Re: Feedback plz on CF pics

[Guest guest]

Is there a possibility that you could get an Angel

Flight to Seattle? That could make it a more

manageable day there. Also if there is a

Mc house in Seattle, that could ease that

burden.

Jenni

--- Christee wrote:

> Please give me some feedback on how her foot looks.

> She has had 6

> casts so far. I thought the Dr. was following the

> Ponseti method

> until I actually consulted Dr. Ponseti himself. Dr.

> Barmada of

> Emanuel Hosp. in Portland,Or. wanted to do the

> Tenotomy (sp?) now. He

> has also left her cast off for almost a week now.

> She kept kicking

> them off. She kicked off 2 casts in less than 72hrs.

> Maybe she has A-

> Typical CF? Any advice and feedback on what you

> think after looking

> at her pictures would be great. Also thank you to

> those who have

> already given me some feedback. I HAVE cancelled her

> Tenotomy for

> Tue. I would like her to be treated by Dr. Ponseti

> himself, but we

> dont have alot of $$$. I have looked a little at

> Angel Flights, but

> they dont go all the way to Iowa from Oregon. (

> Any suggestions? I

> am aware of Dr. Mosca in Seattle. That is 4hrs away

> and I dont know

> how I can have her there to be casted every 5 days,

> pay for all that

> gas, travel expenses, and motels. Then theres the

> other issue of I

> have 3 other kids!! What am I to do with them.

> Seattle would have to

> be a 2 day trip for us. What about their school,

> etc. Anyhow, here si

> teh website address for Lilee's CF...

> http://community.webshots.com/user/dawsonfam

>

> Christee - 27 - Oregon

> Lilee - 5 weeks - R ClubFoot - L Metatarsus Adductus

>

>

>

>

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

Poor thing - but you did the right thing so far, getting rid of that doctor and

canceling that tenotomy. Atypical or not - I can't say but just incompetent

casting will cause the casts to fall off also.

Four hours drive isn't the end of the world although yes, the price of gas is

extreme. However, this isn't going to be a permanent thing - just a few weeks

worth initially. And often if it's a long trip they might do it every 7 days

rather than 5. If your appt. was in the afternoon you could leave out early,

drive there, get casted and drive home. Makes for a long day, but it is worth

it because this is basically your last chance to get her feet done up right and

she'll have to live on those feet for the rest of her life, kwim?

I guess I'm saying don't let a few weeks inconvienience dictate the next eighty

to a hunred years of this child's feet, her health and well being are attached

to those feet for all her years to come, and ultimately cf is very treatable, so

a life on malfunctionining feet is unreasonable. These few weeks of making long

trips and tightening the budget more than pay off in the end. Certainly there

is somewhere you can skimp to afford the gasoline - cancel the cable TV? Ask

your church for donations? I don't know - but this is what I do know: Where

there is a will, there is a way. There is no substitute for getting her the

proper care right now while she's young enough to respond to it. We drive 12

hours for the best care because I didn't know anything when my first son was

born with bcf and he now has malfunctioning feet, for the rest of his life.

With baby #2 we drive 12 hours to make sure that doesn't happen.

Is there a Mc house near this doctor four hours away? We had to

stay in Iowa 3 weeks at the RMD there, I took my older kid with me and all his

school work.

Good luck,

s.

Feedback plz on CF pics

Please give me some feedback on how her foot looks. She has had 6

casts so far. I thought the Dr. was following the Ponseti method

until I actually consulted Dr. Ponseti himself. Dr. Barmada of

Emanuel Hosp. in Portland,Or. wanted to do the Tenotomy (sp?) now. He

has also left her cast off for almost a week now. She kept kicking

them off. She kicked off 2 casts in less than 72hrs. Maybe she has A-

Typical CF? Any advice and feedback on what you think after looking

at her pictures would be great. Also thank you to those who have

already given me some feedback. I HAVE cancelled her Tenotomy for

Tue. I would like her to be treated by Dr. Ponseti himself, but we

dont have alot of $$$. I have looked a little at Angel Flights, but

they dont go all the way to Iowa from Oregon. ( Any suggestions? I

am aware of Dr. Mosca in Seattle. That is 4hrs away and I dont know

how I can have her there to be casted every 5 days, pay for all that

gas, travel expenses, and motels. Then theres the other issue of I

have 3 other kids!! What am I to do with them. Seattle would have to

be a 2 day trip for us. What about their school, etc. Anyhow, here si

teh website address for Lilee's CF...

