Upper GI/lower follow through results

[Guest guest]

Sheldon's barium test showed the following:

1. Poor esophageal motility

I saw the barium sitting in the esophagus instead of going into his

stomach. His pediatrician suggested that maybe that's why he vomits

up chunks of food hours after eating them - maybe they never make it

to the stomach. Does anyone know what to do for this? Give him baby

food?

2. Marked spontaneous gastroesophageal reflux

3. Somewhat reduced bowel motility

Any ideas about what to do about any of this? He's been on Prevacid

for the reflux for a month and a half now.

Thanks.

--

----------

Stacey Fleming

flemings@...

[Guest guest]

My college roomate had the same esophegus problem (they never did

figure out the cause). The only thing that helped her was to eat

tiny cunks of food at a time, with LOTS of water...

she was never offered anything else to help with it...

> Sheldon's barium test showed the following:

>

> 1. Poor esophageal motility

>

> I saw the barium sitting in the esophagus instead of going into

his

> stomach. His pediatrician suggested that maybe that's why he

vomits

> up chunks of food hours after eating them - maybe they never make

it

> to the stomach. Does anyone know what to do for this? Give him

baby

> food?

>

> 2. Marked spontaneous gastroesophageal reflux

>

> 3. Somewhat reduced bowel motility

>

> Any ideas about what to do about any of this? He's been on

Prevacid

> for the reflux for a month and a half now.

>

> Thanks.

> --

> ----------

> Stacey Fleming

> flemings@g...

[Guest guest]

Hmm, thanks. He really does not chew well so I'm sure that

doesn't help.

My college roomate had the same

esophegus problem (they never did

figure out the cause). The only thing that helped her was to

eat

tiny cunks of food at a time, with LOTS of water...

she was never offered anything else to help with it...

> Sheldon's barium test showed the following:

>

> 1. Poor esophageal motility

>

> I saw the barium sitting in the esophagus instead of going

into

his

> stomach. His pediatrician suggested that maybe that's why he

vomits

> up chunks of food hours after eating them - maybe they never

make

it

> to the stomach. Does anyone know what to do for this? Give

him

baby

> food?

>

> 2. Marked spontaneous gastroesophageal reflux

>

> 3. Somewhat reduced bowel motility

>

> Any ideas about what to do about any of this? He's been on

Prevacid

> for the reflux for a month and a half now.

>

> Thanks.

> --

> ----------

> Stacey Fleming

> flemings@g...

Please contact mito-owner with any problems or

questions.

Yahoo!

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[Guest guest]

Grace also has these issues, at times. For her the Prevacid works, but not unless she takes the full adult dose. As far as the food coming back up, we were instructed to cut everything up really really small. Her GI does not believe she has a motility problem, only that the mito slows her digestion down a bit. She also has some chewing and swallowing problems, so it contributes. Now when we give her something harder to digest we cut it up as small as our hands can get it. Also you can put it in a food processor for a few seconds to really shred it up. Hope this helps.

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[Guest guest]

Reglan and erythromycin are about the only meds available in the US that

may increase motility. Some people have tried Zelnorm in females. Propulsid

is available in some areas for compassionate use. It has been linked to long

Q-T though.

Prilosec, Prevacid, Nexium, Protonix, Aciphex, etc. don't stop reflux. They do

nothing at all for reflux. That is not why they are prescribed. They are

prescribed to increase the pH of stomach contents. This decreases the

damage caused by stomach acids.

As far as I know, the only thing that MAY stop reflux (other than outgrowing

baby reflux) is a fundoplication. This might not be the best thing in a kid with

really slow motility and it does not always work--my daughter is testament to

that.

I would try grinding food and see what happens with that. I would be hesitant

to give lots of water. That can actually cause harm with some motility issues.

What have your docs suggested?

[Guest guest]

Thanks. As with everything mito related, this is so complicated.

We don't have any suggestions from docs yet, his ped mentioned that we

might need to feed him easy to swallow foods but she is waiting to

hear from the motility specialist in Boston.

So do meds like Prevacid make digestion even harder by blocking

stomach acid? Would a fundo make it even harder for weak esophagus

muscles to get food into the stomach?

Reglan and erythromycin are about the

only meds available in the US that

may increase motility. Some people have tried Zelnorm in

females. Propulsid

is available in some areas for compassionate use. It has been linked

to long

Q-T though.

Prilosec, Prevacid, Nexium, Protonix, Aciphex, etc. don't stop

reflux. They do

nothing at all for reflux. That is not why they are prescribed.

They are

prescribed to increase the pH of stomach contents. This decreases

the

damage caused by stomach acids.

As far as I know, the only thing that MAY stop reflux (other than

outgrowing

baby reflux) is a fundoplication. This might not be the best thing in

a kid with

really slow motility and it does not always work--my daughter is

testament to

that.

I would try grinding food and see what happens with that. I

would be hesitant

to give lots of water. That can actually cause harm with some motility

issues.

What have your docs suggested?

Please contact mito-owner with any problems or

questions.

Yahoo!

Groups Sponsor

ADVERTISEMENT

[Guest guest]

A fundo is probably not the best thing for a kiddo with really slow motility.

But,

yes, it is quite complicated. I would doubt that reducing the acidity would

make digestion more difficult.

[Guest guest]

A fundo is probably not the best thing for a kiddo with really slow motility.

But,

yes, it is quite complicated. I would doubt that reducing the acidity would

make digestion more difficult.

[Guest guest]

Zipporrah has this same issue where the food or liquid just sits in the

throat rather than going down. Hers did go down after a bit but pooling at

the back of the throat has also been seen as a issue amongst many others.

As a caution, this should be taken very seriously. It could be extremely

dangerous for your child to eat orally. Choking or aspiration are two major

concerns. If the child inhales as the food/liquid is sitting there,

aspiration results, and of course if the child does not swallow chunks of

food properly, the child could choke easily. SP/feeding therapy is

absolutely necessary to determine how to proceed with oral feedings to

prevent these things from happening. Does he have a G-tube? If not, a

NG-tube? I would not recommend allowing him to eat orally without major

intervention. This sounds more like an issue of damage to his swallowing

areas than an issue of reflux. Once the food gets to the back of the throat

it is supposed to automatically travel down into the stomach. If it just

sits there than that past of the swallowing mechanism is not working

appropriately. How does he do in the mouth? Is there any issues with

getting the food from his mouth to the throat? Has he had an OT/SP

evaluation with someone who knows these issues? Zipporrah's tongue does not

cup but lies flat and her cheek muscles along with the tongue are very weak

so maneuvering the food is difficult. Make sure to follow through with your

doc concerning these issues as they can be life threatening.

Hope he starts improving in this area. I know how frustrating it can

be.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Upper GI/lower follow through results

>

> Sheldon's barium test showed the following:

>

> 1. Poor esophageal motility

>

> I saw the barium sitting in the esophagus instead of going into his

> stomach. His pediatrician suggested that maybe that's why he vomits

> up chunks of food hours after eating them - maybe they never make it

> to the stomach. Does anyone know what to do for this? Give him baby

> food?

>

> 2. Marked spontaneous gastroesophageal reflux

>

> 3. Somewhat reduced bowel motility

>

> Any ideas about what to do about any of this? He's been on Prevacid

> for the reflux for a month and a half now.

>

> Thanks.

> --

> ----------

> Stacey Fleming

> flemings@...

>

>

>

> Please contact mito-owner with any problems or questions.

>