Re: Happy Birthday is!

[Guest guest]

thanks so much it was she got way too much stuff as usual. The snow storm is allowing her to play w/ it. It is amazing how differently we look at each year. I know back when we were testing zach everything said he wouldnt make it past 4 so i know what you mean it totally changes ur perspective.

sarah Darla Klein wrote:

I hope her 6th birthday was a great one. Isn't it amazing how fast time flies? My Asenath is almost 5 and we didn't know if she would go beyond her 2nd birthday. How precious our kids are and each milestone to be cherished. I hope she had lots of fun celebrating it! :)See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks likeDarla: mommy toAsenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues...Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues,

aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ...Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Re: am i over reacting?> You just have to put your foot down. I know how hard it is, but now after > seeing how healthy zach has been by not having him in school , w/ the > "germs" they are starting to realize. Have the dr. write them a note. No > one sick is allowed to be around my son, no one is allowed to smoke around > my son. During flu season i keep my kids at bay from malls, and over > crowded germ infested places. Its not being paranoid or over protective,

> but its being realistic. We know our medically fragile kids can't handle > stuff.> mom to zach 4, alexis 6 TODAY!! Happy birthday is my sweet sweet > girl>> matts_mom96 wrote:>> Hi everyone, im so fustrated right now. As a rule i try to avoid> anyone who is sick, because Matt and I catch everything we are> exposed to. I cant for the life of me, get it through some family> members thick heads, that we cannot expose ourselves to thier germs,> be it through direct contact with them or by being around someone> who has been around them. Example: my sister calls Tuesday morning,> she is very sick with respitory illness and vomiting, she babysits> 3 boys, and she needs someone to drive them to school because she is> to ill to do it. (and will not take the day off from babysitting,> she cant afford to) She

calls me of course and i would do anything> to help my sister, but this to me is just putting me and Matt at> risk. The boys are fine, but can't they carry her "bug" to us,> without them getting sick from it?? Or am i overreacting??> Needless to say we are on the phone and she got me, after long> deliberation and procrastination, i ended up driving the boys. Here> it is Friday and Matt and i are sick with same syptoms as my> sister. Last night was so bad for Matt, he started coughing and> refluxing, that his nurse had to turn off his overnight feeding.> And he is coughing up a storm again tonight, but at least he is> keeping down the g-tube feeding so far. Once again can i be> overreacting? Im a "better safe than sorry" kinda gal, and i just> wish some family members outside my immediate homefront would> respect that, i have explained over

and over again about our mito,> and how our catching "bugs" really affects us and how hard it is to> bounce back. I know my sister doesnt want to see us sick, but i> dont think she is grasping that me and Matt dont need bad "germs" to> feel sick, we are feeling sick all the time just from the mito> alone. She has also said to me if i dont allow me and Matt to be> exposed to some germs we will never be able to fight off germs.> Hell i know that, but to jump from a frying pan into a fire, just> dont seem right to me and now im kicking myself for giving in on> Tuesday. What do you all think. Am i overreacting?? I just dont> know anymore. Barb>>>>>> Please contact mito-owner with any problems or questions.>>>> ---------------------------------> Yahoo! Groups

Links>> To visit your group on the web, go to:> http://groups.yahoo.com/group/Mito/>>

[Guest guest]

Happy Belated Birthday is!

AnnDarla Klein wrote:

I hope her 6th birthday was a great one. Isn't it amazing how fast time flies? My Asenath is almost 5 and we didn't know if she would go beyond her 2nd birthday. How precious our kids are and each milestone to be cherished. I hope she had lots of fun celebrating it! :)See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks likeDarla: mommy toAsenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues...Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues,

aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ...Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Re: am i over reacting?> You just have to put your foot down. I know how hard it is, but now after > seeing how healthy zach has been by not having him in school , w/ the > "germs" they are starting to realize. Have the dr. write them a note. No > one sick is allowed to be around my son, no one is allowed to smoke around > my son. During flu season i keep my kids at bay from malls, and over > crowded germ infested places. Its not being paranoid or over protective,

> but its being realistic. We know our medically fragile kids can't handle > stuff.> mom to zach 4, alexis 6 TODAY!! Happy birthday is my sweet sweet > girl>> matts_mom96 wrote:>> Hi everyone, im so fustrated right now. As a rule i try to avoid> anyone who is sick, because Matt and I catch everything we are> exposed to. I cant for the life of me, get it through some family> members thick heads, that we cannot expose ourselves to thier germs,> be it through direct contact with them or by being around someone> who has been around them. Example: my sister calls Tuesday morning,> she is very sick with respitory illness and vomiting, she babysits> 3 boys, and she needs someone to drive them to school because she is> to ill to do it. (and will not take the day off from babysitting,> she cant afford to) She

calls me of course and i would do anything> to help my sister, but this to me is just putting me and Matt at> risk. The boys are fine, but can't they carry her "bug" to us,> without them getting sick from it?? Or am i overreacting??> Needless to say we are on the phone and she got me, after long> deliberation and procrastination, i ended up driving the boys. Here> it is Friday and Matt and i are sick with same syptoms as my> sister. Last night was so bad for Matt, he started coughing and> refluxing, that his nurse had to turn off his overnight feeding.> And he is coughing up a storm again tonight, but at least he is> keeping down the g-tube feeding so far. Once again can i be> overreacting? Im a "better safe than sorry" kinda gal, and i just> wish some family members outside my immediate homefront would> respect that, i have explained over

and over again about our mito,> and how our catching "bugs" really affects us and how hard it is to> bounce back. I know my sister doesnt want to see us sick, but i> dont think she is grasping that me and Matt dont need bad "germs" to> feel sick, we are feeling sick all the time just from the mito> alone. She has also said to me if i dont allow me and Matt to be> exposed to some germs we will never be able to fight off germs.> Hell i know that, but to jump from a frying pan into a fire, just> dont seem right to me and now im kicking myself for giving in on> Tuesday. What do you all think. Am i overreacting?? I just dont> know anymore. Barb>>>>>> Please contact mito-owner with any problems or questions.>>>> ---------------------------------> Yahoo! Groups

Links>> To visit your group on the web, go to:> http://groups.yahoo.com/group/Mito/>>