Re: to Patty

[Guest guest]

Hi Patty;

Does he seem distended as though his bladder is full?

When Kirk started suffering from urine retention, his

tummy would be quite distended. We have started doing

in & out catheterizations when he hasn't gone for awhile

because he's had two urinary tract infections because

of the urine not being fully drained.

Kirk doesn't have any lactic acid irregularities

though so I'm coming at this strictly from a 'urine

retention' perspective. I think I'd definitely pursue

it though. Where could all the fluids be going if

they're not coming out of the body? Anybody know?

Kirkland had a VCUG and Urodynamics test to try to

illuminate the problem. We never really had an

answer. I just assume it's the progreesion of the

disease.

Take care,

mom to Kirkland almost 4, Complex One Def.

wwwcaringbridge.org/canada/kirklandk/

--- TPAEJJ90@... wrote:

> Hi just a quick question my son Josh is almost 9

> his last 2 Acid

> Phosphatase blood test came back high. Normal is 3.0

> to 7.0 his first one was 9.3 and

> the latest one was 9.8, so his Doctor is checking

> with a Nephrologist or in my

> terms a kidney specialist. I have noticed that he is

> urinating less but

> drink's the same amount of fluids. So I started

> keeping track at home and at school

> he only urinates once in a 24 hour period. Do any or

> you think I should take a

> more aggressive approach? And are any of your kid's

> like this? One more thing

> his Lactic Acid levels have always been high as

> well.

>

> Thank you all Patty

>

__________________________________________________