Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 Hey Guys, I just wanted to let you know that while I did not get a confirmed dx, I did feel good about seeing Dr. and he will make some recommendations about what we need to do next. His best guess is NS, but without a biopsy of something I am still in limbo. I am going to end up back on prednisone - which I have a terrible time with - have myopathy and can't walk very well. I think emotionally, though, he made me stop thinking I was nuts. After my horrible experience at Duke and being told my illness was psychosomatic, I kept thinking in the back of my mind that maybe it was all me. He really made me feel better about the whole thing. I will know more about his recommendations in a couple of weeks when I meet with my neurologist but I just want to thank you guys for sticking with me. Love to All Terri G. Quote Link to comment Share on other sites More sharing options...
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