Guest guest Posted January 12, 2005 Report Share Posted January 12, 2005 Bummer Geri-Anne! I had great hopes for Wyatt's seizures being controlled. Thanks for the heads up. The last thing we need is sleep problems. We meet with the neuro on the 26th so I am really going to pick his brain and see what exactly we should do. Knock on wood, the girls' seizures haven't been too bad as of late. We still see more than we should but I will take small improvements. I see them a lot when they get worked up (you know like if I don't get the TV turned to Dora in time...) Unfortunately it's going to be cold here the next few days too. Luckily, not quite as cold as it will be for you Minnesotans. Bundle up! Kim Kim Knovy- lamictal > > > Kim I wanted you to know that we are having some problems with Wy's > lamictal. He has started to have seizures even though he is at the > maximum dosage he can have. They are not grandmals like he > typically has, which is good. They are staying more centralized, > but he is having a couple a week. Baseline for him is 1 seizure > every 6 months. I was at the neuro last week and she also told me > that a common side affect of lamictal is that kids will not sleep at > night. Probably 2 nights a month, maybe more, Wyatt will not > sleep. I never knew why. Well now I do. The negative to that is a > lack of sleep can cause seizures. I just wanted you to know before > you gave lamictal a try. Boy things can change in a month. I swear > it was a couple of weeks ago that I told you he had had no seizures > since being put on lamictal last year. > > Geri-Anne and Wyatt, Complex I > > P.S.- Hope you are enjoying all of the snow. It is suppose to be -20 > tomorrow without windchill. The high is suppose to be -5. Isn't > winter great !!! > > > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 Hi Geri-Anne, I just saw Chelsea's pulm and we discussed the sleep issue. Chelsea had been having a lot of problems with not sleeping and then seizures. The cause fro her was a double whammy as she is on Lamictal and it is a sx of RS. Anyway, her pulm ok'd trying melatonin before bed to see if that helps. I started giving her 3mg with her bedtime snack last thurs and she has been sleeping all nite, thru the nite since. (and I was told it might take a few weeks to have an effect). Melatonin is naturally produced in the brain, and should be safe to try. Let me know if you have any ?'s. e, Chelsea's mom, atypical Rett Syndrome (FKA nonspecific mito) Quote Link to comment Share on other sites More sharing options...
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