http://community.webshots.com/user/dawsonfam

Christee - 27 - Oregon

Lilee - 5 weeks - R ClubFoot - L Metatarsus Adductus

[Guest guest]

Christee,

In my opinion--and I'm not a medical doctor here--that foot does not look

corrected. It doesn't look quite ready for the tenotomy either. Whether this

is because of being out of any kind of cast or retaining device for a week or

because it wasn't fully corrected to begin with, I don't know. What I do know

is that any doctor who is leaving a baby this small out of casts for a week is

not following the Ponseti protocol very closely and should be questionned.

Whether your daughter has an a-typical case or not, I can't really say. She

doesn't have the tell-tale crease across the sole as far as I can tell and her

foot doesn't seem too fat and sausage-y. However, kicking casts off is NOT a

good sign. Were these casts that went up to her thigh and had her knee bent at

a 90 degree angle? Those don't usually get kicked off unless there is something

fishy going on (poor casting technique, a-typical foot).

As for what to do... I'm inclined to tell you to ditch the doctor you are

seeing. There are doctors at the Shriner's hospital in Portland who are using a

modified version of the Ponseti method. I'm inclined to tell you to stay away

from them unless you are going to be on their backs about casting her foot all

the way out to 70 degrees of abduction. In their favor is the fact that they

are close to you (relatively speaking) and that care there is provided free of

charge. If you went to see them, I would encourage you to have at least one

consultation with Dr Mosca in Seattle to make sure the foot is fully corrected.

You also have the option of going straight to Dr Mosca--which I would definitely

do if her foot is a-typical. He is a terrific doctor and has much experience

and success with the Ponseti method. There is a Mc House across

the street from Children's Hospital where you can stay for very cheap. The

possibility of getting Angel Flights to fly you up there

and back is a good one. This would allow you to go up, have your appointment

and get back home all in the same day. And Children's has a very good financial

aid program from what I have heard.

Hugs to you and to Lilee and to the rest of your family. We're rooting for you

and if there is anything else we can help you with, please let us know.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

Christee wrote:

Please give me some feedback on how her foot looks. She has had 6

casts so far. I thought the Dr. was following the Ponseti method

until I actually consulted Dr. Ponseti himself. Dr. Barmada of

Emanuel Hosp. in Portland,Or. wanted to do the Tenotomy (sp?) now. He

has also left her cast off for almost a week now. She kept kicking

them off. She kicked off 2 casts in less than 72hrs. Maybe she has A-

Typical CF? Any advice and feedback on what you think after looking

at her pictures would be great. Also thank you to those who have

already given me some feedback. I HAVE cancelled her Tenotomy for

Tue. I would like her to be treated by Dr. Ponseti himself, but we

dont have alot of $$$. I have looked a little at Angel Flights, but

they dont go all the way to Iowa from Oregon. ( Any suggestions? I

am aware of Dr. Mosca in Seattle. That is 4hrs away and I dont know

how I can have her there to be casted every 5 days, pay for all that

gas, travel expenses, and motels. Then theres the other issue of I

have 3 other kids!! What am I to do with them. Seattle would have to

be a 2 day trip for us. What about their school, etc. Anyhow, here si

teh website address for Lilee's CF...

http://community.webshots.com/user/dawsonfam

Christee - 27 - Oregon

Lilee - 5 weeks - R ClubFoot - L Metatarsus Adductus

[Guest guest]

Yes, she was having full leg plaster casts. They were bent at 90degrees also.

About Angel Flights. I looked on their website and they dont fly from Oregon all

the way to Iowa. I havent spoken with them yet. I am going to this week. I am in

Hood River, Oregon. It ia 60 miles E. of Portland.

Naomi wrote:Christee,

In my opinion--and I'm not a medical doctor here--that foot does not look

corrected. It doesn't look quite ready for the tenotomy either. Whether this

is because of being out of any kind of cast or retaining device for a week or

because it wasn't fully corrected to begin with, I don't know. What I do know

is that any doctor who is leaving a baby this small out of casts for a week is

not following the Ponseti protocol very closely and should be questionned.

