Re: Re: Curvy sitting and foot pointing straight

[Guest guest]

Thanks, Lori. Okay, I figured the foor thing is probably b/c that's how he

positions himself when he's in the FAB. Especially when he sleeps on his

side--the left leg is bent and the right one is up in the air un-bent.

As for the curvy sitting, I think that may be separate, but I just wanted to see

if any other CF parents have noticed this, so that if it IS related to the FAB

or whatever, I can kinda explain it. But it may be a spinal curvature issue.

:-( As if we didn't have enough to worry about. It's so funny, because the

clubfoot used to be the MAJOR thing I was always worried about and stressed

about and now that's taken a backseat to all these other little things that have

popped up since birth--tightness in two fingers on each hand, ptosis (droopy

eyelid) on the left eye, torticollis (he tilts his head to the left), and now

the way he sits. I try to just enjoy him and cherish this first year, but I

always find myself looking at him and examining him, trying to figure out if

these things are at all connected or individual problems or what!

Thanks again!

Lori and Elijah wrote:

Our 16 month old, Elijah has always sat with one leg out and one leg

under him. He's RCF and keeps the right foot out and the left

under him. My husband will pull the left leg out and Elijah will

put it right back under, LOL!

Ive not noticed that he sits curvy tho'.

Lori

Mom to , Nova, Ethan and Elijah 3/26/04 RCF Atypical DBB

nights only.

> Hello, everyone! I have two separate questions. (8 months

old next week) has a right club foot and is currently in the FAB for

14-16 hours a day. I've recently noticed more and more that when he

sits up, his body leans to the right and his head leans to the

left. Looks almost like an " S " from the back. He DOES have

torticollis, but the way he leans his body that way just looks weird

to me. Has anyone seen anything similar. He had spinal x-rays when

he was born and no one mentioned anything about scoliosis, but who

knows?

>

> Also, he has unilateral right CF and when he's out of the shoes,

he usually keeps his left leg bent and the foot dorsiflexed

normally, but the right leg is usually kept straight and the toes

pointing down. Is this normal? I believe his foot is fully

corrected. He's had no probelms with the shoes. He also has just

recently started standing for a few seconds at a time with help, so

I don't know if that will help keep his foot more dorsiflexed.

>

> If anyone has anything to say about any of this, I'd love to hear!

>

> Thanks in advance to everyone!!!!!!!!!!!!!!

>

>

> mommy of (12/15/04 RT CF, FAB 14/16 hrs a day)

>

>

>

> __________________________________________________

>

[Guest guest]

sits like this as well! He also has torticollis, and his developmental

dr. seems to think that is what is causing him to sit this way. He also is

really tight in his neck and back all around, so I don't know if your little guy

is or not. Just wanted to let you know you aren't the only one. We have been

working on this for 3 months in physical therapy. It has gotten slightly better

as he has gained more control of his torso How old is your son and does he get

physical therapy?

11/19/04

Re: Re: Curvy sitting and foot pointing straight

Thanks, Lori. Okay, I figured the foor thing is probably b/c that's how he

positions himself when he's in the FAB. Especially when he sleeps on his

side--the left leg is bent and the right one is up in the air un-bent

As for the curvy sitting, I think that may be separate, but I just wanted to see

if any other CF parents have noticed this, so that if it IS related to the FAB

or whatever, I can kinda explain it. But it may be a spinal curvature issue.

:-( As if we didn't have enough to worry about. It's so funny, because the

clubfoot used to be the MAJOR thing I was always worried about and stressed

about and now that's taken a backseat to all these other little things that have

popped up since birth--tightness in two fingers on each hand, ptosis (droopy

eyelid) on the left eye, torticollis (he tilts his head to the left), and now

the way he sits. I try to just enjoy him and cherish this first year, but I

always find myself looking at him and examining him, trying to figure out if

these things are at all connected or individual problems or what!

Thanks again!

Lori and Elijah wrote:

Our 16 month old, Elijah has always sat with one leg out and one leg

under him. He's RCF and keeps the right foot out and the left

under him. My husband will pull the left leg out and Elijah will

put it right back under, LOL!

Ive not noticed that he sits curvy tho'.

Lori

Mom to , Nova, Ethan and Elijah 3/26/04 RCF Atypical DBB

nights only.

> Hello, everyone! I have two separate questions. (8 months

old next week) has a right club foot and is currently in the FAB for

14-16 hours a day. I've recently noticed more and more that when he

sits up, his body leans to the right and his head leans to the

left. Looks almost like an " S " from the back. He DOES have

torticollis, but the way he leans his body that way just looks weird

to me. Has anyone seen anything similar. He had spinal x-rays when

he was born and no one mentioned anything about scoliosis, but who

knows?

