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Re: Kim/wish

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Your poor husband. I understand how hard that would be as my husband

absolutely loves his kids and loves to snuggle them too.

We are holding off on Zipporrah's wish also. We haven't even tried to

get her accepted by the program yet. I know you can wait on the wish so I

have been thinking about processing the request and then waiting until she

is older to do something. That way, if she gets suddenly worse, she can get

her wish quickly if needed. Hope the girls enjoy the playroom. It sounds

wonderful! :)

Oh, we liked the light display too. We have went two different years

and have enjoyed seeing the kids' eyes light up.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

wishes granted

> >>

> >>

> >> Hello all. I hope you had a very happy holiday. We received a late

> >> Christmas present today when Make-A-Wish called to let us know

> >> and

> >> Lindsey have been granted wishes. We are very excited for them!

> >>

> >> Blessings,

> >> Kim - Mom to and Lindsey (3) Partial Complex I

> >>

> >> Please contact mito-owner with any problems or

> >> questions.

> >>

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