Whether your daughter has an a-typical case or not, I can't really say. She

doesn't have the tell-tale crease across the sole as far as I can tell and her

foot doesn't seem too fat and sausage-y. However, kicking casts off is NOT a

good sign. Were these casts that went up to her thigh and had her knee bent at

a 90 degree angle? Those don't usually get kicked off unless there is something

fishy going on (poor casting technique, a-typical foot).

As for what to do... I'm inclined to tell you to ditch the doctor you are

seeing. There are doctors at the Shriner's hospital in Portland who are using a

modified version of the Ponseti method. I'm inclined to tell you to stay away

from them unless you are going to be on their backs about casting her foot all

the way out to 70 degrees of abduction. In their favor is the fact that they

are close to you (relatively speaking) and that care there is provided free of

charge. If you went to see them, I would encourage you to have at least one

consultation with Dr Mosca in Seattle to make sure the foot is fully corrected.

You also have the option of going straight to Dr Mosca--which I would definitely

do if her foot is a-typical. He is a terrific doctor and has much experience

and success with the Ponseti method. There is a Mc House across

the street from Children's Hospital where you can stay for very cheap. The

possibility of getting Angel Flights to fly you up there

and back is a good one. This would allow you to go up, have your appointment

and get back home all in the same day. And Children's has a very good financial

aid program from what I have heard.

Hugs to you and to Lilee and to the rest of your family. We're rooting for you

and if there is anything else we can help you with, please let us know.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

Christee wrote:

Please give me some feedback on how her foot looks. She has had 6

casts so far. I thought the Dr. was following the Ponseti method

until I actually consulted Dr. Ponseti himself. Dr. Barmada of

Emanuel Hosp. in Portland,Or. wanted to do the Tenotomy (sp?) now. He

has also left her cast off for almost a week now. She kept kicking

them off. She kicked off 2 casts in less than 72hrs. Maybe she has A-

Typical CF? Any advice and feedback on what you think after looking

at her pictures would be great. Also thank you to those who have

already given me some feedback. I HAVE cancelled her Tenotomy for

Tue. I would like her to be treated by Dr. Ponseti himself, but we

dont have alot of $$$. I have looked a little at Angel Flights, but

they dont go all the way to Iowa from Oregon. ( Any suggestions? I

am aware of Dr. Mosca in Seattle. That is 4hrs away and I dont know

how I can have her there to be casted every 5 days, pay for all that

gas, travel expenses, and motels. Then theres the other issue of I

have 3 other kids!! What am I to do with them. Seattle would have to

be a 2 day trip for us. What about their school, etc. Anyhow, here si

teh website address for Lilee's CF...

http://community.webshots.com/user/dawsonfam

Christee - 27 - Oregon

Lilee - 5 weeks - R ClubFoot - L Metatarsus Adductus

[Guest guest]

Christee,

I agree with Naomi - her feet do not look corrected. We are in

Seattle and my daughter, Addison, now sees Dr. Mosca at

Children's Hospital. He is excellent. It would be worth the 4-hour

drive to see him at Children's Hospital. I highly suggest him,

especially if it is going to be difficult getting from Oregon to

Iowa. You'll be in safe hands with him!

> Please give me some feedback on how her foot looks. She has had 6

> casts so far. I thought the Dr. was following the Ponseti method

> until I actually consulted Dr. Ponseti himself. Dr. Barmada of

> Emanuel Hosp. in Portland,Or. wanted to do the Tenotomy (sp?) now.

He

> has also left her cast off for almost a week now. She kept kicking

> them off. She kicked off 2 casts in less than 72hrs. Maybe she has

A-

> Typical CF? Any advice and feedback on what you think after

looking

> at her pictures would be great. Also thank you to those who have

> already given me some feedback. I HAVE cancelled her Tenotomy for

> Tue. I would like her to be treated by Dr. Ponseti himself, but we

> dont have alot of $$$. I have looked a little at Angel Flights,

but

> they dont go all the way to Iowa from Oregon. ( Any suggestions?

I

> am aware of Dr. Mosca in Seattle. That is 4hrs away and I dont

know

> how I can have her there to be casted every 5 days, pay for all

that

> gas, travel expenses, and motels. Then theres the other issue of I

> have 3 other kids!! What am I to do with them. Seattle would have

to

> be a 2 day trip for us. What about their school, etc. Anyhow, here

si

> teh website address for Lilee's CF...