>

> Also, he has unilateral right CF and when he's out of the shoes,

he usually keeps his left leg bent and the foot dorsiflexed

normally, but the right leg is usually kept straight and the toes

pointing down. Is this normal? I believe his foot is fully

corrected. He's had no probelms with the shoes. He also has just

recently started standing for a few seconds at a time with help, so

I don't know if that will help keep his foot more dorsiflexed.

>

> If anyone has anything to say about any of this, I'd love to hear!

>

> Thanks in advance to everyone!!!!!!!!!!!!!!

>

>

> mommy of (12/15/04 RT CF, FAB 14/16 hrs a day)

>

>

>

> __________________________________________________

>

[Guest guest]

Oh, my, I can sooo totally relate, especially the last paragraph! I hate the way

I'm always looking for things, and the way everyone else is. My dd has the

droopy eyelid thing too, on her right eye. Though I don't know that it's been

labeled as such (actually, I didn't know there was a label for it). We are also

seeing a geneticist to see if there's an underlying condition, but she also has

eyes that are slanted up on the ends, almost Asian looking, though we're not

Asian, right cf, teratologic dislocated hips (dislocated from birth, not

developmental), slow development, really long tapered fingers, so far none of

these anomollies have added up to anything, but they're constantly looking for

something. It's awful. I will say though, our little angel girl is precious and

I am so thankful every day we have her. It's just a constant struggle to not be

" looking " for something wrong. It's hard to focus on all the right things and

how wonderful she is, but I would urge you to aim for that, because your little

one is precious too. And we are fortunate to have them!

Marcia

Re: Re: Curvy sitting and foot pointing straight

Thanks, Lori. Okay, I figured the foor thing is probably b/c that's how he

positions himself when he's in the FAB. Especially when he sleeps on his

side--the left leg is bent and the right one is up in the air un-bent.

As for the curvy sitting, I think that may be separate, but I just wanted to

see if any other CF parents have noticed this, so that if it IS related to the

FAB or whatever, I can kinda explain it. But it may be a spinal curvature

issue. :-( As if we didn't have enough to worry about. It's so funny, because

the clubfoot used to be the MAJOR thing I was always worried about and stressed

about and now that's taken a backseat to all these other little things that have

popped up since birth--tightness in two fingers on each hand, ptosis (droopy

eyelid) on the left eye, torticollis (he tilts his head to the left), and now

the way he sits. I try to just enjoy him and cherish this first year, but I

always find myself looking at him and examining him, trying to figure out if

these things are at all connected or individual problems or what!

Thanks again!

Lori and Elijah wrote:

Our 16 month old, Elijah has always sat with one leg out and one leg

under him. He's RCF and keeps the right foot out and the left

under him. My husband will pull the left leg out and Elijah will

put it right back under, LOL!

Ive not noticed that he sits curvy tho'.

Lori

Mom to , Nova, Ethan and Elijah 3/26/04 RCF Atypical DBB

nights only.

> Hello, everyone! I have two separate questions. (8 months

old next week) has a right club foot and is currently in the FAB for

14-16 hours a day. I've recently noticed more and more that when he

sits up, his body leans to the right and his head leans to the

left. Looks almost like an " S " from the back. He DOES have

torticollis, but the way he leans his body that way just looks weird

to me. Has anyone seen anything similar. He had spinal x-rays when

he was born and no one mentioned anything about scoliosis, but who

knows?

>

> Also, he has unilateral right CF and when he's out of the shoes,

he usually keeps his left leg bent and the foot dorsiflexed

normally, but the right leg is usually kept straight and the toes

pointing down. Is this normal? I believe his foot is fully

corrected. He's had no probelms with the shoes. He also has just

recently started standing for a few seconds at a time with help, so

I don't know if that will help keep his foot more dorsiflexed.

>

> If anyone has anything to say about any of this, I'd love to hear!

>

> Thanks in advance to everyone!!!!!!!!!!!!!!

>

>

> mommy of (12/15/04 RT CF, FAB 14/16 hrs a day)

>

>

>

> __________________________________________________

>

[Guest guest]

OK this is veering off of feet but Kelsey has that

little pucker at the top of her butt as well. As an

infant, they did an ultrasound to rule out spina

bifida because it also it also has a skin tag inside

it which I guess can be an indicator. It turned out

to be nothing but that is funny that another little

one on here has it as well.

Jenni

--- Lori and Elijah wrote:

> ,

>

> Its funny that you mention the butt crack. When

> Elijah was really

> young and being treated by the Air Force Dr, she

> asked me on several

> occasions to look at his butt crack and thought it

> looked funny, as

> tho' it werent fully developed and had some sort of

> (for lack of a

> better word) 'pucker' at the top. I didnt think it

> looked odd, it

> looked like the other babies Id had. I dont

> remember what she

> called the condition.

