differently with mito

precautions. We used malignant hyperthermia precautions and won't let them

use propofol.

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