> http://community.webshots.com/user/dawsonfam

>

> Christee - 27 - Oregon

> Lilee - 5 weeks - R ClubFoot - L Metatarsus Adductus

>

>

>

>

>

>

[Guest guest]

They have different branches of Angel flights. Maybe the west branch could

arrange something with the east? It couldn't hurt to ask...

christee dawson wrote:Yes, she was having full leg

plaster casts. They were bent at 90degrees also. About Angel Flights. I looked

on their website and they dont fly from Oregon all the way to Iowa. I havent

spoken with them yet. I am going to this week. I am in Hood River, Oregon. It ia

60 miles E. of Portland.

Naomi wrote:Christee,

In my opinion--and I'm not a medical doctor here--that foot does not look

corrected. It doesn't look quite ready for the tenotomy either. Whether this

is because of being out of any kind of cast or retaining device for a week or

because it wasn't fully corrected to begin with, I don't know. What I do know

is that any doctor who is leaving a baby this small out of casts for a week is

not following the Ponseti protocol very closely and should be questionned.

Whether your daughter has an a-typical case or not, I can't really say. She

doesn't have the tell-tale crease across the sole as far as I can tell and her

foot doesn't seem too fat and sausage-y. However, kicking casts off is NOT a

good sign. Were these casts that went up to her thigh and had her knee bent at

a 90 degree angle? Those don't usually get kicked off unless there is something

fishy going on (poor casting technique, a-typical foot).

As for what to do... I'm inclined to tell you to ditch the doctor you are

seeing. There are doctors at the Shriner's hospital in Portland who are using a

modified version of the Ponseti method. I'm inclined to tell you to stay away

from them unless you are going to be on their backs about casting her foot all

the way out to 70 degrees of abduction. In their favor is the fact that they

are close to you (relatively speaking) and that care there is provided free of

charge. If you went to see them, I would encourage you to have at least one

consultation with Dr Mosca in Seattle to make sure the foot is fully corrected.

You also have the option of going straight to Dr Mosca--which I would definitely

do if her foot is a-typical. He is a terrific doctor and has much experience

and success with the Ponseti method. There is a Mc House across

the street from Children's Hospital where you can stay for very cheap. The

possibility of getting Angel Flights to fly you up there

and back is a good one. This would allow you to go up, have your appointment

and get back home all in the same day. And Children's has a very good financial

aid program from what I have heard.

Hugs to you and to Lilee and to the rest of your family. We're rooting for you

and if there is anything else we can help you with, please let us know.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

Christee wrote:

Please give me some feedback on how her foot looks. She has had 6

casts so far. I thought the Dr. was following the Ponseti method

until I actually consulted Dr. Ponseti himself. Dr. Barmada of

Emanuel Hosp. in Portland,Or. wanted to do the Tenotomy (sp?) now. He

has also left her cast off for almost a week now. She kept kicking

them off. She kicked off 2 casts in less than 72hrs. Maybe she has A-

Typical CF? Any advice and feedback on what you think after looking

at her pictures would be great. Also thank you to those who have

already given me some feedback. I HAVE cancelled her Tenotomy for

Tue. I would like her to be treated by Dr. Ponseti himself, but we

dont have alot of $$$. I have looked a little at Angel Flights, but

they dont go all the way to Iowa from Oregon. ( Any suggestions? I

am aware of Dr. Mosca in Seattle. That is 4hrs away and I dont know

how I can have her there to be casted every 5 days, pay for all that

gas, travel expenses, and motels. Then theres the other issue of I

have 3 other kids!! What am I to do with them. Seattle would have to

be a 2 day trip for us. What about their school, etc. Anyhow, here si

teh website address for Lilee's CF...

http://community.webshots.com/user/dawsonfam

Christee - 27 - Oregon

Lilee - 5 weeks - R ClubFoot - L Metatarsus Adductus

[Guest guest]

Even if Angel Flights won't take you from OR to IA, they would probably take you

from Hood River to Seattle to see Dr Mosca. And you'd be able to make each trip

in one day so it would, hopefully, be far less of a hassle. And far less

expensive.

If you do end up going to Iowa City, you'd most likely stay there the whole time

Lilee was being casted. They decrease the time between casts for people who are

there from far away, changing them every 5 days. There is a Mc

House there, and plenty of folks from this group who have stayed there who can

give you the low-down.

