Re:Kim-Aseanth featured in Jolly Holiday Lights Pamphlet (Photo enclosed!)

[Guest guest]

Her wish was granted actually last March, but they used her story for their

pamphlet because it was done this year. Just the reality of what

Make-A-Wish means and being around people who know it (cause they were

Make-A-Wish workers)was hard.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Aseanth featured in Jolly Holiday Lights Pamphlet (Photo

enclosed!)

>

>

> Darla,

> That is so cool ! I loved seeing the picture of Asi,,she looks very

> happy. I know what you mean about getting a little misty,about actually

> getting the wish.Logan has never gotten one,,but when I told friends that

> he might,,they got real quiet,,and said, " oh how sad " I hadn't really

> thought of it as sad,,but I guess it actually is.

> Anyway,,its late,and I'm rambling. Hope your girls are doing well.

>

>

> Kim mom to Meaghan 15 ~~Katelyn 12 Bipolar,and OCD ~~ Logan 7

> Autism,congenital myopathy,possible mitochondrial disease,and JRA ~~ and

> Ethan 5 and 100 % BOY

>

> ________________________________________________________________

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>

> Please contact mito-owner with any problems or questions.

>