>

> lol, she also asked if any of our extended family

> members had that

> and before I could answer her with, " I have no

> idea. " my mind raced

> forward to questioning individual family members as

> to the condition

> of their butt creases and I got the giggles.

>

> She kept an eye on it and it turned out to be

> nothing.

>

>

> Lori

>

>

>

> > > > Hello, everyone! I have two separate

> questions. (8

> > months

> > > old next week) has a right club foot and is

> currently in the

> FAB

> > for

> > > 14-16 hours a day. I've recently noticed more

> and more that

> > when he

> > > sits up, his body leans to the right and his

> head leans to the

> > > left. Looks almost like an " S " from the back.

> He DOES have

> > > torticollis, but the way he leans his body

> that way just looks

> > weird

> > > to me. Has anyone seen anything similar. He

> had

=== message truncated ===

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

__________________________________________________

[Guest guest]

--- Jenni Cypher wrote:

> OK this is veering off of feet but Kelsey has that

> little pucker at the top of her butt as well. As an

> infant, they did an ultrasound to rule out spina

> bifida because it also it also has a skin tag inside

> it which I guess can be an indicator. It turned out

> to be nothing but that is funny that another little

> one on here has it as well.

When Rose was born, she had a sacral dimple (which can indicate spina bifida

occulta-meaning closed spina bifida). The u/s she had ruled that out. Each

doctor we saw, though, would check her feet and check her diaper area. I have

to wonder if it's pretty common in clubfoot children.

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

--- Lori and Elijah wrote:

> ,

>

> Its funny that you mention the butt crack. When Elijah was really

> young and being treated by the Air Force Dr, she asked me on several

> occasions to look at his butt crack and thought it looked funny, as

> tho' it werent fully developed and had some sort of (for lack of a

> better word) 'pucker' at the top. I didnt think it looked odd, it

> looked like the other babies Id had. I dont remember what she

> called the condition.

Did she perhaps call it a sacral dimple? If so, it can be an indicator of

spina bifida occulta. Usually, there are no problems associated with it, but

on occasion there can be.

> lol, she also asked if any of our extended family members had that

> and before I could answer her with, " I have no idea. " my mind raced

> forward to questioning individual family members as to the condition

> of their butt creases and I got the giggles.

>

> She kept an eye on it and it turned out to be nothing.

I'm glad it turned out to be nothing! My oldest had a sacral dimple, and it

also turned out to be nothing.

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

__________________________________________________

[Guest guest]

has a crooked crack too! He also has a dimple back there, but the MRI

found nothing, so I guess it is just something more for us to think about.

Re: Curvy sitting and foot pointing straight

,

Its funny that you mention the butt crack. When Elijah was really

young and being treated by the Air Force Dr, she asked me on several

occasions to look at his butt crack and thought it looked funny, as

tho' it werent fully developed and had some sort of (for lack of a

better word) 'pucker' at the top. I didnt think it looked odd, it

looked like the other babies Id had. I dont remember what she

called the condition.

lol, she also asked if any of our extended family members had that

and before I could answer her with, " I have no idea. " my mind raced

forward to questioning individual family members as to the condition

of their butt creases and I got the giggles.

She kept an eye on it and it turned out to be nothing.

Lori

> > > Hello, everyone! I have two separate questions. (8

> months

> > old next week) has a right club foot and is currently in the

FAB

> for

> > 14-16 hours a day. I've recently noticed more and more that

> when he

> > sits up, his body leans to the right and his head leans to the

> > left. Looks almost like an " S " from the back. He DOES have

> > torticollis, but the way he leans his body that way just looks

> weird

> > to me. Has anyone seen anything similar. He had spinal x-

rays

> when

> > he was born and no one mentioned anything about scoliosis, but

> who

> > knows?

> > >

> > > Also, he has unilateral right CF and when he's out of the

> shoes,

> > he usually keeps his left leg bent and the foot dorsiflexed

> > normally, but the right leg is usually kept straight and the

> toes

> > pointing down. Is this normal? I believe his foot is fully

> > corrected. He's had no probelms with the shoes. He also has

> just

> > recently started standing for a few seconds at a time with

help,

> so

> > I don't know if that will help keep his foot more dorsiflexed.

> > >

> > > If anyone has anything to say about any of this, I'd love to

> hear!

> > >

> > > Thanks in advance to everyone!!!!!!!!!!!!!!