It's hard processing all of this. We live on the fairly rural Northern

California coast where we do not have any pediatric orthopedic specialists. We

initially sought treatment from a local doctor, who has some experience treating

clubfoot. After doing research and watching things stall in Jonah's progress,

we decided to look for something else. We now drive some 600 miles round-trip

to see a doctor who practices the Ponseti method. The casting period was

hectic--we were drove back and forth every week for 5 weeks with a tiny baby and

a 2-year-old in the car. Now, we only have to go for check-ups every few

months. Jonah's feet are perfectly corrected without the need for the surgery

the local doctor told us was in his future. He walks, he runs, he jumps off

furniture, he taps his foot in time with music. I wish it didn't have to be so

hard for everyone who needs it to receive excellent care.

All the best to you and yours,

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

christee dawson wrote:

Yes, she was having full leg plaster casts. They were bent at 90degrees also.

About Angel Flights. I looked on their website and they dont fly from Oregon all

the way to Iowa. I havent spoken with them yet. I am going to this week. I am in

Hood River, Oregon. It ia 60 miles E. of Portland.

Naomi wrote:Christee,

In my opinion--and I'm not a medical doctor here--that foot does not look

corrected. It doesn't look quite ready for the tenotomy either. Whether this

is because of being out of any kind of cast or retaining device for a week or

because it wasn't fully corrected to begin with, I don't know. What I do know

is that any doctor who is leaving a baby this small out of casts for a week is

not following the Ponseti protocol very closely and should be questionned.

Whether your daughter has an a-typical case or not, I can't really say. She

doesn't have the tell-tale crease across the sole as far as I can tell and her

foot doesn't seem too fat and sausage-y. However, kicking casts off is NOT a

good sign. Were these casts that went up to her thigh and had her knee bent at

a 90 degree angle? Those don't usually get kicked off unless there is something

fishy going on (poor casting technique, a-typical foot).

As for what to do... I'm inclined to tell you to ditch the doctor you are

seeing. There are doctors at the Shriner's hospital in Portland who are using a

modified version of the Ponseti method. I'm inclined to tell you to stay away

from them unless you are going to be on their backs about casting her foot all

the way out to 70 degrees of abduction. In their favor is the fact that they

are close to you (relatively speaking) and that care there is provided free of

charge. If you went to see them, I would encourage you to have at least one

consultation with Dr Mosca in Seattle to make sure the foot is fully corrected.

You also have the option of going straight to Dr Mosca--which I would definitely

do if her foot is a-typical. He is a terrific doctor and has much experience

and success with the Ponseti method. There is a Mc House across

the street from Children's Hospital where you can stay for very cheap. The

possibility of getting Angel Flights to fly you up there

and back is a good one. This would allow you to go up, have your appointment

and get back home all in the same day. And Children's has a very good financial

aid program from what I have heard.

Hugs to you and to Lilee and to the rest of your family. We're rooting for you

and if there is anything else we can help you with, please let us know.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

Christee wrote:

Please give me some feedback on how her foot looks. She has had 6

casts so far. I thought the Dr. was following the Ponseti method

until I actually consulted Dr. Ponseti himself. Dr. Barmada of

Emanuel Hosp. in Portland,Or. wanted to do the Tenotomy (sp?) now. He

has also left her cast off for almost a week now. She kept kicking

them off. She kicked off 2 casts in less than 72hrs. Maybe she has A-

Typical CF? Any advice and feedback on what you think after looking

at her pictures would be great. Also thank you to those who have

already given me some feedback. I HAVE cancelled her Tenotomy for

Tue. I would like her to be treated by Dr. Ponseti himself, but we

dont have alot of $$$. I have looked a little at Angel Flights, but

they dont go all the way to Iowa from Oregon. ( Any suggestions? I

am aware of Dr. Mosca in Seattle. That is 4hrs away and I dont know

how I can have her there to be casted every 5 days, pay for all that

gas, travel expenses, and motels. Then theres the other issue of I

have 3 other kids!! What am I to do with them. Seattle would have to

be a 2 day trip for us. What about their school, etc. Anyhow, here si

teh website address for Lilee's CF...

http://community.webshots.com/user/dawsonfam

Christee - 27 - Oregon

Lilee - 5 weeks - R ClubFoot - L Metatarsus Adductus

[Guest guest]

As for the tale-tale middle crease, Gabe's wasn't obvious. It was at birth, but

after a few castings only the small residual lines of it were apparent. He still

needed cavus correction, but that didn't happen during casting. The s

corrected the cavus deformity in Gabe's feet. After about 3 months of wearing

these with the strap cranked down TIGHTLY, at his next check up the caus

deformity was corrected and has been fine since.

