Guest guest Posted January 23, 1996 Report Share Posted January 23, 1996 Thanks for your help Darlene. So many have mentioned carnitor. It may be a coincidence but I feel carnitor would also help my daughter -Kay who has episodes of cyclic vomiting as I have an abstract here which states that carnitor can reduce the number of episodes in cyclic vomiting. I just wish it was available here in New-Zealand. . Re: Slow motility Good Morning, JD had this with mito and the carnitor has helped with losing his bowels. DarlenePlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2004 Report Share Posted November 20, 2004 Good Morning, JD had this with mito and the carnitor has helped with losing his bowels. Darlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2004 Report Share Posted November 20, 2004 My 5 yo son has slow motility. He has hypotonia(low muscle tone) which apparently applies to his internal muscles as well. Alot of the digestive tract is filled with muscles which move things along. If those muscles have a low tone they may not be as effective. My son also used to be constipated. We used Milk of Magnesia(sp?) and then Miralax. My son isn't really constipated anymore but I think it's because he's on a completely liquid diet(He's completely tube fed now) He's on Erythromycin for the slow motility and that seems to help. But whenever my son is not feeling well I usually need to decrease his feeds. Illness seems to increase his slow motility. Any other questions please ask. Blessings, > Hi, > > Could someone please give me an explanation on slow motility or even a web-site? > > I am sure that this is what is wrong with my grand-daughter aged 2 years. She has always had a lot of trouble when trying to pass a bowel motion and as a baby screamed when trying. It now takes up to 3 or 4 days with her lying on her side several times over a 3 or 4 day period trying to push the 'poo' out. You can see her stomach muscles working so hard as she tries to push. I worry that she will become very self-conscious with having so much trouble with the pushing that she will stop trying and become severely constipated. > > We live in New-Zealand where Mito is a 'never heard of' disorder so I need information to educate my grand-daughter's paediatrician. > > Thank-you, > > Re: Upper GI/lower follow through results > > > > A fundo is probably not the best thing for a kiddo with really slow motility. But, > yes, it is quite complicated. I would doubt that reducing the acidity would > make digestion more difficult. > > > > > > > > Please contact mito-owner with any problems or questions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 Hi, . I am not sure if this is any help to you, at all, but I was wondering if you give your grand-daughter Magnesium Citrate? Magnesium helps soften stool, and we have given it to our daughter to keep her from getting constipated. She's 1 year old, and we give her 200mg at night regularly. We give her more (spread out) if she is having constipation. The only side affect is diareah - and if that happens, you just have to cut it back some. Our daughter doesn't typically have as significant a problem with stooling, but just in case you haven't tried it, I thought I'd mention it. (mom to Daphne) -- In Mito , " and Lawton " <c & j.lawton@x> wrote: > Hi, > > Could someone please give me an explanation on slow motility or even a web-site? > > I am sure that this is what is wrong with my grand-daughter aged 2 years. She has always had a lot of trouble when trying to pass a bowel motion and as a baby screamed when trying. It now takes up to 3 or 4 days with her lying on her side several times over a 3 or 4 day period trying to push the 'poo' out. You can see her stomach muscles working so hard as she tries to push. I worry that she will become very self-conscious with having so much trouble with the pushing that she will stop trying and become severely constipated. > > We live in New-Zealand where Mito is a 'never heard of' disorder so I need information to educate my grand-daughter's paediatrician. > > Thank-you, > > Re: Upper GI/lower follow through results > > > > A fundo is probably not the best thing for a kiddo with really slow motility. But, > yes, it is quite complicated. I would doubt that reducing the acidity would > make digestion more difficult. > > > > > > > > Please contact mito-owner with any problems or questions. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 Hi , Of course you can copy my email. I went to my fridge to make sure I spelled the drug right. The drug is spelled Erythromycin-I think I did spell it right-hooray! It's a drug that is also used as an antibiotic I believe. I learned that when my son was having one of his many tests. They said to stop any antibiotics before the test and I of course said he wasn't taking any. When I listed the meds he was on they said Erythromycin is used as an antibiotic as well. I figured I'd mention that so maybe it'll be easier for the doctor to find. About the constipation, the Miralax that I mentioned was a powder that was a prescription but Milk of Magnesia is an OTC drug here. I think someone else mentioned going to a gastroenterologist or G.I. doc. I highly second that recommendation. A specialist will have a more vast knowledge of the meds needed. Maybe there is a drug in NZ that equals the ones I mentioned. HTH Blessings, > Thanks - unfortunately so many drugs available over-seas are just not available in New-Zealand especially the expensive ones, but I shall mention the ones that you have given me as having helped your son. > > Is it okay to take a copy of your e-mail to the paediatrician next time Kaytie has an appointment? > > . Quote Link to comment Share on other sites More sharing options...
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