> > >

> > >

> > > mommy of (12/15/04 RT CF, FAB 14/16 hrs a day)

> > >

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

That's interesting, Alister has a dimple thing on his

bum too. But so has his twin without the clubfoot...

with (*9/02)

and Alister (*9/02, RCF)

--- Joy wrote:

>

>

> --- Jenni Cypher wrote:

>

> > OK this is veering off of feet but Kelsey has that

> > little pucker at the top of her butt as well. As

> an

> > infant, they did an ultrasound to rule out spina

> > bifida because it also it also has a skin tag

> inside

> > it which I guess can be an indicator. It turned

> out

> > to be nothing but that is funny that another

> little

> > one on here has it as well.

>

> When Rose was born, she had a sacral dimple (which

> can indicate spina bifida

> occulta-meaning closed spina bifida). The u/s she

> had ruled that out. Each

> doctor we saw, though, would check her feet and

> check her diaper area. I have

> to wonder if it's pretty common in clubfoot

> children.

>

> Joy

>

>

http://www.geocities.com/joybelle15/rosesclubfootpage.html

>

>

>

> ____________________________________________________

> Start your day with Yahoo! - make it your home page

> http://www.yahoo.com/r/hs

>

>

Send instant messages to your online friends http://uk.messenger.yahoo.com

[Guest guest]

--- wrote:

> That's interesting, Alister has a dimple thing on his

> bum too. But so has his twin without the clubfoot...

>

>

I think it's pretty common, but the sacral dimple can be an indicator of sbo

regardless of clubfoot or not. It usually is just there and doesn't mean

anything. I think, though, that it might be more common with clubfoot because

each doctor Rose saw checked her little bum as if they expected to see

something.

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

--- wrote:

> I thought Spina Bifida & club foot are very related.

Well, kinda. Our newest baby to arrive in September is supposed to have spina

bifida and bilateral clubfeet. The clubfeet are part of the spina bifida. In

Rose's case, there was no reason for the clubfoot other than it happened.

According to the neonatologist and genetic counselor, this baby and Rose are

entirely individual cases and not linked. Even with Rose's sacral dimple. I

find it hard to believe there isn't some correlation, but hey, I'm no doctor.

I think clubfoot can be very related to spina bifida, but I don't think spina

bifida is very related to clubfoot if that makes much sense!

Joy

>

>

>

> >

> > > OK this is veering off of feet but Kelsey has that

> > > little pucker at the top of her butt as well. As an

> > > infant, they did an ultrasound to rule out spina

> > > bifida because it also it also has a skin tag inside

> > > it which I guess can be an indicator. It turned out

> > > to be nothing but that is funny that another little

> > > one on here has it as well.

> >

> > When Rose was born, she had a sacral dimple (which can indicate

> spina bifida

> > occulta-meaning closed spina bifida). The u/s she had ruled that

> out. Each

> > doctor we saw, though, would check her feet and check her diaper

> area. I have

> > to wonder if it's pretty common in clubfoot children.

> >

> > Joy

> >

> > http://www.geocities.com/joybelle15/rosesclubfootpage.html

> >

> >

> >

> > ____________________________________________________

> > Start your day with Yahoo! - make it your home page

> > http://www.yahoo.com/r/hs

>

>

>

http://www.geocities.com/joybelle15/rosesclubfootpage.html

__________________________________________________

[Guest guest]

--- wrote:

> > I think clubfoot can be very related to spina bifida, but I don't

> think spina

> > bifida is very related to clubfoot if that makes much sense!

>

> Joy--That does make sense...spina bifida can cause CF (or be a

> contributing factor or however you want to say it), but CF can't cause

> s/b, is I guess what you're saying.

Yep!

> Do they know how severe your new baby's spina bifida is? Or do they

> have to wait until he/she's born? (If you don't mind me asking) It

> does seem strange that you would have these similar things happen 2x

> and they say it's not related. Every doc that looked at Ava's feet

> immediately checked her back in our case, too. I guess that's why I

> figured they were linked.

We won't know the true severity until the baby is born, but at this point they

are saying Lumbar 4 which usually means paralysis from the knees down. There

are so many possible scenarios! When we first found out, it drove me

positively nuts not knowing exactly what we were going to be dealing with, but

now I have a peace about it and know it's in God's hands. I certainly don't

mind you asking!

I think it is very strange, and I have to wonder if there is some sort of link.

I think when the doctor's don't have the answers themselves, they tell you

there isn't a link or some sort of vague answer that basically means, " I

really don't know "

I am thinking that babies with clubfoot are checked on their backs because

there is a form of sb called spina bifida occulta. Sbo means that it is

closed, but there can sometimes be problems associated with it. I guess then,

if there was a child with sbo the clubfeet would be caused by that rather than

be idiopathic. I think the clubfoot serves as a marker for possible other

defects, but it doesn't mean they are there. I hope I'm not talking in circles

because I feel like I am!

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

__________________________________________________