Absence from illness

[Guest guest]

Good morning. I am sorry I haven't been around at all. I can't handle what is going on right now. It feels like I am on a 3 day schedule of being sick - nausea, vomiting, head, neck, back and body aches, joint pain, weakness, fatigue. It seems like I have one good day, then the 2nd day isn't too great, I start to feel it coming on at night. Then the 3rd day is so bad I am in bed all day - trying to sleep all day to get rid of the pain. Then the 4th day I am feeling well again ! I don't understand it. I recently saw a new gastro dr. at Mass General Hosp in Boston referred by my local gastro who had given up on how to help me. He did do a lot of tests and did diagnose the gastroparesis though. Reglan doesn't even help though on the bad days. He also put botox in my stomach to make the food go quicker to the small intestine which didn't seem to help. Anyway the new gastro

talked with me and listened to my symptoms and background for about an hour. He looked at my meds and again (Like other drs that I was on too many - old excuse). He also pointed out my anxiety and depression from looking at my meds (Another old excuse) He said there was nothing further he could do for me . It was a big waste of time and travel and I was very disappointed and upset leaving his office. I was looking forward to this appt for 6 wks and it was useless. I also saw a new local Rheumy that my PCP referred me to. I also talked to him about my history , symptoms, complaints,etc. for an hour. Described the history with methoxtrexate and the reaction to Remicade. I told him about the conflicting stories I was getting about the gastro issues and the all over body pains being related. Each dr said something different about the relation. Anyway, he also looked at all my records , and

as he did , he chuckled and said "You've been through a lot in 5 yrs." He noticed the meds I was on and mentioned the psych meds like anxiety and depression drugs. It seems like they always blame the anxiety . I don't even think I should include those meds on the list when I go to see a dr anymore!!! He said he couldn't help me any further either.That all that was done was done. I have given up and have just been living with this for quite a few months now. Needless to say I am depressed , (but just from their reflections.) Thanks for listening guys and I will try to get on here as much as I can. Luv, Debbie T. Co Moderator Debbie T.Co-Moderator

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[Guest guest]

Debbie, I am sorry that you have gotten the run around from doctors again. I guess that's why the doctors have specialties. They are right that they can't do any more. That's probably the limit of their specialty. You need top-notch sarcoid specialists. And that takes research and time. It's too bad we have to do it when we're feeling so sick but that's how it is for all people with chronic diseases. It is a pain in the a**. Keep working on it, girl, cuz you are worth the time and effort. Make the calls on the days you're feeling better. Have you tried Dr. Baughman?...or one of the other doctors recommended by others online? Sometimes even then we have to keep looking cuz someone is missing a piece of the puzzle or it's some other organ that's not being considered. I have a sister-in-law who lives in

Chicago and has had constant BAD migraines and has tried everything and every doctor and even traveled to California to see a specialist in that. And she is a doctor! And she still suffers even after all that. She also has had to pace herself and learn a new normal. I really do wonder if the medical profession shouldn't take more precautions considering all of them that end up with so many illnesses. But what do i know...they probably already take a butt-load of them. Excuse the language. As for me I think you are very very brave to keep looking for a doc who knows what he's doing. I know it's hard. But take a breather and try again. At least you are trying your best to take care of yourself and that is alot more than a lot of other ill people. I have had several relatives with emphazema(sp?)...and they continued to smoke until they died. Chin up, girl, and treat yourself to something today. We are

here for you any time. Vent and share as needed. love and hugs S.Debbie wrote: Good morning. I am sorry I haven't been around at all. I can't handle what is going on right now. It feels like I am on a 3 day schedule of being sick - nausea, vomiting, head, neck, back and body aches, joint pain, weakness, fatigue. It seems like I have one good day, then the 2nd day isn't too great, I start to feel it coming on at night. Then the 3rd day is so bad I am

in bed all day - trying to sleep all day to get rid of the pain. Then the 4th day I am feeling well again ! I don't understand it. I recently saw a new gastro dr. at Mass General Hosp in Boston referred by my local gastro who had given up on how to help me. He did do a lot of tests and did diagnose the gastroparesis though. Reglan doesn't even help though on the bad days. He also put botox in my stomach to make the food go quicker to the small intestine which didn't seem to help. Anyway the new gastro talked with me and listened to my symptoms and background for about an hour. He looked at my meds and again (Like other drs that I was on too many - old excuse). He also pointed out my anxiety and depression from looking at my meds (Another old excuse) He said there was nothing further he could do for me . It was a big waste of time and travel and I was very disappointed and upset

leaving his office. I was looking forward to this appt for 6 wks and it was useless. I also saw a new local Rheumy that my PCP referred me to. I also talked to him about my history , symptoms, complaints,etc. for an hour. Described the history with methoxtrexate and the reaction to Remicade. I told him about the conflicting stories I was getting about the gastro issues and the all over body pains being related. Each dr said something different about the relation. Anyway, he also looked at all my records , and as he did , he chuckled and said "You've been through a lot in 5 yrs." He noticed the meds I was on and mentioned the psych meds like anxiety and depression drugs. It seems like they always blame the anxiety . I don't even think I should include those meds on the list when I go to see a dr anymore!!! He said he couldn't help me any further either.That all that was done was done. I have given up and have just been living with this for quite a few months now. Needless to say I am depressed , (but just from their reflections.) Thanks for listening guys and I will try to get on here as much as I can. Luv, Debbie T. Co Moderator Debbie T.Co-Moderator Looking for last minute shopping deals? Find them fast with Yahoo! Search.

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[Guest guest]

Debbie,You are in my prayers.God bless you,BeckyDebbie wrote: Good morning. I am sorry I haven't been around at all. I can't handle what is going on right now. It feels like I am on a 3 day schedule of being sick - nausea, vomiting, head, neck, back and body aches, joint pain, weakness, fatigue. It seems like I have one good day, then the 2nd day isn't too great, I start to feel it coming on at night. Then the 3rd day is so bad I am in bed all day - trying to sleep all day to get

rid of the pain. Then the 4th day I am feeling well again ! I don't understand it. I recently saw a new gastro dr. at Mass General Hosp in Boston referred by my local gastro who had given up on how to help me. He did do a lot of tests and did diagnose the gastroparesis though. Reglan doesn't even help though on the bad days. He also put botox in my stomach to make the food go quicker to the small intestine which didn't seem to help. Anyway the new gastro talked with me and listened to my symptoms and background for about an hour. He looked at my meds and again (Like other drs that I was on too many - old excuse). He also pointed out my anxiety and depression from looking at my meds (Another old excuse) He said there was nothing further he could do for me . It was a big waste of time and travel and I was very disappointed and upset leaving his office. I was looking forward

to this appt for 6 wks and it was useless. I also saw a new local Rheumy that my PCP referred me to. I also talked to him about my history , symptoms, complaints,etc. for an hour. Described the history with methoxtrexate and the reaction to Remicade. I told him about the conflicting stories I was getting about the gastro issues and the all over body pains being related. Each dr said something different about the relation. Anyway, he also looked at all my records , and as he did , he chuckled and said "You've been through a lot in 5 yrs." He noticed the meds I was on and mentioned the psych meds like anxiety and depression drugs. It seems like they always blame the anxiety . I don't even think I should include those meds on the list when I go to see a dr anymore!!! He said he couldn't help me any further either.That all that was done was done. I have given up and have just been living

with this for quite a few months now. Needless to say I am depressed , (but just from their reflections.) Thanks for listening guys and I will try to get on here as much as I can. Luv, Debbie T. Co Moderator Debbie T.Co-Moderator Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.