Imuran and doctor question

[Guest guest]

Hi everyone, it has been a while since I have posted, but FI are

facing another issue and I would love your input. Well FI was on

cellcept and it seemed to really be helping. A lot of his symptoms

lessened in severity and we were pretty happy with the drug. Well,

we changed insurance companies and his new insurance has decided

that they won't cover the cellcept for the use of NS. His doc and I

are in the process of appealing the decision (for the third time),

but we are thinking about a contingency plan just in case. We are

worried because since he has stopped taking the cellcept, some of

his symptoms are returning and he has had a seizure. Even though

the insurance company will not pay for the Cellcept they will pay

for Imuran. What are your thoughts on Imuran? The doc said that it

has a chance of developing issues with the liver.

Secondly, I see that several of you see Dr. Baughman. I am guessing

that it is the Dr. Baughman in Cincinnati. FI saw him once for his

bronchoscopy, but no sarcoid was found. Do you all who see him also

have sarcoid in other areas of your body or only NS? FI isn't

currently seeing Baughman and I was wondering if he should see him

in addition to his NS neuroogist.

Thanks in advance for the advice,

Ebony

[Guest guest]

Ebony,

I am currently on Imuran 200 mg per day. I have blood work once a month

to check my liver functions and my blood counts. I can cause problems

with both. So far, so good. If Fi starts the drug, you have to be very

good about going and getting the blood work done.

I am also very careful what ever else I do. I try not to take too much

tylenol (arthritis) because it is processed by the liver and too much of

it can affect the liver. Also, I don't drink any alcohol for the same

reason.

Well, good luck. Another idea would be to contact the company that

makes the cellcept to see if you would be available to get it from them

at a reduce price. You may be able to go through the Partnership for

Prescription Assistance. Look them up online.

Take care.

Terri G.

>

> Hi everyone, it has been a while since I have posted, but FI are

> facing another issue and I would love your input. Well FI was on

> cellcept and it seemed to really be helping. A lot of his symptoms

> lessened in severity and we were pretty happy with the drug. Well,

> we changed insurance companies and his new insurance has decided

> that they won't cover the cellcept for the use of NS. His doc and I

> are in the process of appealing the decision (for the third time),

> but we are thinking about a contingency plan just in case. We are

> worried because since he has stopped taking the cellcept, some of

> his symptoms are returning and he has had a seizure. Even though

> the insurance company will not pay for the Cellcept they will pay

> for Imuran. What are your thoughts on Imuran? The doc said that it

> has a chance of developing issues with the liver.

>

> Secondly, I see that several of you see Dr. Baughman. I am guessing

> that it is the Dr. Baughman in Cincinnati. FI saw him once for his

> bronchoscopy, but no sarcoid was found. Do you all who see him also

> have sarcoid in other areas of your body or only NS? FI isn't

> currently seeing Baughman and I was wondering if he should see him

> in addition to his NS neuroogist.

>

> Thanks in advance for the advice,

>

> Ebony

>

[Guest guest]

they will pay for Imuran. What are your thoughts on Imuran? The doc said that it has a chance of developing issues with the liver.

All of these immunosupressants have liver issues. MILK THISTLE CAPSULES help immensely with this-- as Milk Thistle is a natural liver detoxifier. I've been on Methotrexate, Plaquenil and Remicade for the last 18 months- and my liver function is in the normal ranges--- it was way off before the meds. I started taking MT daily, along with all the other drugs I'm on-- and even the Rheumi is amazed.

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