Naomi wrote:Christee,

In my opinion--and I'm not a medical doctor here--that foot does not look

corrected. It doesn't look quite ready for the tenotomy either. Whether this

is because of being out of any kind of cast or retaining device for a week or

because it wasn't fully corrected to begin with, I don't know. What I do know

is that any doctor who is leaving a baby this small out of casts for a week is

not following the Ponseti protocol very closely and should be questionned.

Whether your daughter has an a-typical case or not, I can't really say. She

doesn't have the tell-tale crease across the sole as far as I can tell and her

foot doesn't seem too fat and sausage-y. However, kicking casts off is NOT a

good sign. Were these casts that went up to her thigh and had her knee bent at

a 90 degree angle? Those don't usually get kicked off unless there is something

fishy going on (poor casting technique, a-typical foot).

As for what to do... I'm inclined to tell you to ditch the doctor you are

seeing. There are doctors at the Shriner's hospital in Portland who are using a

modified version of the Ponseti method. I'm inclined to tell you to stay away

from them unless you are going to be on their backs about casting her foot all

the way out to 70 degrees of abduction. In their favor is the fact that they

are close to you (relatively speaking) and that care there is provided free of

charge. If you went to see them, I would encourage you to have at least one

consultation with Dr Mosca in Seattle to make sure the foot is fully corrected.

You also have the option of going straight to Dr Mosca--which I would definitely

do if her foot is a-typical. He is a terrific doctor and has much experience

and success with the Ponseti method. There is a Mc House across

the street from Children's Hospital where you can stay for very cheap. The

possibility of getting Angel Flights to fly you up there

and back is a good one. This would allow you to go up, have your appointment

and get back home all in the same day. And Children's has a very good financial

aid program from what I have heard.

Hugs to you and to Lilee and to the rest of your family. We're rooting for you

and if there is anything else we can help you with, please let us know.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

Christee wrote:

Please give me some feedback on how her foot looks. She has had 6

casts so far. I thought the Dr. was following the Ponseti method

until I actually consulted Dr. Ponseti himself. Dr. Barmada of

Emanuel Hosp. in Portland,Or. wanted to do the Tenotomy (sp?) now. He

has also left her cast off for almost a week now. She kept kicking

them off. She kicked off 2 casts in less than 72hrs. Maybe she has A-

Typical CF? Any advice and feedback on what you think after looking

at her pictures would be great. Also thank you to those who have

already given me some feedback. I HAVE cancelled her Tenotomy for

Tue. I would like her to be treated by Dr. Ponseti himself, but we

dont have alot of $$$. I have looked a little at Angel Flights, but

they dont go all the way to Iowa from Oregon. ( Any suggestions? I

am aware of Dr. Mosca in Seattle. That is 4hrs away and I dont know

how I can have her there to be casted every 5 days, pay for all that

gas, travel expenses, and motels. Then theres the other issue of I

have 3 other kids!! What am I to do with them. Seattle would have to

be a 2 day trip for us. What about their school, etc. Anyhow, here si

teh website address for Lilee's CF...

http://community.webshots.com/user/dawsonfam

Christee - 27 - Oregon

Lilee - 5 weeks - R ClubFoot - L Metatarsus Adductus

[Guest guest]

>

> It's hard processing all of this. We live on the fairly rural

Northern California coast where we do not have any pediatric

orthopedic specialists.

We had a similar situation. We live in Maine and there isn't a

Ponseti doctor in the whole state. We were scheduled for major

surgery with our orthopedic surgeon when I found out about Dr.

Ponseti. The closest place to us with Ponseti doctors was

Massachusetts. For the first appointment we drove the 4 1/2 hours

and after that we took Angel Flight every week. It was a royal pain

in the butt, but every time we look at 's perfect little feet

and know we saved him from major surgery and painful feet later in

life, we are so glad we did it. Once the weekly casting and tenotomy

were done we only have to go every three months.

Good luck. Many of us have been where you are now. Let us know what

you decide to do.

and 11/10/03 dbb 14/7